1542-full
Cyprian1
Sex: F
Data Quality: 1 star
MS: 12 yrs
Type: Relapsing-Remitting
Relapse: Moderate
Sensation: Severe
Overall: Moderate
Cognition: moderate
Vision: moderate
Speech: moderate
Swallowing: moderate
Upper limb: moderate
Walking: moderate
Cyprian1
Female, 56 years
Naples, FL
Primary Condition
MS and 3 more
Type
Relapsing-Remitting
First symptom
Diagnosis
See more
  1. 1542-thumb
    Cyprian1
    Sex: F
    Data Quality: 1 star
    Relapse: Moderate
    Sensation: Severe
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
    I am: n
    I have:
    MS
    star earnedstar  notearnedstar  notearned 1 star
    lost a star Feb 21, 2013
  2. 1542-thumb
    Cyprian1
    Sex: F
    Data Quality: 1 star
    Relapse: Moderate
    Sensation: Severe
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
    I am: n
    I have:
    MS
    star earnedstar earnedstar  notearned 2 stars
    earned a star! Feb 11, 2013
  3. 1542-thumb
    Cyprian1
    Sex: F
    Data Quality: 1 star
    Relapse: Moderate
    Sensation: Severe
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
    I am: n
    I have:
    MS

    PFRS: 47

    • Most Fatigue
    • All Sleep
    • All Stiffness
    • All Pain
    • Overwhelming External Stress
    completed the PFRS survey for Jan 28, 2013 Jan 28, 2013

    I have been caretaker and not by choice to my ex-husband as well as poer of attorney ... He had a stroke 09/23/2011 while I was here visiting and was able to bring him back to life... He was never very nice or had a kind word to say just complained about what was "wrong" with everyone to include me .. He refused home treatment after about 4 weeks .. I took him to my neurologist and he does have narrowing of arteries which prohibits him from remembering , he has a form of dyslexia and his angry side has only gotten worse over time ..

    I also found out i am peri-menopausal .. I am tired and about ready to seek therapy for myself as well as relieve myself of POA .. I am scared for him but this weird loyalty I have has to end .. I will seek counsel and get the Neuro to write a full detailed letter that he is heading down the path of dementia and that he already has "sundowners" , all of which was explained to him..

    So it has been hard , big deal, but I have to get my life back in order and start to feel better .. My pain is all the time .. My feeling tired is worse even though I do take at least an hour or two to rest and sometime sleep in the day just to catch up on the restless painful numbing and burning nights ..

    One last thing , I have issue of course to my right side BUT my left side is just as bad .. Thanks

  4. 1542-thumb
    Cyprian1
    Sex: F
    Data Quality: 1 star
    Relapse: Moderate
    Sensation: Severe
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
    I am: n
    I have:
    MS

    MSRS: 71

    • Moderate Cognition
    • Moderate Vision
    • Mild Speech
    • Mild Swallowing
    • Moderate Upper Limb
    • Moderate Walking
    • Total Disability Sensation
    completed the MSRS survey for Jan 28, 2013 Jan 28, 2013

    sheer will ..

  5. 1542-thumb
    Cyprian1
    Sex: F
    Data Quality: 1 star
    Relapse: Moderate
    Sensation: Severe
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
    I am: n
    I have:
    MS

    MSRS: 75

    • Moderate Cognition
    • Moderate Vision
    • Moderate Speech
    • Mild Swallowing
    • Moderate Upper Limb
    • Moderate Walking
    • Total Disability Sensation
    completed the MSRS survey for Jun 13, 2012 Jan 28, 2013
  6. 1542-thumb
    Cyprian1
    Sex: F
    Data Quality: 1 star
    Relapse: Moderate
    Sensation: Severe
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
    I am: n
    I have:
    MS

    Relapse

    added a moderate relapse on Jun 9, 2012 until Jun 17, 2012 Jan 28, 2013
  7. 1542-thumb
    Cyprian1
    Sex: F
    Data Quality: 1 star
    Relapse: Moderate
    Sensation: Severe
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
    I am: n
    I have:
    MS

    Symptom Update

    • severe Acid reflux
    • severe Anxious mood
    • severe Arthritis pain
    • severe Awakening due to pain
    • moderate Back pain
    • moderate Balance problems
    • See more
    updated her symptoms for Jan 28, 2013 Jan 28, 2013
  8. 1542-thumb
    Cyprian1
    Sex: F
    Data Quality: 1 star
    Relapse: Moderate
    Sensation: Severe
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
    I am: n
    I have:
    MS

    Interferon beta-1a SubQ injection

      • Stopped: Jun 15, 2011
      • Reason: Other
      • Started: Feb 15, 2011
      • Last Dosage: 22 mcg/0.5 mL daily
    • Purpose: MS
    updated the treatment Interferon beta-1a SubQ injection Jan 28, 2013
    • Added
      • Started: Feb 15, 2011
      • Dosage: 22 mcg/0.5 mL daily
      • Purpose: MS (Multiple Sclerosis)
      • Feb 15, 2011
    • Stopped
      • Date: Jun 15, 2011
      • Reason: Other
      • Jun 15, 2011
  9. 1542-thumb
    Cyprian1
    Sex: F
    Data Quality: 1 star
    Relapse: Moderate
    Sensation: Severe
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
    I am: n
    I have:
    MS

    MS (Multiple Sclerosis)

    • First symptom:
    • Diagnosis:
    updated the condition MS (Multiple Sclerosis) Jan 28, 2013

  10. 1542-thumb
    Cyprian1
    Sex: F
    Data Quality: 1 star
    Relapse: Moderate
    Sensation: Severe
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
    I am: n
    I have:
    MS

    Interferon beta-1a IM Injection

      • Started: ?
      • Dosage: ?
    • Purpose: MS
    updated the treatment Interferon beta-1a IM Injection Jan 28, 2013
  11. 1542-thumb
    Cyprian1
    Sex: F
    Data Quality: 1 star
    Relapse: Moderate
    Sensation: Severe
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
    I am: n
    I have:
    MS

    Hashimoto's Thyroiditis

    • First symptom:
    • Diagnosis:
    updated the condition Hashimoto's Thyroiditis Aug 24, 2012

    I had been dx'd with about 8 nodules total back in 2005 .. at that time the Endo felt no meds or treatment needed .. my last MRI showed that one had grown so my neuro wrote a script for a sonogram .. his office then called with results saying to get myself to an Endo a.s.a.p. ... I had been experiencing more than normal hair loss, fatigue , muscle pain/ache , headaches were back , dryness of skin , the ability to lose weightgain and more .. so I was happy that I now has a dx that explained what had been happening as opposed to being sad and thinking it is just MS badluck ..

  12. 1542-thumb
    Cyprian1
    Sex: F
    Data Quality: 1 star
    Relapse: Moderate
    Sensation: Severe
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
    I am: n
    I have:
    MS

    Hypothyroidism

    • First symptom:
    • Diagnosis:
    updated the condition Hypothyroidism Aug 24, 2012

    Want to add that i had to have a biopsy in March of 2012 .. it came back benign BUT i had symtoms and still do and my current endo will not treat ...

  13. 1542-thumb
    Cyprian1
    Sex: F
    Data Quality: 1 star
    Relapse: Moderate
    Sensation: Severe
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
    I am: n
    I have:
    MS

    Relapse

    added a moderate relapse on Jul 24, 2012 Aug 24, 2012

    am seeing the neauro .. had been using copaxone since oct. 2011 but it made me "ill" after 8 months use ..

  14. 1542-thumb
    Cyprian1
    Sex: F
    Data Quality: 1 star
    Relapse: Moderate
    Sensation: Severe
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
    I am: n
    I have:
    MS

    Relapse

    added a severe relapse on Jun 10, 2010 until Sep 14, 2010 Aug 24, 2012

    was told that the previous MRI from 2006 and current MRI plus spectograhy showed MS flares AND that my gray matter was being affected .. I devoloped slight foot drop in my right foot .. my ach/pain increased ... a lot more but too much to add

  15. 1542-thumb
    Cyprian1
    Sex: F
    Data Quality: 1 star
    Relapse: Moderate
    Sensation: Severe
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
    I am: n
    I have:
    MS

    Relapse

    added a moderate relapse on Jul 4, 2006 until Sep 12, 2006 Aug 24, 2012

    notihing done but rest

  16. 1542-thumb
    Cyprian1
    Sex: F
    Data Quality: 1 star
    Relapse: Moderate
    Sensation: Severe
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
    I am: n
    I have:
    MS

    168 lb BMI: 27.1

    updated her weight for Aug 24, 2012 Aug 24, 2012

    Hashimotos

  17. 1542-thumb
    Cyprian1
    Sex: F
    Data Quality: 1 star
    Relapse: Moderate
    Sensation: Severe
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
    I am: n
    I have:
    MS

    MSRS: 75

    • Moderate Cognition
    • Moderate Vision
    • Moderate Speech
    • Moderate Swallowing
    • Moderate Upper Limb
    • Moderate Walking
    • Moderate Sensation
    completed the MSRS survey for Aug 24, 2012 Aug 24, 2012
  18. 1542-thumb
    Cyprian1
    Sex: F
    Data Quality: 1 star
    Relapse: Moderate
    Sensation: Severe
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
    I am: n
    I have:
    MS

    Fibromyalgia

    • First symptom:
    • Diagnosis:
    updated the condition Fibromyalgia Aug 24, 2012

  19. 1542-thumb
    Cyprian1
    Sex: F
    Data Quality: 1 star
    Relapse: Moderate
    Sensation: Severe
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
    I am: n
    I have:
    MS

    Tagged Topic

    added the tag Drugs to what i fear about my MS ... Aug 24, 2012
  20. 1542-thumb
    Cyprian1
    Sex: F
    Data Quality: 1 star
    Relapse: Moderate
    Sensation: Severe
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
    I am: n
    I have:
    MS

    Tagged Topic

    added the tag Medications to what i fear about my MS ... Aug 24, 2012
  21. Show more