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positive for MS lesions. I was devestated. He sent me to a neuro, who saw me a few times, did a spinal, which came back with a slight positive. The neuro told me I "probably" had R/R MS, but could not give me a definite dx. He saw me a few more times, but it seemed pointless, as he was not treating me at that time. I also was feeling some of the fatigue, which made my job more difficult. Most of the symptoms seemed to subside, short of the fatigue. In 2006 I was still dealing with the fatigue, and decided to follow up with a new neuro at a place called the Mind Clinic, which was supposed to have some of the best neuro's in the area. The neuro I saw sent me for another MRI. It showed the lesions on my brain as being dormant, great! But the neuro treated me like a complete idiot, told me I was self diagnosing myself, and sent me on my way. I did well until around Sept. of 2009, when I started experiencing numbness on my right side, I could not feel hot or cold water at all, I had severe lower back pain, and I began to feel a tingling in my left arm. I guess I was in denial, so first I went to my chiropractor. It did help tremendously with the lower back pain, but then my left arm when numb along with the tingling and I was losing mobility in the left hand. I also started getting the tingling shooting down my spine and into my arms when I tilted my head. I went to my gp and she did some x-rays, which shows I have some discs in my neck that are slightly herniated, my gp then chose to send me for some further testing, the emg, and and MRI as I had previous signs of MS. My gp also gave me a referral for a new neuro. The MRI showed new lesions on the brain, the old lesions showed they were active again and there was a new lesion on my spine. My new neuro then sent me for the vision and hearing evoked tests. My neuro gave me the definite diagnosis for MS in Oct. of 2009. She was upset that my previous neuro chose not to treat me, as it could have prevented or lessened the flare up I am experiencing now. I started my rebif injections in Dec. 2009. I took a turn for the worse during Xmas and New years, and had to do the IV steroids, with oral steroids, I had a bladder infection that sent me for a loop. I am better now than I was, but am still dealing with symptoms. The right side, my skin is hypersensitive to the touch of cold, it hurts! I am dealing with the cold limb symptom in my right leg from the knee down and in my right hand as well, which the right leg becomes painful at times from the cold limb. I have tingling in my left hand, and the lhirmeets symptom in my spine. I deal with the fatigue, the severity comes and goes. I do notice weakness in my legs, not terrible, but it's there, and a slight weakness in my arms. I have been off work intermittently since Oct. 2009, I was able to work some for a while, but haven't worked at all since Jan. 5, 2010. I just saw my neuro, and she put me off for another 5 weeks. I am a custodian for a school district here, and it is normally a tough job without a disease, it's a heck of a lot tougher with the MS. I am responsible for cleaning and upkeeping 3/4 of a large elementary and work in the building as the only nighttime custodian, so there isn't even anyone there to help out when Im slowing down from the fatigue or not moving so fast from the spasicity/weakness. I am looking into an early medical retirement, but am not disabled enough or on the treatments long enough so far to apply. I feel for all of the frustrations all of those (US) suffering with MS has to deal with! I keep editing this, as I forget to add things! I am sure there will be more! I also have dealt with the cognitive issues with memory issues. See! I forgot that!! :) I try to keep a positive attitude, thank God for my sense of humor, and a good neuro, and most of all I am thankful for my wonderful husband that I mentioned earlier in my bio. He is involved, supportive, loving, helpful and has a sense of humor that matches mine and keeps me laughing and smiling all the time.