The pic I have on here is of my Mom and I this past Christmas 2008. She is my best friend. I haven't been on here in a while, so I am adding this in hope that I will give more efort to this site, I believe it is the best.
I was raised in Jackson,MS with just my Mom and 1 sister. I don't remember anything about my "sperm donor" oops, I mean my Father. My sister has cerebral palsy and mental retardation, she is 3 yrs. older than me. It was real hard on my Mom and it was hard on me. It made me appreciate people with handicaps, but it also made me feel left out and lonely. My Mom had to work fulll time to support us, she did the best she could and after years of trying to 'see' her side of the situation; she is my best friend.
I went to cosmetology shcool as soon as I got out of high school; always knew thats what I wanted to do. Not bragging, just proud!! I made all 100's on my test, which was very unusual according to the State Board. So while I was in school I met my 1st husband. With him I had 2 boys...Christian 31, and Daniel 27. D-I-V-O-R-C-E-D, and remarried about 2 and a half yrs. later. I then had Jason 25 and Jacob 23. WHEW and I thought I wanted 10 when I was growing up!! 5 girls and 5 boys.....guess the good Lord knew what he was doin'! AND as bad as I hate to admit it I got married again, of course after another D_I_V_O_R_C_E. lol No children from that one, that you LAWD. KNEW I SHOULDN'T HAVE DONE THAT ONE.SPECIALLY WHEN YOUR WALKING DOWN THE AISLE SAYING TO YOURSELF "ARE YOU CRAZY????" Sooooo....I learned my lesson and have been single for about 13 yrs.
OK..let's see. I bought out the guy I was working for in 1998. Named my shop "Hairport", and built a great clientele. For the 1st couple of yrs. it was GREAT! I don't think I was ever consider graceful , seems like I don't remember not being clumsy. But things started getting worse, slowly at first. I began to get clumsier, like dropping things, tripping over things that weren't there. I'd like to have a 5 dollar bill for every time I have fallen!!! LOL
I began going to DRS. after I started having pain all the time. Seems like if I remember it started in my back, and then down my legs. MRI on my back showed a herniated disc, so I tried the injections to no relief. AND THEN the pain was all over, strange pain that I could not describe. Kept me up at night, YALL KNOW...the whole 10 yards!! Can't remember which one, but one of the DRS. sent me to a Rheumatologist. After being poked and prodded on by him, he said the only thing he could think that would cause all my pain would be Fibromyalgia. I won't go into all that has gone on since then, just to say that I have been dxed with DDD, spinal stenosis, have several discs that are herniated, carpal tunnel, arthritis; hmmm I think that is all!!!! LMAO
I do know this much....My pain is constant, its a new world each day! I have so many strange and unexplained symptoms. I kept a pain diary for yrs. and just stopped cause it was redicules to try to list all that was going on. For about the last 5 yrs. I have developed all kinds of new things. Shock feelings in my brain, down my back and sometimes just an overwhelming feeling of electriciy all over my body. Weakness that is so intense at times that I can barely get from one seat to another to sit down. Shakes and tremors, spasms and jerks Oh and LAWDY LAWDY, if I had to say one thing is worse I would say that my cognitive abilities are gone out the window!!! My Mom tells me if my head were not attached to my shoulders, I would leave it. My boys think I have lost my mind, but I think so too! I use to have a photographic memory, especially when it came to numbers....hahahaha, forget that.
Gosh I know I have gone on abd on. Didn't know how to get started and now don't know how to shut up. Just hope any of this makes sense.
I really use to be an active person, loved my business, rode horses and went to the big trail rides, loved to ride on a Harley and went to many long trips. Now I lost my shop bout 2 yrs. ago because of the pain and weakness, my hands got too unsteady to hold the comb! HAH.....and as far as anything of pleasure, hmmm "whats that"???
But I do thank God for finding this site. I honestly don't know how I found it, wasn't looking........next thing I know I see PLM on my computer and I'm going "what the heck is this"!!!! I've come to care so much about all of you and have learned so much. May not ever get dx with MS, but all of my symptoms are the same. I feel a kinship with yall that I've never felt before and I thank yall and the ones that put this site together.
- nPAIN24/7
- Sex: F
- Data Quality: 0 stars
- MS: 13 yrs
- Relapse: Severe
- Sensation: Severe
- Overall: Moderate
- Cognition: moderate
- Vision: moderate
- Speech: moderate
- Swallowing: moderate
- Upper limb: moderate
- Walking: moderate
- nPAIN24/7
- Female, 55 years
- Richland, MS