21-full
ashfieb
Sex: M
Data Quality: 1 star
ALS: 9 yrs
Bulbar: none
Arms: moderate
Chest: none
Legs: mild
ashfieb
Male, 67 years
Hessle, United Kingdom
Primary Condition
ALS
First symptom
Diagnosis
Undiagnosed
See more
  1. 21-thumb
    ashfieb
    Sex: M
    Data Quality: 1 star
    Bulbar: none
    Arms: moderate
    Chest: none
    Legs: mild
    I have:
    ALS
    star earnedstar notearnedstar notearned 1 star
    lost a star Dec 22, 2012
  2. 21-thumb
    ashfieb
    Sex: M
    Data Quality: 1 star
    Bulbar: none
    Arms: moderate
    Chest: none
    Legs: mild
    I have:
    ALS

    FVC: 70%

    completed the FVC survey for Oct 23, 2012 Oct 23, 2012
  3. 21-thumb
    ashfieb
    Sex: M
    Data Quality: 1 star
    Bulbar: none
    Arms: moderate
    Chest: none
    Legs: mild
    I have:
    ALS

    Symptom Update

    • moderate Fasciculations
    updated his symptoms for Oct 23, 2012 Oct 23, 2012
  4. 21-thumb
    ashfieb
    Sex: M
    Data Quality: 1 star
    Bulbar: none
    Arms: moderate
    Chest: none
    Legs: mild
    I have:
    ALS

    Vitamin C (ascorbic acid)

      • Stopped: Sep 23, 2012
      • Reason: Did not seem to work
      • Started: Apr 25, 2005
      • Last Dosage: 500 mg daily
    • Purpose: ALS
    updated the treatment Vitamin C (ascorbic acid) Oct 23, 2012
    • Added
      • Started: Apr 25, 2005
      • Dosage: 3000 mg daily
      • Purpose: ALS (Amyotrophic Lateral Sclerosis)
      • Apr 25, 2005
    • Changed Dosage
      • Dosage: 1500 mg daily
      • Feb 09, 2009
    • Changed Dosage
      • Dosage: 500 mg daily
      • Mar 01, 2011
    • Stopped
      • Date: Sep 23, 2012
      • Reason: Did not seem to work
      • Sep 23, 2012
  5. 21-thumb
    ashfieb
    Sex: M
    Data Quality: 1 star
    Bulbar: none
    Arms: moderate
    Chest: none
    Legs: mild
    I have:
    ALS

    N-Acetylcysteine NAC

      • Stopped: Sep 23, 2012
      • Reason: Did not seem to work
      • Started: Oct 6, 2005
      • Last Dosage: 600 mg daily
    • Purpose: ALS
    updated the treatment N-Acetylcysteine NAC Oct 23, 2012
    • Added
      • Started: Oct 06, 2005
      • Dosage: 1000 mg daily
      • Purpose: ALS (Amyotrophic Lateral Sclerosis)
      • Oct 06, 2005
    • Stopped
      • Date: Jan 21, 2008
      • Reason: Personal research
      • Jan 21, 2008
    • Restarted
      • Dosage: 1800 mg daily
      • Feb 19, 2008
    • Changed Dosage
      • Dosage: 600 mg daily
      • Feb 09, 2009
    • Stopped
      • Date: Sep 23, 2012
      • Reason: Did not seem to work
      • Sep 23, 2012
  6. 21-thumb
    ashfieb
    Sex: M
    Data Quality: 1 star
    Bulbar: none
    Arms: moderate
    Chest: none
    Legs: mild
    I have:
    ALS
    star earnedstar earnedstar notearned 2 stars
    earned a star! Oct 23, 2012
  7. 21-thumb
    ashfieb
    Sex: M
    Data Quality: 1 star
    Bulbar: none
    Arms: moderate
    Chest: none
    Legs: mild
    I have:
    ALS

    FRS: 33

    • none Head
    • moderate Arms
    • none Torso
    • mild Legs
    completed the FRS survey for Sep 23, 2012 Sep 23, 2012
  8. 21-thumb
    ashfieb
    Sex: M
    Data Quality: 1 star
    Bulbar: none
    Arms: moderate
    Chest: none
    Legs: mild
    I have:
    ALS

    144 lb 3 oz BMI: 22.6

    updated his weight for Sep 23, 2012 Sep 23, 2012
  9. 21-thumb
    ashfieb
    Sex: M
    Data Quality: 1 star
    Bulbar: none
    Arms: moderate
    Chest: none
    Legs: mild
    I have:
    ALS

    FRS: 34

    • none Head
    • moderate Arms
    • none Torso
    • mild Legs
    completed the FRS survey for Jun 15, 2012 Jun 15, 2012
  10. 21-thumb
    ashfieb
    Sex: M
    Data Quality: 1 star
    Bulbar: none
    Arms: moderate
    Chest: none
    Legs: mild
    I have:
    ALS

    Normast Treatment Evaluation

    • Perceived effectiveness for ALS (Amyotrophic Lateral Sclerosis): Led_efficacy_1Led_defaultLed_defaultLed_defaultNone
    • Side Effects: ModerateModerateModerateModerateModerate
    • Adherence: AlwaysAlwaysAlwaysAlwaysAlways
    • Burden: Not at allNot at allNot at allNot at allNot at all
    Advice & Tips
    I have stopped taking the normast (tablets 600 mg x 2) after 5 days as I experienced an acceleration of progression. My right arm is a bit weaker and my swallowing/chewing has deteriorated, I'm also feeling very fatigued. Of course I cannot definitely attribute this to the Normast, it may just be a coincidence. Cheers Barry
    added a treatment evaluation for Normast from Jun 4, 2012 Jun 08, 2012
  11. 21-thumb
    ashfieb
    Sex: M
    Data Quality: 1 star
    Bulbar: none
    Arms: moderate
    Chest: none
    Legs: mild
    I have:
    ALS

    Stopped: Normast

    • Stopped: Jun 4, 2012
    • Reason: Side effects too severe
    stopped taking the treatment Normast Jun 08, 2012
  12. 21-thumb
    ashfieb
    Sex: M
    Data Quality: 1 star
    Bulbar: none
    Arms: moderate
    Chest: none
    Legs: mild
    I have:
    ALS

    Normast Treatment Evaluation

    • Perceived effectiveness for ALS (Amyotrophic Lateral Sclerosis): ?Can't tell
    • Side Effects: NoneNoneNoneNoneNone
    • Adherence: AlwaysAlwaysAlwaysAlwaysAlways
    • Burden: Not at allNot at allNot at allNot at allNot at all
    added a treatment evaluation for Normast May 29, 2012
  13. 21-thumb
    ashfieb
    Sex: M
    Data Quality: 1 star
    Bulbar: none
    Arms: moderate
    Chest: none
    Legs: mild
    I have:
    ALS

    Normast

      • Stopped: Jun 04, 2012
      • Reason: Side effects too severe
      • Started: May 29, 2012
      • Last Dosage: 1200 mg daily
    • Purpose: ALS
    • View Latest Evaluation
    added the treatment Normast May 29, 2012
    • Added
      • Started: May 29, 2012
      • Dosage: 1200 mg daily
      • Purpose: ALS (Amyotrophic Lateral Sclerosis)
      • May 29, 2012
    • Evaluated
    • Stopped
      • Date: Jun 04, 2012
      • Reason: Side effects too severe
      • Jun 04, 2012
    • Evaluated
  14. 21-thumb
    ashfieb
    Sex: M
    Data Quality: 1 star
    Bulbar: none
    Arms: moderate
    Chest: none
    Legs: mild
    I have:
    ALS

    146 lb BMI: 22.9

    updated his weight for Mar 6, 2012 Mar 06, 2012