21100-full
Echo Mountain
Sex: M
Data Quality: 3 stars
Pain: All
Fatigue: Most
Sleep: All
Stiffness: All
function: None
external_stress: Some
Stickman: all
Description:M39y
CFS:6y Dx
FM:6y Dx
Echo Mountain
Male, 39 years
Colorado Springs, CO
Primary Condition
Fibromyalgia and 13 more
First symptom
Diagnosis
Interests
Advocacy, Faith and 2 more
See more
  1. 21100-thumb
    Echo Mountain
    Sex: M
    Data Quality: 3 stars
    Pain: All
    Fatigue: Most
    Sleep: All
    Stiffness: All
    function: None
    external_stress: Some
    Stickman: all
    Description:M39y
    CFS:6y Dx
    FM:6y Dx
    I am: b
    I have:
    Fibromyalgia

    PFRS: 45

    • Most Fatigue
    • All Sleep
    • All Stiffness
    • All Pain
    • Moderate External Stress
    completed the PFRS survey for May 20, 2013 May 20, 2013

    May 6-7, I woke up that Tuesday at 12 AM (sleep cycle was off) and I had 6 hours where I was relatively symptom free! It didn't last, but it was really nice! I haven't had 6 hours like that in several years! I suspect it had something to do with my sweetening the oxygen mix on my BiPap. My energy seems to have returned to a lesser degree as well. Since the 7th, however, the symptoms are all back. Will try to get back on BiPap soon.

  2. 21100-thumb
    Echo Mountain
    Sex: M
    Data Quality: 3 stars
    Pain: All
    Fatigue: Most
    Sleep: All
    Stiffness: All
    function: None
    external_stress: Some
    Stickman: all
    Description:M39y
    CFS:6y Dx
    FM:6y Dx
    I am: b
    I have:
    Fibromyalgia

    Bad

    added an InstantMe for May 20, 2013 May 20, 2013 12:54PM

    Woke yesterday with real bad tension headache. Took 20 minutes on the BiPap trying to fall back asleep. Headache went away, but couldn't fall asleep. Took off BiPap, and headache returned. That's not good. Didn't stay all day, however. I still feel it a bit after waking this morning.

  3. 21100-thumb
    Echo Mountain
    Sex: M
    Data Quality: 3 stars
    Pain: All
    Fatigue: Most
    Sleep: All
    Stiffness: All
    function: None
    external_stress: Some
    Stickman: all
    Description:M39y
    CFS:6y Dx
    FM:6y Dx
    I am: b
    I have:
    Fibromyalgia

    Neutral

    added an InstantMe for May 10, 2013 May 11, 2013 12:38AM

    Actually went with Karen to the store! Energy still good, but pain seems to be worsening.

  4. 21100-thumb
    Echo Mountain
    Sex: M
    Data Quality: 3 stars
    Pain: All
    Fatigue: Most
    Sleep: All
    Stiffness: All
    function: None
    external_stress: Some
    Stickman: all
    Description:M39y
    CFS:6y Dx
    FM:6y Dx
    I am: b
    I have:
    Fibromyalgia

    Bad

    added an InstantMe for May 10, 2013 May 11, 2013 12:34AM

    Energy low, arms & legs locked in vices (crushing nerve pain). So much for my good streak lasting. "Don't cry because it's over, smile because it happened." - Dr. Seuss.

  5. 21100-thumb
    Echo Mountain
    Sex: M
    Data Quality: 3 stars
    Pain: All
    Fatigue: Most
    Sleep: All
    Stiffness: All
    function: None
    external_stress: Some
    Stickman: all
    Description:M39y
    CFS:6y Dx
    FM:6y Dx
    I am: b
    I have:
    Fibromyalgia

    Good

    added an InstantMe for May 9, 2013 May 09, 2013 2:05AM

    More on symptoms. Feeling nerve pain down my legs and joint pain is real, but energy remains good! yay! Now, I hope it lasts long.

  6. 21100-thumb
    Echo Mountain
    Sex: M
    Data Quality: 3 stars
    Pain: All
    Fatigue: Most
    Sleep: All
    Stiffness: All
    function: None
    external_stress: Some
    Stickman: all
    Description:M39y
    CFS:6y Dx
    FM:6y Dx
    I am: b
    I have:
    Fibromyalgia

    Good

    added an InstantMe for May 8, 2013 May 09, 2013 1:27AM

    I do have symptoms, but they are figuring out that they don't have to make life a living hell for me.

  7. 21100-thumb
    Echo Mountain
    Sex: M
    Data Quality: 3 stars
    Pain: All
    Fatigue: Most
    Sleep: All
    Stiffness: All
    function: None
    external_stress: Some
    Stickman: all
    Description:M39y
    CFS:6y Dx
    FM:6y Dx
    I am: b
    I have:
    Fibromyalgia

    Very good

    added an InstantMe for May 7, 2013 May 09, 2013 1:26AM

    After re-adjusting the oxygen on my BiPap from 2 to 3, and after having my wife apply two Lidoderm patches to my trouble spots on my back, I fell asleep at roughly 11 AM Monday (5/6). I woke briefly a few times but intentionally remained still and fell back asleep. Finally waking up at 12:10 AM after 13 hours, I got up out of my chair feeling actually recharged! It was difficult to discern if I felt any symptoms. Holy Moses! I hope it lasts!

  8. 21100-thumb
    Echo Mountain
    Sex: M
    Data Quality: 3 stars
    Pain: All
    Fatigue: Most
    Sleep: All
    Stiffness: All
    function: None
    external_stress: Some
    Stickman: all
    Description:M39y
    CFS:6y Dx
    FM:6y Dx
    I am: b
    I have:
    Fibromyalgia

    PFRS: 46

    • All Fatigue
    • All Sleep
    • All Stiffness
    • Most Pain
    • Moderate External Stress
    completed the PFRS survey for May 1, 2013 May 01, 2013

    What else would I like to share about CFS's impact on my life? Having CFS freaking sucks! That's what I'd like to share.

  9. 21100-thumb
    Echo Mountain
    Sex: M
    Data Quality: 3 stars
    Pain: All
    Fatigue: Most
    Sleep: All
    Stiffness: All
    function: None
    external_stress: Some
    Stickman: all
    Description:M39y
    CFS:6y Dx
    FM:6y Dx
    I am: b
    I have:
    Fibromyalgia

    Bad

    added an InstantMe for May 1, 2013 May 01, 2013 9:10PM

    The snow has stopped but I'm far from symptom free. Using a cane to get around the house. continue to need ice most of the time. Took more effort than normal to get showered and clean. Had to, though. In home haircuts, while convenient can't be rescheduled if you're just not quite there for it.

  10. 21100-thumb
    Echo Mountain
    Sex: M
    Data Quality: 3 stars
    Pain: All
    Fatigue: Most
    Sleep: All
    Stiffness: All
    function: None
    external_stress: Some
    Stickman: all
    Description:M39y
    CFS:6y Dx
    FM:6y Dx
    I am: b
    I have:
    Fibromyalgia

    UTI (Urinary Tract Infection)

    • First symptom:
    • Diagnosis:
    updated the condition UTI (Urinary Tract Infection) Apr 26, 2013

    No symptoms since treatment with Ciprofloxacin after diagnosis until January 2013, when I had a second UTI diagnosis. Then in March, I had a symptoms for a day. I called my PCP and she referred me to a urologist.

    4/14 Had an appointment today with a urologist regarding my bladder infections in January and March. Because today's sample came back clear, he is pretty sure that these are bacterial infections that my body is attempting to filter out. Just to be sure, he wants to scope me.

  11. 21100-thumb
    Echo Mountain
    Sex: M
    Data Quality: 3 stars
    Pain: All
    Fatigue: Most
    Sleep: All
    Stiffness: All
    function: None
    external_stress: Some
    Stickman: all
    Description:M39y
    CFS:6y Dx
    FM:6y Dx
    I am: b
    I have:
    Fibromyalgia

    Neutral

    added an InstantMe for Apr 26, 2013 Apr 26, 2013 11:07PM

    I have improved quite a bit in the last 24, although having a 60 lb retriever puppy nearly killed me when he decided he wasn't going into his kennel. My back still hurts in new places from that one. Hopefully it cools down. When discussing a Celtic singing group, my wife told me I was her favorite Scot. I told her that made my month. Plus, I received a comment from @panteragrl_1966 relating to the weather and DDD. Nothing like knowing I'm not alone and that I'm not crazy to cheer me up. So things are a little better.

  12. 21100-thumb
    Echo Mountain
    Sex: M
    Data Quality: 3 stars
    Pain: All
    Fatigue: Most
    Sleep: All
    Stiffness: All
    function: None
    external_stress: Some
    Stickman: all
    Description:M39y
    CFS:6y Dx
    FM:6y Dx
    I am: b
    I have:
    Fibromyalgia

    Degenerative Disc Disease

    • First symptom:
    • Diagnosis:
    updated the condition Degenerative Disc Disease Apr 17, 2013

    For me, having DDD is like having a bunch of angry claws dug in between my shoulders and shoulder blades, and those claws also burn hot with inflammation. Sometimes they're docile and quiet, sometimes ill-mannered, and sometimes violent and abusive. But they're always there, always reminding me that my life is not going to be like it once was. I have ways of coping and fighting it, but it is always there.

    4 comments from other members. Only showing public users' comments. Sign up to see all comments!
    • 21100-thumb

      Absolutely the weather affects me! It gets bad when the pressure drops and the humidity rises. When they combine, it totally shuts me down. I can't write, work, participate, or do anything more than watch Netflix in a semi-conscious state. Yeah, it affects me.

      about 4 weeks ago
  13. 21100-thumb
    Echo Mountain
    Sex: M
    Data Quality: 3 stars
    Pain: All
    Fatigue: Most
    Sleep: All
    Stiffness: All
    function: None
    external_stress: Some
    Stickman: all
    Description:M39y
    CFS:6y Dx
    FM:6y Dx
    I am: b
    I have:
    Fibromyalgia

    Very bad

    added an InstantMe for Apr 17, 2013 Apr 17, 2013 6:56PM

    Realizing pain from last night in mid-back has activated my upper back and is even reaching up to my neck.

  14. 21100-thumb
    Echo Mountain
    Sex: M
    Data Quality: 3 stars
    Pain: All
    Fatigue: Most
    Sleep: All
    Stiffness: All
    function: None
    external_stress: Some
    Stickman: all
    Description:M39y
    CFS:6y Dx
    FM:6y Dx
    I am: b
    I have:
    Fibromyalgia

    Very bad

    added an InstantMe for Apr 17, 2013 Apr 17, 2013 6:54PM

    All morning and afternoon have been spent whimpering and trying to keep from taking people's heads off. Upper back pain is very bad. Will not let up.

  15. 21100-thumb
    Echo Mountain
    Sex: M
    Data Quality: 3 stars
    Pain: All
    Fatigue: Most
    Sleep: All
    Stiffness: All
    function: None
    external_stress: Some
    Stickman: all
    Description:M39y
    CFS:6y Dx
    FM:6y Dx
    I am: b
    I have:
    Fibromyalgia

    Very bad

    added an InstantMe for Apr 17, 2013 Apr 17, 2013 6:53PM

    Upper back pain is very bad and it is affecting everything. I cannot make household repairs, even though we need them right now. Cannot take a bath. I'm very angry that I can't even handle what I usually can.

  16. 21100-thumb
    Echo Mountain
    Sex: M
    Data Quality: 3 stars
    Pain: All
    Fatigue: Most
    Sleep: All
    Stiffness: All
    function: None
    external_stress: Some
    Stickman: all
    Description:M39y
    CFS:6y Dx
    FM:6y Dx
    I am: b
    I have:
    Fibromyalgia

    Bad

    added an InstantMe for Apr 17, 2013 Apr 17, 2013 2:05AM

    Pain in mid back is higher than normal after playing SMBw (video game). Controller is too small! Feeling horrible. Spasms are high. Sciatica jolts down both legs.

  17. 21100-thumb
    Echo Mountain
    Sex: M
    Data Quality: 3 stars
    Pain: All
    Fatigue: Most
    Sleep: All
    Stiffness: All
    function: None
    external_stress: Some
    Stickman: all
    Description:M39y
    CFS:6y Dx
    FM:6y Dx
    I am: b
    I have:
    Fibromyalgia

    GERD (Gastroesophageal reflux disease)

    • First symptom:
    • Diagnosis:
    updated the condition GERD (Gastroesophageal reflux disease) Apr 17, 2013

  18. 21100-thumb
    Echo Mountain
    Sex: M
    Data Quality: 3 stars
    Pain: All
    Fatigue: Most
    Sleep: All
    Stiffness: All
    function: None
    external_stress: Some
    Stickman: all
    Description:M39y
    CFS:6y Dx
    FM:6y Dx
    I am: b
    I have:
    Fibromyalgia

    Leg Massage Treatment Evaluation

    • Perceived effectiveness for Raynaud's phenomenon: Led_efficacy_3Led_efficacy_3Led_efficacy_3Led_defaultModerate
    • Perceived effectiveness for Restless feeling in legs: Led_efficacy_2Led_efficacy_2Led_defaultLed_defaultSlight
    • Perceived effectiveness for Spasms: Led_efficacy_3Led_efficacy_3Led_efficacy_3Led_defaultModerate
    • Side Effects: NoneNoneNoneNoneNone
    • Adherence: SometimesSometimesSometimesSometimesSometimes
    • Burden: VeryVeryVeryVeryVery
    added a treatment evaluation for Leg Massage from Oct 15, 2012 Apr 16, 2013
  19. 21100-thumb
    Echo Mountain
    Sex: M
    Data Quality: 3 stars
    Pain: All
    Fatigue: Most
    Sleep: All
    Stiffness: All
    function: None
    external_stress: Some
    Stickman: all
    Description:M39y
    CFS:6y Dx
    FM:6y Dx
    I am: b
    I have:
    Fibromyalgia

    Vitamin D Treatment Evaluation

    • Perceived effectiveness for Insomnia: ?Can't tell
    • Side Effects: NoneNoneNoneNoneNone
    • Adherence: UsuallyUsuallyUsuallyUsuallyUsually
    • Burden: SomewhatSomewhatSomewhatSomewhatSomewhat
    added a treatment evaluation for Vitamin D from Dec 1, 2012 Apr 16, 2013
  20. 21100-thumb
    Echo Mountain
    Sex: M
    Data Quality: 3 stars
    Pain: All
    Fatigue: Most
    Sleep: All
    Stiffness: All
    function: None
    external_stress: Some
    Stickman: all
    Description:M39y
    CFS:6y Dx
    FM:6y Dx
    I am: b
    I have:
    Fibromyalgia

    Move Free Advanced Glucosamine/Chondroitin/Hyaluronic Acid Treatment Evaluation

    • Perceived effectiveness for Degenerative Disc Disease: ?Can't tell
    • Perceived effectiveness for Muscle and joint pain: ?Can't tell
    • Side Effects: NoneNoneNoneNoneNone
    • Adherence: UsuallyUsuallyUsuallyUsuallyUsually
    • Burden: SomewhatSomewhatSomewhatSomewhatSomewhat
    added a treatment evaluation for Move Free Advanced Glucosamine/Chondroitin/Hyaluronic Acid from Dec 1, 2012 Apr 16, 2013
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