darinmnj's Journal

darinmnj: Sex: M; Data Quality: 3 stars; ALS: 7 yrs; Bi-Pap Wheelchair Feeding tube; Bulbar: mild; Arms: severe; Chest: moderate; Legs: severe

darinmnj: Male, 44 years; NJ, United States

Primary Condition: ALS and 1 more ▼

First symptom: May 2006
Diagnosis: Nov 2007

darinmnj

Sex: M

Data Quality: 3 stars

Bulbar: mild

Arms: severe

Chest: moderate

Legs: severe

I am: n

I have:
ALS
ALS (Amyotrophic Lateral Sclerosis)
- First symptom: May 1, 2006
- Diagnosis: Nov 1, 2007
darinmnj updated the condition ALS (Amyotrophic Lateral Sclerosis) Apr 27, 2013
darinmnj

Sex: M

Data Quality: 3 stars

Bulbar: mild

Arms: severe

Chest: moderate

Legs: severe

I am: n

I have:
ALS

200 lb BMI: 25.7
darinmnj updated his weight for Apr 17, 2013 Apr 17, 2013
darinmnj

Sex: M

Data Quality: 3 stars

Bulbar: mild

Arms: severe

Chest: moderate

Legs: severe

I am: n

I have:
ALS
FRS: 12
- mild Head
- severe Arms
- moderate Torso
- severe Legs
darinmnj completed the FRS survey for Apr 13, 2013 Apr 17, 2013
darinmnj

Sex: M

Data Quality: 3 stars

Bulbar: mild

Arms: severe

Chest: moderate

Legs: severe

I am: n

I have:
ALS

FVC: 19%

darinmnj completed the FVC survey for Apr 12, 2013 Apr 17, 2013
darinmnj

Sex: M

Data Quality: 3 stars

Bulbar: mild

Arms: severe

Chest: moderate

Legs: severe

I am: n

I have:
ALS
Symptom Update
- mild Cramps in neck
- mild Depressed mood
- none Elevated blood pressure
- none Emotional lability
- severe Endurance reduced (whole body)
- severe Excessive yawning
- mild Excess saliva
- moderate Fasciculations
- severe Fatigue
- none Frozen shoulder
- mild Insomnia
- mild Anxious mood
- severe Atrophy of hand muscles
- severe Atrophy of left shoulder muscles
- severe Atrophy of shoulder muscles
- severe Atrophy of thigh muscles
- none Back pain
- none Claw-like cramps in hands
- none Constipation
- none Cramps in back
- none Cramps in biceps
- none Cramps in calf muscles
- none Cramps in feet
- none Cramps in forearms
- See more
darinmnj updated his symptoms for Apr 17, 2013 Apr 17, 2013
darinmnj

Sex: M

Data Quality: 3 stars

Bulbar: mild

Arms: severe

Chest: moderate

Legs: severe

I am: n

I have:
ALS

3 stars
darinmnj earned a star! Apr 17, 2013
darinmnj

Sex: M

Data Quality: 3 stars

Bulbar: mild

Arms: severe

Chest: moderate

Legs: severe

I am: n

I have:
ALS

2 stars
darinmnj lost a star Mar 20, 2013
darinmnj

Sex: M

Data Quality: 3 stars

Bulbar: mild

Arms: severe

Chest: moderate

Legs: severe

I am: n

I have:
ALS
Rollator Treatment Evaluation
- Perceived effectiveness for Weakness in legs: Slight
- Side Effects: None
- Adherence: Sometimes
- Burden: Not at all
darinmnj added a treatment evaluation for Rollator from Aug 15, 2011 Mar 05, 2013
darinmnj

Sex: M

Data Quality: 3 stars

Bulbar: mild

Arms: severe

Chest: moderate

Legs: severe

I am: n

I have:
ALS
Ankle Foot Orthosis AFO Treatment Evaluation
- Perceived effectiveness for Walking difficult without aid: None
- Side Effects: None
- Adherence: Usually
- Burden: Not at all
darinmnj added a treatment evaluation for Ankle Foot Orthosis AFO from Sep 5, 2011 Mar 05, 2013
darinmnj

Sex: M

Data Quality: 3 stars

Bulbar: mild

Arms: severe

Chest: moderate

Legs: severe

I am: n

I have:
ALS
Rollator
- - Stopped: Aug 15, 2011
  - Reason: Other
  - Started: Mar 20, 2011
  - Last Dosage: daily
- Purpose: Weakness in legs
- View Latest Evaluation
darinmnj updated the treatment Rollator Mar 05, 2013
- Added
  - Started: Mar 20, 2011
  - Dosage: daily
  - Purpose: Weakness in legs
  - Mar 20, 2011
- Stopped
  - Date: Aug 15, 2011
  - Reason: Other
  - Aug 15, 2011
- Evaluated
  - View Evaluation
  - Aug 15, 2011
darinmnj

Sex: M

Data Quality: 3 stars

Bulbar: mild

Arms: severe

Chest: moderate

Legs: severe

I am: n

I have:
ALS
Ankle Foot Orthosis AFO
- - Stopped: Sep 05, 2011
  - Reason: Did not seem to work
  - Started: Nov 12, 2009
  - Last Dosage: daily
- Purpose: Walking difficult without aid
- View Latest Evaluation
darinmnj updated the treatment Ankle Foot Orthosis AFO Mar 05, 2013
- Added
  - Started: Nov 12, 2009
  - Dosage: as needed
  - Purpose: Walking difficult without aid
  - Nov 12, 2009
- Changed Dosage
  - Dosage: daily
  - Apr 01, 2010
- Stopped
  - Date: Sep 05, 2011
  - Reason: Did not seem to work
  - Sep 05, 2011
- Evaluated
  - View Evaluation
  - Sep 05, 2011
darinmnj

Sex: M

Data Quality: 3 stars

Bulbar: mild

Arms: severe

Chest: moderate

Legs: severe

I am: n

I have:
ALS
Celiac Disease
- First symptom: ?
- Diagnosis: ?
darinmnj updated the condition Celiac Disease Feb 07, 2013
darinmnj

Sex: M

Data Quality: 3 stars

Bulbar: mild

Arms: severe

Chest: moderate

Legs: severe

I am: n

I have:
ALS
Chiropractic Treatment Evaluation
- Perceived effectiveness for ALS (Amyotrophic Lateral Sclerosis): Slight
- Side Effects: Mild
- Adherence: Usually
- Burden: Somewhat
Advice & Tips

help the immune system

darinmnj added a treatment evaluation for Chiropractic from Oct 10, 2012 Jan 29, 2013
darinmnj

Sex: M

Data Quality: 3 stars

Bulbar: mild

Arms: severe

Chest: moderate

Legs: severe

I am: n

I have:
ALS
Vitamin B12 (methylcobalamin) Treatment Evaluation
- Perceived effectiveness for ALS (Amyotrophic Lateral Sclerosis): ?Can't tell
- Side Effects: None
- Adherence: Usually
- Burden: Not at all
darinmnj added a treatment evaluation for Vitamin B12 (methylcobalamin) from Feb 19, 2012 Jan 29, 2013
darinmnj

Sex: M

Data Quality: 3 stars

Bulbar: mild

Arms: severe

Chest: moderate

Legs: severe

I am: n

I have:
ALS
Turmeric Treatment Evaluation
- Perceived effectiveness for ALS (Amyotrophic Lateral Sclerosis): None
- Side Effects: None
- Adherence: Usually
- Burden: Not at all
darinmnj added a treatment evaluation for Turmeric from Jan 5, 2012 Jan 29, 2013
darinmnj

Sex: M

Data Quality: 3 stars

Bulbar: mild

Arms: severe

Chest: moderate

Legs: severe

I am: n

I have:
ALS
Omega 3 Fish Oil Treatment Evaluation
- Perceived effectiveness for ALS (Amyotrophic Lateral Sclerosis): None
- Side Effects: None
- Adherence: Usually
- Burden: Not at all
darinmnj added a treatment evaluation for Omega 3 Fish Oil from Jun 15, 2012 Jan 29, 2013
darinmnj

Sex: M

Data Quality: 3 stars

Bulbar: mild

Arms: severe

Chest: moderate

Legs: severe

I am: n

I have:
ALS
Multivitamins Treatment Evaluation
- Perceived effectiveness for General health: ?Can't tell
- Side Effects: None
- Adherence: Never
- Burden: Not at all
darinmnj added a treatment evaluation for Multivitamins from Jul 11, 2012 Jan 29, 2013
darinmnj

Sex: M

Data Quality: 3 stars

Bulbar: mild

Arms: severe

Chest: moderate

Legs: severe

I am: n

I have:
ALS
Grape Seed Extract Treatment Evaluation
- Perceived effectiveness for ALS (Amyotrophic Lateral Sclerosis): None
- Side Effects: None
- Adherence: Usually
- Burden: Not at all
darinmnj added a treatment evaluation for Grape Seed Extract from Jun 10, 2012 Jan 29, 2013
darinmnj

Sex: M

Data Quality: 3 stars

Bulbar: mild

Arms: severe

Chest: moderate

Legs: severe

I am: n

I have:
ALS
Hospitalization for Pneumonia symptoms
- Discharged: Dec 5, 2012
darinmnj added a hospitalization for Pneumonia symptoms Jan 29, 2013
darinmnj

Sex: M

Data Quality: 3 stars

Bulbar: mild

Arms: severe

Chest: moderate

Legs: severe

I am: n

I have:
ALS
Hospitalization for Feeding Tube
- Discharged: Dec 1, 2012
darinmnj added a hospitalization for Feeding Tube Jan 29, 2013
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