healed's Journal

healed: Sex: F; Data Quality: 2 stars; ALS: 11 yrs; Bi-Pap Wheelchair Feeding tube; Bulbar: mild; Arms: moderate; Chest: moderate; Legs: moderate

healed: Female, 64 years; Glendale, AZ

Primary Condition: ALS and 1 more ▼
First symptom: Jun 2000
Diagnosis: Jan 2006

2 stars
healed lost a star • May 09, 2012
Nice work! One more star and you get a PLM t-shirt!
Updated outcome

QOL
- Good Social
- Good Mental
- Worst Physical
healed completed the QOL survey for Feb 9, 2012 • Feb 10, 2012
What sort of things are negatively affecting your Quality of Life?
FRS

18
- mild Head
- moderate Arms
- moderate Torso
- moderate Legs
healed completed the FRS survey for Feb 9, 2012 • Feb 09, 2012
Congratulations, your FRS is higher. What sort of things are helping your ALS symptoms?
New evaluation

Femara Treatment Evaluation
- Efficacy for cancer treatment: ?Can't tell
- Side Effects: None
- Adherence: Always
- Burden: Not at all
healed added a treatment evaluation for Femara from Aug 9, 2011 • Feb 09, 2012
Stopped treatment

Femara
- Stopped: Aug 9, 2011
- Reason: Doctor's advice
healed stopped taking the treatment Femara • Feb 09, 2012
What else would you like to share about stopping this treatment?
Weight

180 lb

BMI

29.0
healed updated heryour weight for Feb 9, 2012 • Feb 09, 2012
Is there anything in particular that influenced this weight increase?
Added

Symptom Update
- moderate Choking
- mild Shallow breathing
- severe Loss of balance
- mild Excess saliva
- moderate Endurance reduced (whole body)
- mild Cramps in back
- none Anxious mood
- none Tongue twitching (fasciculations)
- moderate Pain in fingers
- none Emotional lability
- mild Voice changes
- mild Bulbar symptoms
- moderate Fatigue
- mild Pain
- severe Walking difficult without aid
- moderate Stiffness/Spasticity
- moderate Bone weakness
- none Bowel urgency
- none Increased energy
- mild add any tongue symptoms
- severe Balance problems
- moderate Fasciculations
- moderate Neck bones click with movement
- none Depressed mood
- moderate Mobility decreased
- moderate Chronic throat clearing
- moderate Cramps in feet
- severe Staggering walk
- mild Pain in shoulders
- moderate Biting inner lip
- moderate Loss of manual dexterity
- moderate Constipation
- severe Difficulty turning over or moving in bed
- mild Shortness of breath (dyspnea)
- severe Walking problems
- moderate Nail ridges
- mild Insomnia
- mild Excessive yawning
- moderate Cramps in neck
- moderate Weakness in right index finger
- moderate Foot drop (right)
- moderate Stiffness of legs in cool temperatures
- moderate Hot flashes
- moderate Weakness in legs
- moderate Loss of coordination
- mild Speech problems
- moderate Weakness in right thumb
- moderate Spasms
- severe Inability to walk
- mild Tightness in shoulders
- moderate Weakness in right hand
- mild Hiccups (hiccoughs)
- moderate Atrophy of calf muscles
- moderate Tightness in neck
- none Falls
- mild Inability to manipulate tongue
- none Anemia
- moderate Atrophy of hand muscles
- mild Difficulty speaking (dysarthria)
- moderate Choking on food
- moderate Weakness in hands
- mild Startle easily
- mild Generalized muscle aches
- moderate Coughing while drinking
- mild Swallowing difficulty (dysphagia)
- moderate Cramps in legs
- moderate Atrophy of feet muscles
- mild Slurred speech
- moderate Coughing while eating
- mild Restless feeling in legs
- moderate Difficulty projecting voice
- moderate Generalized weakness (asthenia)
- moderate Bit tongue
- mild Decreased diaphragm strength
- mild Cramps in biceps
- moderate Breathing difficulty
- mild Cold feet
- mild Hard sneezing
- mild Difficulty sleeping through night
- moderate Cramps in calf muscles
- moderate Atrophy of muscles
- moderate Foot drop
- moderate Cough
- moderate Cramps
- moderate Choking on liquids
- mild Abdominal bloating
- See more
healed updated heryour symptoms for Feb 9, 2012 • Feb 09, 2012
What else would you like to share about these symptoms?
3 stars
healed earned a star! • Feb 09, 2012
Congrats! Did you know 3 star members can get a free PLM t-shirt?
2 stars
healed lost a star • Feb 02, 2012
Nice work! One more star and you get a PLM t-shirt!
Updated outcome

QOL
- Good Social
- Best Mental
- Worst Physical
healed completed the QOL survey for Nov 7, 2011 • Nov 08, 2011
What sort of things are negatively affecting your Quality of Life?
FVC

50%

healed completed the FVC survey for Nov 7, 2011 • Nov 08, 2011
What else would you like to share about the impact of ALS on your life?
FRS

14
- moderate Head
- moderate Arms
- moderate Torso
- moderate Legs
healed completed the FRS survey for Nov 4, 2011 • Nov 04, 2011
What sort of things are making your ALS symptoms worse?
New evaluation

Femara Treatment Evaluation
- Efficacy for cancer treatment: Major
- Side Effects: Mild
- Adherence: Always
- Burden: Not at all
healed added a treatment evaluation for Femara from Aug 17, 2011 • Nov 04, 2011
Stopped treatment

Femara
- Stopped: Aug 17, 2011
- Reason: Doctor's advice
healed stopped taking the treatment Femara • Nov 04, 2011
What else would you like to share about stopping this treatment?
Weight

175 lb

BMI

28.2
healed updated heryour weight for Nov 4, 2011 • Nov 04, 2011
Is there anything in particular that influenced this weight increase?
InstantMe

Good
healed added an InstantMe for Nov 8, 2011 • Nov 08, 2011 12:25AM
What's making you feel good?
InstantMe

Good
healed added an InstantMe for Nov 8, 2011 • Nov 08, 2011 12:24AM
What's making you feel good?
Added

Symptom Update
healed updated heryour symptoms for Nov 5, 2011 • Nov 04, 2011
What else would you like to share about these symptoms?
3 stars
healed earned a star! • Nov 04, 2011
Congrats! Did you know 3 star members can get a free PLM t-shirt?
Added condition

Dystonia
- First symptom: ?
- Diagnosis: ?
healed added the condition Dystonia • Nov 02, 2011
What else would you like to share about 'Dystonia'?

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About healed

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