healed's Journal

healed: Sex: F; Data Quality: 3 stars; ALS: 12 yrs; Bi-Pap Wheelchair Feeding tube; Bulbar: mild; Arms: moderate; Chest: moderate; Legs: moderate

healed: Female, 65 years; Glendale, AZ

Primary Condition: ALS and 1 more ▼

First symptom: Jun 2000
Diagnosis: Jan 2006

healed

Sex: F

Data Quality: 3 stars

Bulbar: mild

Arms: moderate

Chest: moderate

Legs: moderate

I am: vg

I have:
ALS

177 lb BMI: 28.6
healed updated her weight for Apr 6, 2013 Apr 06, 2013
healed

Sex: F

Data Quality: 3 stars

Bulbar: mild

Arms: moderate

Chest: moderate

Legs: moderate

I am: vg

I have:
ALS

FVC: 49%

healed completed the FVC survey for Apr 6, 2013 Apr 06, 2013
healed

Sex: F

Data Quality: 3 stars

Bulbar: mild

Arms: moderate

Chest: moderate

Legs: moderate

I am: vg

I have:
ALS
FRS: 16
- mild Head
- moderate Arms
- moderate Torso
- moderate Legs
healed completed the FRS survey for Apr 6, 2013 Apr 06, 2013
healed

Sex: F

Data Quality: 3 stars

Bulbar: mild

Arms: moderate

Chest: moderate

Legs: moderate

I am: vg

I have:
ALS
QOL
- Good Social
- Good Mental
- Worst Physical
healed completed the QOL survey for Apr 6, 2013 Apr 06, 2013
healed

Sex: F

Data Quality: 3 stars

Bulbar: mild

Arms: moderate

Chest: moderate

Legs: moderate

I am: vg

I have:
ALS
Symptom Update
- mild Abdominal bloating
- none add any tongue symptoms
- mild Anemia
- none Anxious mood
- moderate Atrophy of calf muscles
- moderate Atrophy of feet muscles
- moderate Atrophy of hand muscles
- moderate Atrophy of muscles
- severe Balance problems
- moderate Biting inner lip
- moderate Bit tongue
- mild Bone weakness
- none Bowel urgency
- mild Breathing difficulty
- moderate Bulbar symptoms
- moderate Choking
- moderate Choking on food
- moderate Choking on liquids
- moderate Chronic throat clearing
- mild Cold feet
- mild Constipation
- mild Cough
- moderate Coughing while drinking
- moderate Coughing while eating
- mild Cramps
- mild Cramps in back
- mild Cramps in biceps
- mild Cramps in calf muscles
- moderate Cramps in feet
- mild Cramps in legs
- moderate Cramps in neck
- moderate Decreased diaphragm strength
- none Depressed mood
- moderate Difficulty projecting voice
- mild Difficulty sleeping through night
- moderate Difficulty speaking (dysarthria)
- severe Difficulty turning over or moving in bed
- none Emotional lability
- moderate Endurance reduced (whole body)
- mild Excessive yawning
- mild Excess saliva
- none Falls
- moderate Fasciculations
- moderate Fatigue
- moderate Foot drop
- moderate Foot drop (right)
- moderate Generalized muscle aches
- moderate Generalized weakness (asthenia)
- mild Hard sneezing
- mild Hiccups (hiccoughs)
- mild Hot flashes
- mild Inability to manipulate tongue
- severe Inability to walk
- none Increased energy
- mild Insomnia
- severe Loss of balance
- severe Loss of coordination
- severe Loss of manual dexterity
- moderate Nail ridges
- moderate Neck bones click with movement
- mild Pain
- mild Pain in fingers
- moderate Pain in shoulders
- mild Restless feeling in legs
- mild Shallow breathing
- mild Shortness of breath (dyspnea)
- moderate Slurred speech
- moderate Spasms
- moderate Speech problems
- mild Startle easily (hyperexplexia)
- moderate Stiffness of legs in cool temperatures
- moderate Stiffness/Spasticity
- mild Swallowing difficulty (dysphagia)
- moderate Tightness in neck
- moderate Tightness in shoulders
- none Tongue twitching (fasciculations)
- moderate Voice changes
- severe Walking difficult without aid
- severe Walking problems
- moderate Weakness in hands
- moderate Weakness in legs
- moderate Weakness in right hand
- mild Weakness in right index finger
- mild Weakness in right thumb
- moderate Mobility decreased
- See more
healed updated her symptoms for Apr 6, 2013 Apr 06, 2013
healed

Sex: F

Data Quality: 3 stars

Bulbar: mild

Arms: moderate

Chest: moderate

Legs: moderate

I am: vg

I have:
ALS
Fluoxetine
- - Started: Nov 11, 2006
  - Current Dosage: 10 mg daily
- Purpose: ALS
healed updated the treatment Fluoxetine Apr 06, 2013
healed

Sex: F

Data Quality: 3 stars

Bulbar: mild

Arms: moderate

Chest: moderate

Legs: moderate

I am: vg

I have:
ALS

Very good
healed added an InstantMe for Apr 6, 2013 Apr 06, 2013 7:01PM
healed

Sex: F

Data Quality: 3 stars

Bulbar: mild

Arms: moderate

Chest: moderate

Legs: moderate

I am: vg

I have:
ALS
Symptom Update
- moderate Mobility decreased
- moderate Weakness in hands
- none Tongue twitching (fasciculations)
- moderate Weakness in right index finger
- moderate Choking
- severe Balance problems
- moderate Atrophy of hand muscles
- mild Anemia
- mild Abdominal bloating
- moderate Weakness in right hand
- mild Startle easily (hyperexplexia)
- moderate Shallow breathing
- moderate Nail ridges
- mild Insomnia
- moderate Foot drop (right)
- moderate Endurance reduced (whole body)
- moderate Difficulty speaking (dysarthria)
- mild Cramps in legs
- mild Constipation
- mild Cold feet
- moderate Breathing difficulty
- moderate Bit tongue
- moderate Atrophy of muscles
- moderate Weakness in legs
- moderate Swallowing difficulty (dysphagia)
- moderate Slurred speech
- mild Pain in fingers
- moderate Neck bones click with movement
- severe Loss of balance
- none Increased energy
- mild Cramps in calf muscles
- mild Cramps in back
- moderate Cramps
- mild Coughing while eating
- moderate Choking on food
- severe Walking problems
- moderate Loss of manual dexterity
- moderate Loss of coordination
- moderate Generalized muscle aches
- severe Walking difficult without aid
- moderate Spasms
- moderate Shortness of breath (dyspnea)
- mild Excess saliva
- moderate Difficulty projecting voice
- none Depressed mood
- moderate Voice changes
- moderate Tightness in neck
- moderate Stiffness/Spasticity
- mild Restless feeling in legs
- moderate Pain
- none Bowel urgency
- moderate Bone weakness
- mild Weakness in right thumb
- moderate Tightness in shoulders
- moderate Speech problems
- moderate Stiffness of legs in cool temperatures
- moderate Pain in shoulders
- severe Inability to walk
- mild Inability to manipulate tongue
- moderate Hard sneezing
- none Falls
- mild Excessive yawning
- moderate Decreased diaphragm strength
- mild Coughing while drinking
- moderate Cough
- moderate Choking on liquids
- mild Hot flashes
- mild Hiccups (hiccoughs)
- moderate Generalized weakness (asthenia)
- moderate Foot drop
- moderate Fatigue
- moderate Fasciculations
- severe Difficulty turning over or moving in bed
- moderate Difficulty sleeping through night
- moderate Cramps in neck
- moderate Cramps in feet
- mild Cramps in biceps
- moderate Chronic throat clearing
- moderate Bulbar symptoms
- moderate Atrophy of feet muscles
- moderate Atrophy of calf muscles
- none Emotional lability
- moderate Biting inner lip
- none add any tongue symptoms
- none Anxious mood
- See more
healed updated her symptoms for Apr 5, 2013 Apr 06, 2013
healed

Sex: F

Data Quality: 3 stars

Bulbar: mild

Arms: moderate

Chest: moderate

Legs: moderate

I am: vg

I have:
ALS
ALS (Amyotrophic Lateral Sclerosis)
- First symptom: Jun 1, 2000
- Diagnosis: Jan 1, 2006
healed updated the condition ALS (Amyotrophic Lateral Sclerosis) Apr 06, 2013
healed

Sex: F

Data Quality: 3 stars

Bulbar: mild

Arms: moderate

Chest: moderate

Legs: moderate

I am: vg

I have:
ALS

3 stars
healed earned a star! Apr 06, 2013
healed

Sex: F

Data Quality: 3 stars

Bulbar: mild

Arms: moderate

Chest: moderate

Legs: moderate

I am: vg

I have:
ALS

2 stars
healed lost a star Mar 04, 2013
healed

Sex: F

Data Quality: 3 stars

Bulbar: mild

Arms: moderate

Chest: moderate

Legs: moderate

I am: vg

I have:
ALS
FRS: 17
- moderate Head
- moderate Arms
- moderate Torso
- moderate Legs
healed completed the FRS survey for Dec 4, 2012 Dec 04, 2012

I do aquatics and that me moving and breathing better!
1 comment from other members. Only showing public users' comments. Sign up to see all comments!
- muskie man
  
  swimming always helps me.....
  hope all is well for you....go Irish
  
  about 5 months ago
healed

Sex: F

Data Quality: 3 stars

Bulbar: mild

Arms: moderate

Chest: moderate

Legs: moderate

I am: vg

I have:
ALS

176 lb BMI: 28.4
healed updated her weight for Dec 4, 2012 Dec 04, 2012
healed

Sex: F

Data Quality: 3 stars

Bulbar: mild

Arms: moderate

Chest: moderate

Legs: moderate

I am: vg

I have:
ALS
C2 Overhead Lift System
- - Stopped: Feb 10, 2009
  - Reason: Other
  - Started: Jan 6, 2009
  - Last Dosage: as needed
- Purpose: Improve mobility and Mobility decreased
healed updated the treatment C2 Overhead Lift System Dec 05, 2012
- Added
  - Started: Jan 06, 2009
  - Dosage: as needed
  - Purpose: Improve mobility, Mobility decreased, and Lifting/transferring from bed to chair
  - Jan 06, 2009
- Stopped
  - Date: Feb 10, 2009
  - Reason: Other
  - Feb 10, 2009
healed

Sex: F

Data Quality: 3 stars

Bulbar: mild

Arms: moderate

Chest: moderate

Legs: moderate

I am: vg

I have:
ALS
HUGS
- - Started: Jun 6, 1947
  - Current Dosage: as needed
- Purpose: General health
healed updated the treatment HUGS Dec 05, 2012
healed

Sex: F

Data Quality: 3 stars

Bulbar: mild

Arms: moderate

Chest: moderate

Legs: moderate

I am: vg

I have:
ALS
Attitude
- - Started: Jun 6, 1947
  - Current Dosage: daily
- Purpose: General health
healed updated the treatment Attitude Dec 05, 2012
healed

Sex: F

Data Quality: 3 stars

Bulbar: mild

Arms: moderate

Chest: moderate

Legs: moderate

I am: vg

I have:
ALS
QOL
- Good Social
- Best Mental
- Worst Physical
healed completed the QOL survey for Dec 4, 2012 Dec 04, 2012
healed

Sex: F

Data Quality: 3 stars

Bulbar: mild

Arms: moderate

Chest: moderate

Legs: moderate

I am: vg

I have:
ALS
Symptom Update
- mild Abdominal bloating
- mild add any tongue symptoms
- mild Anemia
- none Anxious mood
- mild Atrophy of calf muscles
- moderate Atrophy of feet muscles
- mild Atrophy of hand muscles
- mild Atrophy of muscles
- severe Balance problems
- moderate Biting inner lip
- moderate Bit tongue
- moderate Bone weakness
- none Bowel urgency
- moderate Breathing difficulty
- mild Bulbar symptoms
- moderate Choking
- moderate Choking on food
- moderate Choking on liquids
- moderate Chronic throat clearing
- mild Cold feet
- none Constipation
- moderate Cough
- mild Coughing while drinking
- mild Coughing while eating
- moderate Cramps
- none Cramps in back
- none Cramps in biceps
- mild Cramps in calf muscles
- moderate Cramps in feet
- mild Cramps in legs
- mild Cramps in neck
- moderate Decreased diaphragm strength
- none Depressed mood
- moderate Difficulty projecting voice
- mild Difficulty sleeping through night
- moderate Difficulty speaking (dysarthria)
- severe Difficulty turning over or moving in bed
- none Emotional lability
- moderate Endurance reduced (whole body)
- mild Excessive yawning
- mild Excess saliva
- none Falls
- moderate Fasciculations
- moderate Fatigue
- moderate Foot drop
- moderate Foot drop (right)
- moderate Generalized muscle aches
- moderate Generalized weakness (asthenia)
- moderate Hard sneezing
- mild Hiccups (hiccoughs)
- mild Hot flashes
- mild Inability to manipulate tongue
- severe Inability to walk
- none Increased energy
- mild Insomnia
- severe Loss of balance
- mild Loss of coordination
- mild Loss of manual dexterity
- moderate Mobility decreased
- moderate Nail ridges
- moderate Neck bones click with movement
- moderate Pain
- moderate Pain in shoulders
- mild Restless feeling in legs
- moderate Shallow breathing
- moderate Shortness of breath (dyspnea)
- moderate Slurred speech
- moderate Spasms
- moderate Speech problems
- none Staggering walk
- mild Startle easily (hyperexplexia)
- moderate Stiffness of legs in cool temperatures
- moderate Stiffness/Spasticity
- moderate Swallowing difficulty (dysphagia)
- moderate Tightness in neck
- moderate Tightness in shoulders
- severe Tongue twitching (fasciculations)
- mild Voice changes
- severe Walking difficult without aid
- severe Walking problems
- moderate Weakness in hands
- moderate Weakness in legs
- moderate Weakness in right index finger
- moderate Weakness in right thumb
- See more
healed updated her symptoms for Dec 4, 2012 Dec 04, 2012
Show more

About healed

Other Conditions

177 lb BMI: 28.6

FVC: 49%

FRS: 16

QOL

Symptom Update

Fluoxetine

Very good

Symptom Update

ALS (Amyotrophic Lateral Sclerosis)

FRS: 17

176 lb BMI: 28.4

C2 Overhead Lift System

HUGS

Attitude

QOL

Symptom Update