ltbeauti's Journal

ltbeauti: Sex: F; Data Quality: 3 stars; ALS: 8 yrs; Bulbar: moderate; Arms: mild; Chest: none; Legs: moderate

ltbeauti: Female, 50 years; Richmond, VA

Primary Condition: ALS and 2 more ▼

First symptom: Nov 2004
Diagnosis: Apr 2008

ltbeauti

Sex: F

Data Quality: 3 stars

Bulbar: moderate

Arms: mild

Chest: none

Legs: moderate

I am: n

I have:
ALS

FVC: 81%

ltbeauti completed the FVC survey for Apr 29, 2013 May 04, 2013
ltbeauti

Sex: F

Data Quality: 3 stars

Bulbar: moderate

Arms: mild

Chest: none

Legs: moderate

I am: n

I have:
ALS

3 stars
ltbeauti earned a star! Apr 15, 2013
1 comment from other members. Only showing public users' comments. Sign up to see all comments!
ltbeauti

Sex: F

Data Quality: 3 stars

Bulbar: moderate

Arms: mild

Chest: none

Legs: moderate

I am: n

I have:
ALS
ALS (Amyotrophic Lateral Sclerosis)
- First symptom: Nov 1, 2004
- Diagnosis: Apr 1, 2008
ltbeauti updated the condition ALS (Amyotrophic Lateral Sclerosis) Apr 15, 2013
ltbeauti

Sex: F

Data Quality: 3 stars

Bulbar: moderate

Arms: mild

Chest: none

Legs: moderate

I am: n

I have:
ALS

2 stars
ltbeauti lost a star Apr 15, 2013
ltbeauti

Sex: F

Data Quality: 3 stars

Bulbar: moderate

Arms: mild

Chest: none

Legs: moderate

I am: n

I have:
ALS

Neutral
ltbeauti added an InstantMe for Mar 13, 2013 Mar 13, 2013 4:17PM

progression remains slow. neck muscles and left arm(inner elbow) have been sore
1 comment from other members. Only showing public users' comments. Sign up to see all comments!
ltbeauti

Sex: F

Data Quality: 3 stars

Bulbar: moderate

Arms: mild

Chest: none

Legs: moderate

I am: n

I have:
ALS
Symptom Update
- mild Anxiety attacks
- mild Anxious mood
- severe Atrophy of tongue muscles
- severe Balance problems
- moderate Bladder problems
- moderate Bulbar symptoms
- mild Choking on food
- moderate Choking on liquids
- mild Claw-like cramps in hands
- mild Crying
- none Depressed mood
- severe Difficulty speaking (dysarthria)
- mild Emotional lability
- mild Excessive yawning
- mild Excess mucus
- mild Excess saliva
- none Fasciculations
- moderate Fatigue
- moderate Gag response abnormal
- mild Hyperreflexia
- mild Laryngospasm
- mild Loss of manual dexterity
- moderate Mobility decreased
- moderate Neck pain
- mild Pain
- severe Slurred speech
- severe Speech problems
- moderate Startle easily (hyperexplexia)
- severe Stiffness in legs in cool temperatures
- moderate Stiffness in legs when anxious
- moderate Stiffness/Spasticity
- mild Swallowing difficulty (dysphagia)
- moderate Urinary urgency
- mild Vitamin D deficiency
- severe Walking problems
- See more
ltbeauti updated her symptoms for Mar 13, 2013 Mar 13, 2013
ltbeauti

Sex: F

Data Quality: 3 stars

Bulbar: moderate

Arms: mild

Chest: none

Legs: moderate

I am: n

I have:
ALS
Apple iPad Augmentative Speech Device
- - Started: Mar 15, 2012
  - Current Dosage: 1 other daily
- Purpose: Slurred speech
ltbeauti updated the treatment Apple iPad Augmentative Speech Device Mar 01, 2013
ltbeauti

Sex: F

Data Quality: 3 stars

Bulbar: moderate

Arms: mild

Chest: none

Legs: moderate

I am: n

I have:
ALS

3 stars
ltbeauti earned a star! Feb 28, 2013
ltbeauti

Sex: F

Data Quality: 3 stars

Bulbar: moderate

Arms: mild

Chest: none

Legs: moderate

I am: n

I have:
ALS
FRS: 29
- moderate Head
- mild Arms
- none Torso
- moderate Legs
ltbeauti completed the FRS survey for Feb 28, 2013 Feb 28, 2013
ltbeauti

Sex: F

Data Quality: 3 stars

Bulbar: moderate

Arms: mild

Chest: none

Legs: moderate

I am: n

I have:
ALS

112 lb BMI: 19.2
ltbeauti updated her weight for Feb 28, 2013 Feb 28, 2013
ltbeauti

Sex: F

Data Quality: 3 stars

Bulbar: moderate

Arms: mild

Chest: none

Legs: moderate

I am: n

I have:
ALS

2 stars
ltbeauti lost a star Feb 21, 2013
ltbeauti

Sex: F

Data Quality: 3 stars

Bulbar: moderate

Arms: mild

Chest: none

Legs: moderate

I am: n

I have:
ALS

3 stars
ltbeauti earned a star! Feb 11, 2013
ltbeauti

Sex: F

Data Quality: 3 stars

Bulbar: moderate

Arms: mild

Chest: none

Legs: moderate

I am: n

I have:
ALS
Nuedexta
- - Started: Apr 20, 2010
  - Current Dosage: 20 mg daily
- Purpose: Emotional lability
- View Latest Evaluation
ltbeauti updated the treatment Nuedexta Jan 31, 2013
- Added
  - Started: Apr 20, 2010
  - Dosage: 20 mg daily
  - Purpose: Emotional lability
  - Apr 20, 2010
- Evaluated
  - View Evaluation
  - Jan 31, 2013
ltbeauti

Sex: F

Data Quality: 3 stars

Bulbar: moderate

Arms: mild

Chest: none

Legs: moderate

I am: n

I have:
ALS
Nuedexta Treatment Evaluation
- Perceived effectiveness for Emotional lability: Major
- Side Effects: None
- Adherence: Always
- Burden: Not at all
Advice & Tips

Helps with swallowing Side effects when I went off one time. I suggest weaning off if stopping

ltbeauti added a treatment evaluation for Nuedexta Jan 31, 2013
ltbeauti

Sex: F

Data Quality: 3 stars

Bulbar: moderate

Arms: mild

Chest: none

Legs: moderate

I am: n

I have:
ALS
QOL
- Good Social
- Good Mental
- Bad Physical
ltbeauti completed the QOL survey for Jan 17, 2013 Jan 17, 2013
1 comment from other members. Only showing public users' comments. Sign up to see all comments!
ltbeauti

Sex: F

Data Quality: 3 stars

Bulbar: moderate

Arms: mild

Chest: none

Legs: moderate

I am: n

I have:
ALS

2 stars
ltbeauti lost a star Jan 09, 2013
ltbeauti

Sex: F

Data Quality: 3 stars

Bulbar: moderate

Arms: mild

Chest: none

Legs: moderate

I am: n

I have:
ALS
Baclofen
- - Started: Nov 11, 2010
  - Current Dosage: 10 mg daily
- Purpose: Stiffness/Spasticity, ALS, and Improve mobility
ltbeauti updated the treatment Baclofen Jan 01, 2013
- Added
  - Started: Nov 11, 2010
  - Dosage: 30 mg daily
  - Purpose: Stiffness/Spasticity, ALS (Amyotrophic Lateral Sclerosis), and Improve mobility
  - Nov 11, 2010
- Changed Dosage
  - Dosage: 20 mg daily
  - Oct 12, 2012
- Changed Dosage
  - Dosage: 10 mg daily
  - Nov 02, 2012
ltbeauti

Sex: F

Data Quality: 3 stars

Bulbar: moderate

Arms: mild

Chest: none

Legs: moderate

I am: n

I have:
ALS

3 stars
ltbeauti earned a star! Dec 21, 2012
1 comment from other members. Only showing public users' comments. Sign up to see all comments!
ltbeauti

Sex: F

Data Quality: 3 stars

Bulbar: moderate

Arms: mild

Chest: none

Legs: moderate

I am: n

I have:
ALS
Symptom Update
- mild Anxiety attacks
- mild Anxious mood
- severe Atrophy of tongue muscles
- severe Balance problems
- moderate Bladder problems
- moderate Bulbar symptoms
- mild Choking on food
- mild Choking on liquids
- mild Claw-like cramps in hands
- mild Crying
- mild Depressed mood
- severe Difficulty speaking (dysarthria)
- mild Emotional lability
- mild Excessive yawning
- moderate Excess mucus
- mild Excess saliva
- mild Fasciculations
- moderate Fatigue
- mild Hyperreflexia
- mild Laryngospasm
- mild Loss of manual dexterity
- severe Mobility decreased
- moderate Neck pain
- moderate Pain
- severe Slurred speech
- severe Speech problems
- moderate Startle easily (hyperexplexia)
- severe Stiffness in legs in cool temperatures
- moderate Stiffness in legs when anxious
- mild Stiffness/Spasticity
- moderate Swallowing difficulty (dysphagia)
- moderate Urinary urgency
- mild Vitamin D deficiency
- severe Walking problems
- See more
ltbeauti updated her symptoms for Dec 21, 2012 Dec 21, 2012
ltbeauti

Sex: F

Data Quality: 3 stars

Bulbar: moderate

Arms: mild

Chest: none

Legs: moderate

I am: n

I have:
ALS

2 stars
ltbeauti lost a star Dec 14, 2012
1 comment from other members. Only showing public users' comments. Sign up to see all comments!
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