I started feeling very ill when I was 21. I just knew something was wrong. I had a spinal tap that showed there was something going on. The neurologist told me at the time that they were not sure what autoimmune disease it was but that over time we would know as the symptoms would increase. They were right!!!!!! Over the years new tests would pop up positive and the symptoms started showing their ugly little heads! Today I am 33 and have been treated for SLE for many years! Another disease is starting to show its ugly little head at this point.......systemic vasculitis. Oh well, we have handled everything before this point and will handle everything after it!
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- danirae
- Sex: F
- Data Quality: 0 stars
- Pain: All
- Fatigue: All
- Sleep: All
- Stiffness: All
- function: Little
- external_stress: Some
- Stickman: all
- Description:F33y
- FM:10y Dx
- I am: b
I have:Fibromyalgiadanirae lost a star Oct 13, 2012

0 stars
-
- danirae
- Sex: F
- Data Quality: 0 stars
- Pain: All
- Fatigue: All
- Sleep: All
- Stiffness: All
- function: Little
- external_stress: Some
- Stickman: all
- Description:F33y
- FM:10y Dx
- I am: b
I have:Fibromyalgiadanirae updated the condition Systemic Lupus Erythematosus Jul 15, 2012Systemic Lupus Erythematosus
- First symptom:
- Diagnosis:
-
- danirae
- Sex: F
- Data Quality: 0 stars
- Pain: All
- Fatigue: All
- Sleep: All
- Stiffness: All
- function: Little
- external_stress: Some
- Stickman: all
- Description:F33y
- FM:10y Dx
- I am: b
I have:Fibromyalgiadanirae updated her weight for Jul 15, 2012 Jul 15, 2012146 lb BMI: 25.1
Recovering from surgery and having to stay in bed for that recovery. Increase usage of steroids.
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- danirae
- Sex: F
- Data Quality: 0 stars
- Pain: All
- Fatigue: All
- Sleep: All
- Stiffness: All
- function: Little
- external_stress: Some
- Stickman: all
- Description:F33y
- FM:10y Dx
- I am: b
I have:Fibromyalgiadanirae added an InstantMe for Jul 15, 2012 Jul 15, 2012 12:41PMBad
I have started a month long dose of prednisone. It seems I am having inflammation in my joints, muscles and lungs. We are also starting to test for systemic vasculitis. So, today there is lots of pain, fatigue and an overall feeling of not being well.
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- danirae
- Sex: F
- Data Quality: 0 stars
- Pain: All
- Fatigue: All
- Sleep: All
- Stiffness: All
- function: Little
- external_stress: Some
- Stickman: all
- Description:F33y
- FM:10y Dx
- I am: b
I have:Fibromyalgiadanirae completed the QOL survey for Jul 15, 2012 Jul 15, 2012QOL
- Bad Social
- Good Mental
- Bad Physical
-
- danirae
- Sex: F
- Data Quality: 0 stars
- Pain: All
- Fatigue: All
- Sleep: All
- Stiffness: All
- function: Little
- external_stress: Some
- Stickman: all
- Description:F33y
- FM:10y Dx
- I am: b
I have:Fibromyalgiadanirae completed the PFRS survey for Jul 15, 2012 Jul 15, 2012PFRS: 47
- All Fatigue
- All Sleep
- All Stiffness
- All Pain
- Moderate External Stress
-
- danirae
- Sex: F
- Data Quality: 0 stars
- Pain: All
- Fatigue: All
- Sleep: All
- Stiffness: All
- function: Little
- external_stress: Some
- Stickman: all
- Description:F33y
- FM:10y Dx
- I am: b
I have:FibromyalgiaLyrica Treatment Evaluation
- Perceived effectiveness for Fibromyalgia:
- Side Effects:
- Adherence:
- Burden:
danirae added a treatment evaluation for Lyrica Jul 15, 2012- Cost
- $100-199 monthly
-
- danirae
- Sex: F
- Data Quality: 0 stars
- Pain: All
- Fatigue: All
- Sleep: All
- Stiffness: All
- function: Little
- external_stress: Some
- Stickman: all
- Description:F33y
- FM:10y Dx
- I am: b
I have:FibromyalgiaBactrim Treatment Evaluation
- Perceived effectiveness for Skin Irritations:
- Side Effects:
- Adherence:
- Burden:
danirae added a treatment evaluation for Bactrim Jul 15, 2012- Cost
- $25-49 monthly
-
- danirae
- Sex: F
- Data Quality: 0 stars
- Pain: All
- Fatigue: All
- Sleep: All
- Stiffness: All
- function: Little
- external_stress: Some
- Stickman: all
- Description:F33y
- FM:10y Dx
- I am: b
I have:FibromyalgiaCelebrex Treatment Evaluation
- Perceived effectiveness for Arthritis pain:
- Side Effects:
- Adherence:
- Burden:
danirae added a treatment evaluation for Celebrex Jul 15, 2012- Cost
- $50-99 monthly
-
- danirae
- Sex: F
- Data Quality: 0 stars
- Pain: All
- Fatigue: All
- Sleep: All
- Stiffness: All
- function: Little
- external_stress: Some
- Stickman: all
- Description:F33y
- FM:10y Dx
- I am: b
I have:Fibromyalgiadanirae updated her symptoms for Jul 15, 2012 Jul 15, 2012Symptom Update
- none Allergies
- none Anxious mood
- severe Arthritis pain
- moderate Balance problems
- moderate Bowel irritability
- severe Brain fog
- See more
-
- danirae
- Sex: F
- Data Quality: 0 stars
- Pain: All
- Fatigue: All
- Sleep: All
- Stiffness: All
- function: Little
- external_stress: Some
- Stickman: all
- Description:F33y
- FM:10y Dx
- I am: b
I have:Fibromyalgiadanirae updated the treatment Lyrica Jul 15, 2012Lyrica
- Stopped: Jul 15, 2012
- Reason: Expense
- Started: Apr 1, 2007
- Last Dosage: 150 mg daily
- Purpose: Fibromyalgia
- View Latest Evaluation
-
Added
- Started: Apr 01, 2007
- Dosage: 150 mg daily
- Purpose: Fibromyalgia
- Apr 01, 2007
-
Evaluated
- View Evaluation
- Mar 01, 2010
-
Stopped
- Date: Jul 15, 2012
- Reason: Expense
- Jul 15, 2012
-
Evaluated
- View Evaluation
- Jul 15, 2012
-
- danirae
- Sex: F
- Data Quality: 0 stars
- Pain: All
- Fatigue: All
- Sleep: All
- Stiffness: All
- function: Little
- external_stress: Some
- Stickman: all
- Description:F33y
- FM:10y Dx
- I am: b
I have:Fibromyalgiadanirae updated the treatment Bactrim Jul 15, 2012Bactrim
- Stopped: Jul 15, 2012
- Reason: Course of treatment ended
- Started: Jul 17, 2007
- Last Dosage: 2 x 400 mg-80 mg daily
- Purpose: Skin Irritations
- View Latest Evaluation
-
Added
- Started: Jul 17, 2007
- Dosage: 2 x 400 mg-80 mg daily
- Purpose: Skin Irritations
- Jul 17, 2007
-
Evaluated
- View Evaluation
- Mar 01, 2010
-
Stopped
- Date: Jul 15, 2012
- Reason: Course of treatment ended
- Jul 15, 2012
-
Evaluated
- View Evaluation
- Jul 15, 2012
-
- danirae
- Sex: F
- Data Quality: 0 stars
- Pain: All
- Fatigue: All
- Sleep: All
- Stiffness: All
- function: Little
- external_stress: Some
- Stickman: all
- Description:F33y
- FM:10y Dx
- I am: b
I have:Fibromyalgiadanirae updated the treatment Celebrex Jul 15, 2012Celebrex
- Stopped: Jul 15, 2012
- Reason: Expense
- Started: Nov 1, 2007
- Last Dosage: 200 mg daily
- Purpose: Arthritis pain
- View Latest Evaluation
-
Added
- Started: Nov 01, 2007
- Dosage: 200 mg daily
- Purpose: Arthritis pain
- Nov 01, 2007
-
Evaluated
- View Evaluation
- Mar 01, 2010
-
Stopped
- Date: Jul 15, 2012
- Reason: Expense
- Jul 15, 2012
-
Evaluated
- View Evaluation
- Jul 15, 2012
-
- danirae
- Sex: F
- Data Quality: 0 stars
- Pain: All
- Fatigue: All
- Sleep: All
- Stiffness: All
- function: Little
- external_stress: Some
- Stickman: all
- Description:F33y
- FM:10y Dx
- I am: b
I have:Fibromyalgiadanirae added the treatment Lybrel Jul 15, 2012Lybrel
- Started: Jul 15, 2012
- Current Dosage: 20 mcg-90 mcg daily
-
Purpose:
-
- danirae
- Sex: F
- Data Quality: 0 stars
- Pain: All
- Fatigue: All
- Sleep: All
- Stiffness: All
- function: Little
- external_stress: Some
- Stickman: all
- Description:F33y
- FM:10y Dx
- I am: b
I have:Fibromyalgiadanirae added the treatment Paroxetine Jul 15, 2012Paroxetine
- Started: Jul 15, 2012
- Current Dosage: 20 mg daily
-
Purpose:
-
- danirae
- Sex: F
- Data Quality: 0 stars
- Pain: All
- Fatigue: All
- Sleep: All
- Stiffness: All
- function: Little
- external_stress: Some
- Stickman: all
- Description:F33y
- FM:10y Dx
- I am: b
I have:Fibromyalgiadanirae added the treatment Verapamil Jul 15, 2012Verapamil
- Started: Jul 15, 2012
- Current Dosage: 360 mg daily
-
Purpose:
-
- danirae
- Sex: F
- Data Quality: 0 stars
- Pain: All
- Fatigue: All
- Sleep: All
- Stiffness: All
- function: Little
- external_stress: Some
- Stickman: all
- Description:F33y
- FM:10y Dx
- I am: b
I have:Fibromyalgiadanirae added the treatment Lisinopril Jul 15, 2012Lisinopril
- Started: Jul 15, 2012
- Current Dosage: 20 mg daily
-
Purpose:
-
- danirae
- Sex: F
- Data Quality: 0 stars
- Pain: All
- Fatigue: All
- Sleep: All
- Stiffness: All
- function: Little
- external_stress: Some
- Stickman: all
- Description:F33y
- FM:10y Dx
- I am: b
I have:Fibromyalgiadanirae added the treatment Theophylline Jul 15, 2012Theophylline
- Started: Jul 15, 2012
- Current Dosage: 600 mg/24 hours daily
-
Purpose:
-
- danirae
- Sex: F
- Data Quality: 0 stars
- Pain: All
- Fatigue: All
- Sleep: All
- Stiffness: All
- function: Little
- external_stress: Some
- Stickman: all
- Description:F33y
- FM:10y Dx
- I am: b
I have:Fibromyalgiadanirae added the treatment Dicyclomine Jul 15, 2012Dicyclomine
- Started: Jul 15, 2012
- Current Dosage: 20 mg daily
-
Purpose:
-
- danirae
- Sex: F
- Data Quality: 0 stars
- Pain: All
- Fatigue: All
- Sleep: All
- Stiffness: All
- function: Little
- external_stress: Some
- Stickman: all
- Description:F33y
- FM:10y Dx
- I am: b
I have:Fibromyalgiadanirae added the treatment Cyclobenzaprine Jul 15, 2012Cyclobenzaprine
- Started: Jul 15, 2012
- Current Dosage: 10 mg daily
-
Purpose:
- Show more









