I am a proud mother of two, an 8 year old and a 6 year. I have a wonderful husband, who is completely supportive. I’m a muralist and mostly paint children murals. I have been experienceing symptoms for 2 years without a firm diagnosis. I have been told by my PCP it is really only a matter of time…
In the winter of 2006 I had flurry vision, I went to my PCP and the eye doctor and was told it was ocular migraines. They completely disappeared in about a month. That summer it started again, this time I was also dizzy and had vertigo. I went back to the eye doctor and failed the field of vision test. My PCP ran some blood test and everything has fine. The eye doctor sent me for a MRI, it was fine.
I was in the process of moving from New Jersey to North Carolina. I started to also noticed some painless muscle twitches and pins and needle feeling. Along with the extreme fatigue. The doctor up north recommended seeing a neurologist as soon as I was situated in NC.
I went in October, I was feeling well. She ran some test within a course of 3 months: VEP, Spinal MRI,and SNAP. All were normal. Again I was feeling like my old self. Then comes May 2007.....
What a mess. .. Vertigo, blurry vision, fatigue, trouble completing my thoughts, muscle twitching and chest pain. I had an EKG, it was abnormal. I have MVP and an irregular heartbeat. But am considered healthy, because I kicked butt on the stress test. Back at the neuron's office she didn't have much to add other then she needed a big change before she will run or repeat any test. She did give me steroids for the next time it happened, along with Meclizine and Lexapro (apparently she felt it was all do to stress). Since this episode, I can't see across a room after reading or paint for long periods without trouble seeing what I'm trying to paint.
That brings me to last month, again it started with blurry vision and fatigue. I started the steroids and felt pretty good., within a day of finishing them I fell apart. Muscle pain in right leg with trouble walking along with numbness. Muscle twitches and spasms that hurt. I went to the ER due to the pain, they gave me Valium for the pain asked if I had MS (not the first time I have been asked). I was having trouble completing my sentences and was so tired. I was told to follow up with my neuro. I saw her last week, after much talk she decided to run another MRI. I will be doing it this week and just wait.
I am tired of not having an answer. There is times I feel so bad and not knowing why is a terrible thing.
I could really use anyone advise or words of encouragement.
Dec 27, 2007
Aug 26, 2009