I am a retired nurse. When I started having problems with my breathing, I was diagnosed with COPD and when my voice went doctors were mystified. I was sent to doctor after doctor with no answers and no help. What a relief to finally be sent to Southwestern Medical Center in Dallas and to finally be given a diagnosis and some answers. For everyone out there who is frustrated and despairing of finding out what is wrong don't give up and don't let your doctors give up searching for your answers either.
I am confined to a power chair for mobility but I can stand alone (not without effort and a lot of grunting and heavy breathing) and pivot to toilet or get into/out of bed. I use a special computer and program to communicate and I can still write if I have to although writing is very bad. I do my own water through my g-tube but I can drink tiny sips of honey think fluids and I can still eat solid foods although I am careful in what I choose to eat. I know I am coming to the end of my independent transfer and eating solid foods. My left side is weaker than my right and I will keep fighting to maintain my independence as long as I can. I get short of breath with a minimal of exertion but my O2 sats are good. So, it is my weak muscles and diaphragm and not the air exchange that is the problem. The tremors, spasticity, stiffness, jerky motion all are getting worse. My emotional and mental state is very good. I am not depressed and do not feel sorry for myself or ask "why me". My faith in God is unshaken and Jesus is the rock I build my life on.