Rilutek

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Tommy Maker's Rilutek History (Stopped)
Rilutek (riluzole)
100 mg Daily Oct 19, 2009 - Aug 10, 2012
Stopped Other Aug 10, 2012

Tommy Maker's Rilutek is for…

  • ALS (Amyotrophic Lateral Sclerosis)

Tommy Maker has not reported any side effects for Rilutek.

Evaluations


Aug 10, 2012

  • Perceived effectiveness for ALS (Amyotrophic Lateral Sclerosis): Can’t tell
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 100 mg Daily
Advice & Tips: it may have been effective, after all I am 40 months on since diagnosis. I have stopped taking it now that I am almost physically incapable. I don't relish the prospect of spending an extra three months in physical decrepitude.
Cost: < $25 monthly

Apr 30, 2010

  • Perceived effectiveness for ALS (Amyotrophic Lateral Sclerosis): Can’t tell
  • Side Effects: Mild
  • Adherence: Always
  • Burden: Not at all
Dosage: 100 mg Daily
Advice & Tips: initially I was dreadfully tired and I thought I experienced a bad taste in my mouth but both effects wore off. As to the benefits of the treatment, what can I say, it's difficult to know if it helps, I've not had MND before. However, my MND has slow progression. It should benoted that in the UK there is no cost implication in the decision to take riluzole as the medication is paid for by the National Health Service and costs the patient $10 a month.
Cost: < $25 monthly

About Rilutek (Prescription Drug)

Rilutek® is a brand name for riluzole, the first drug to be approved for the treatment of amyotrophic lateral sclerosis (ALS). Rilutek does not cure ALS or improve symptoms, but may extend survival or the time to tracheostomy.

Learn more about Rilutek in our Rilutek Community Report.