Back from a week in Florida. He showed more signs of being overwhelmed by the long days and activities than last time. Granted, he displays this just with being quiet, humming to himself, and sucking his fingers. He was clearly very tired from the long days, but he/we still had a great time. Lots of good moments. Just wish our days having fun weren't quite as long. Perhaps we try to fit to much into the trip.
- new ASD member
- Data Quality: 1 star
- Autism
- 5 years
- Boy
- Good
-
ATEC
- Speech: 5
- Sociability: 1
- Sensory/Cognitive Awareness: 6
- Health/Physical Behavior: 3
- ATEC score: 15
- theexpress
- Male, 5 years
- MA, United States
This account is maintained by a caregiver.
-
- new ASD member
- Data Quality: 1 star
- 5 years
- Boy
- g
-
ATEC
- Speech: 5
- Sociability: 1
- Sensory/Cognitive Awareness: 6
- Health/Physical Behavior: 3
- ATEC score: 15
I have:Autismtheexpress lost a star Apr 30, 2013
1 star
-
- new ASD member
- Data Quality: 1 star
- 5 years
- Boy
- g
-
ATEC
- Speech: 5
- Sociability: 1
- Sensory/Cognitive Awareness: 6
- Health/Physical Behavior: 3
- ATEC score: 15
I have:Autismtheexpress added an InstantMe for Apr 22, 2013 Apr 22, 2013 10:48AMGood
-
- new ASD member
- Data Quality: 1 star
- 5 years
- Boy
- g
-
ATEC
- Speech: 5
- Sociability: 1
- Sensory/Cognitive Awareness: 6
- Health/Physical Behavior: 3
- ATEC score: 15
I have:Autismtheexpress updated his symptoms for Apr 22, 2013 Apr 22, 2013Symptom Update
- mild Humming to myself
- mild Impaired communication skills
- mild Inattention
- none Lack of social skills
- mild Trouble with eye contact
-
- new ASD member
- Data Quality: 1 star
- 5 years
- Boy
- g
-
ATEC
- Speech: 5
- Sociability: 1
- Sensory/Cognitive Awareness: 6
- Health/Physical Behavior: 3
- ATEC score: 15
I have:Autismtheexpress added an InstantMe for Apr 3, 2013 Apr 03, 2013 9:30AMBad
Grumpy day all day yesterday. His little sister has pink eye. Hope he's not getting sick. Today he has neuro testing, so we're hoping he has a good day.
-
- new ASD member
- Data Quality: 1 star
- 5 years
- Boy
- g
-
ATEC
- Speech: 5
- Sociability: 1
- Sensory/Cognitive Awareness: 6
- Health/Physical Behavior: 3
- ATEC score: 15
I have:Autismtheexpress updated the treatment Applied Behavioral Analysis (ABA) Mar 25, 2013Applied Behavioral Analysis (ABA)
- Started: Aug 24, 2009
- Current Dosage: 5 hr weekly
- Purpose: PDD-NOS, Autism, and 3 more
- View Latest Evaluation
Dropped down to just three days per week after school. Now that he's in K, I'm not really counting any of his day at school as ABA, though data is being collected by his ABA-trained aide.
-
Added
- Started: Aug 24, 2009
- Dosage: 5 hr weekly
- Purpose: PDD-NOS (Pervasive Development Disorder NOS), ASD (Autism Spectrum Disorder), Impaired communication skills, Repetitive behavior, and Lack of social skills
- Aug 24, 2009
-
Changed Dosage
- Dosage: 13 hr weekly
- Sep 14, 2009
-
Changed Dosage
- Dosage: 25 hr weekly
- Oct 05, 2009
-
Changed Dosage
- Dosage: 21 hr weekly
- Sep 13, 2010
-
Changed Dosage
- Dosage: 23.5 hr weekly
- Feb 01, 2011
-
Evaluated
- View Evaluation
- Feb 22, 2011
-
Evaluated
- View Evaluation
- Sep 19, 2011
-
Changed Dosage
- Dosage: 20.75 hr weekly
- Dec 28, 2011
-
Changed Dosage
- Dosage: 8 hr weekly
- Sep 10, 2012
-
Changed Dosage
- Dosage: 5 hr weekly
- Mar 01, 2013
-
- new ASD member
- Data Quality: 1 star
- 5 years
- Boy
- g
-
ATEC
- Speech: 5
- Sociability: 1
- Sensory/Cognitive Awareness: 6
- Health/Physical Behavior: 3
- ATEC score: 15
I have:Autismtheexpress added an InstantMe for Mar 25, 2013 Mar 25, 2013 4:07PMGood
Had a nice weekend getting outside and playing some sports. It's amazing how much better things go when we get some outside time.
-
- new ASD member
- Data Quality: 1 star
- 5 years
- Boy
- g
-
ATEC
- Speech: 5
- Sociability: 1
- Sensory/Cognitive Awareness: 6
- Health/Physical Behavior: 3
- ATEC score: 15
I have:Autismtheexpress updated the condition Food allergy Mar 07, 2013Food allergy
- First symptom:
- Diagnosis: ?
-
- new ASD member
- Data Quality: 1 star
- 5 years
- Boy
- g
-
ATEC
- Speech: 5
- Sociability: 1
- Sensory/Cognitive Awareness: 6
- Health/Physical Behavior: 3
- ATEC score: 15
I have:Autismtheexpress added an InstantMe for Mar 1, 2013 Mar 01, 2013 7:21AMGood
Things are getting back to normal after about a week of high fevers, missing school, and being VERY tired.
-
- new ASD member
- Data Quality: 1 star
- 5 years
- Boy
- g
-
ATEC
- Speech: 5
- Sociability: 1
- Sensory/Cognitive Awareness: 6
- Health/Physical Behavior: 3
- ATEC score: 15
I have:Autismtheexpress added a new Vineland Adaptive Behavior Scales, 2nd Edition value for Feb 25, 2013 Feb 28, 2013Vineland Adaptive Behavior Scales, 2nd Edition
- Adaptive Behavior Composite
- 55 %
- Communication
- 79 %
- Daily Living Skills
- 58 %
- Socialization
- 66 %
- Motor Skills
- 21 %
This marked a return to good scores. Last Vineland we took rated way low. We looked back at each question and decided we were too hard on him. We weren't really answering in the spirit of the questions. This time, my wife took the test by herself (she's usually hardest on him). She compared him to his sisters rather than to perfection. As a result, the scores are back where they were in previous Vinelands. The Motor Skills scoring is way off, though. My wife read back her answers and also agrees that they answers really should have been different.
-
- new ASD member
- Data Quality: 1 star
- 5 years
- Boy
- g
-
ATEC
- Speech: 5
- Sociability: 1
- Sensory/Cognitive Awareness: 6
- Health/Physical Behavior: 3
- ATEC score: 15
I have:Autismtheexpress updated his symptoms for Mar 1, 2013 Mar 01, 2013Symptom Update
- mild Humming to myself
- mild Impaired communication skills
- mild Inattention
- none Lack of social skills
- mild Trouble with eye contact
-
- new ASD member
- Data Quality: 1 star
- 5 years
- Boy
- g
-
ATEC
- Speech: 5
- Sociability: 1
- Sensory/Cognitive Awareness: 6
- Health/Physical Behavior: 3
- ATEC score: 15
I have:Autismtheexpress updated the condition ASD (Autism Spectrum Disorder) Feb 25, 2013ASD (Autism Spectrum Disorder)
- First symptom:
- Diagnosis:
I decided to list this as my primary condition. My son's diagnosis is actually PDD-NOS (Pervasive Developmental Disorder Not Otherwise Specified), which is an autism spectrum disorder. However, there are fewer PDD-NOS patients, so this will just get me listed better. Ideally, PDD-NOS would just be a "Type" of Autism, not a whole separate thing.
2 comments from other members. Only showing public users' comments. Sign up to see all comments! -
- new ASD member
- Data Quality: 1 star
- 5 years
- Boy
- g
-
ATEC
- Speech: 5
- Sociability: 1
- Sensory/Cognitive Awareness: 6
- Health/Physical Behavior: 3
- ATEC score: 15
I have:Autismtheexpress completed the ATEC survey for Jan 30, 2013 Jan 30, 2013ATEC: 15
- Speech
- Sociability
- Sensory/cognitive Awareness
- Health/physical Behavior
I tried to be about as hard on him as I could here. It looks like it went up, but it hasn't really.
-
- new ASD member
- Data Quality: 1 star
- 5 years
- Boy
- g
-
ATEC
- Speech: 5
- Sociability: 1
- Sensory/Cognitive Awareness: 6
- Health/Physical Behavior: 3
- ATEC score: 15
I have:Autismtheexpress updated his symptoms for Jan 27, 2013 Jan 30, 2013Symptom Update
- moderate Bowel problems
We were at a birthday party on Sunday night when he said he had to go to the bathroom. He had to rush there and it was horrendous diarrhea like I haven't seen in a long time. He was also up in the night screaming in pain from gas pains and eventually threw up once.
In the morning, he was fine. He stayed home from school but showed no ill effects.
Of course, we started wondering if it was because he recently started a little bit of rice flour in his diet. I don't think that's likely as it was probably just a stomach bug.
-
- new ASD member
- Data Quality: 1 star
- 5 years
- Boy
- g
-
ATEC
- Speech: 5
- Sociability: 1
- Sensory/Cognitive Awareness: 6
- Health/Physical Behavior: 3
- ATEC score: 15
I have:Autismtheexpress updated his weight for Jan 30, 2013 Jan 30, 201345 lb
-
- new ASD member
- Data Quality: 1 star
- 5 years
- Boy
- g
-
ATEC
- Speech: 5
- Sociability: 1
- Sensory/Cognitive Awareness: 6
- Health/Physical Behavior: 3
- ATEC score: 15
I have:Autismtheexpress updated his symptoms for Jan 29, 2013 Jan 30, 2013Symptom Update
- none Bowel problems
-
- new ASD member
- Data Quality: 1 star
- 5 years
- Boy
- g
-
ATEC
- Speech: 5
- Sociability: 1
- Sensory/Cognitive Awareness: 6
- Health/Physical Behavior: 3
- ATEC score: 15
I have:Autismtheexpress earned a star! Jan 30, 2013
2 stars
-
- new ASD member
- Data Quality: 1 star
- 5 years
- Boy
- g
-
ATEC
- Speech: 5
- Sociability: 1
- Sensory/Cognitive Awareness: 6
- Health/Physical Behavior: 3
- ATEC score: 15
I have:Autismtheexpress updated the treatment DIR/Floortime Jan 16, 2013DIR/Floortime
- Started: Jan 1, 2013
- Current Dosage: 3 hr weekly
- Purpose: Impaired communication skills
Recently, my wife and I went to a six-week Floortime class. We've decided to give it a try with a few hours per week of therapy.
-
- new ASD member
- Data Quality: 1 star
- 5 years
- Boy
- g
-
ATEC
- Speech: 5
- Sociability: 1
- Sensory/Cognitive Awareness: 6
- Health/Physical Behavior: 3
- ATEC score: 15
I have:Autismtheexpress updated his symptoms for Jan 14, 2013 Jan 15, 2013Symptom Update
- mild Hand flapping
Seeing a bit more of this than usual. I attribute it to not getting outside to play as much and having excess energy.
-
- new ASD member
- Data Quality: 1 star
- 5 years
- Boy
- g
-
ATEC
- Speech: 5
- Sociability: 1
- Sensory/Cognitive Awareness: 6
- Health/Physical Behavior: 3
- ATEC score: 15
I have:Autismtheexpress updated the treatment Specific Carbohydrate Diet Jan 15, 2013Specific Carbohydrate Diet
- Stopped: Jan 14, 2013
- Reason: Course of treatment ended and Other
- Started: Oct 29, 2009
- Last Dosage: 24 hr daily
- Purpose: Insomnia, Bowel problems, and 2 more
- View Latest Evaluation
As I said in my treatment evaluation, yesterday—at 5 1/2 years old—our son had rice for the first time. For that reason, I'm considering us off the SCD. We introduced potatoes a while back (which aren't SCD legal), too. He handled those well. We'll monitor the rice. I can't say enough about the SCD. This, along with the ABA therapy, dramatically changed the course of our son's life.
-
Added
- Started: Oct 29, 2009
- Dosage: 24 hr daily
- Purpose: Insomnia, Bowel problems, Support digestive health, and Food allergy
- Oct 29, 2009
-
Evaluated
- View Evaluation
- Apr 06, 2011
-
Stopped
- Date: Jan 14, 2013
- Reason: Course of treatment ended and Other
- Jan 14, 2013
-
Evaluated
- View Evaluation
- Jan 14, 2013
-
- new ASD member
- Data Quality: 1 star
- 5 years
- Boy
- g
-
ATEC
- Speech: 5
- Sociability: 1
- Sensory/Cognitive Awareness: 6
- Health/Physical Behavior: 3
- ATEC score: 15
I have:Autismtheexpress updated the treatment Soy Free Jan 15, 2013Soy Free
- Started: Oct 29, 2009
- Current Dosage: 24 hr daily
- Purpose: Support digestive health and Food allergy
We've stopped explicitly following the Specific Carbohydrate Diet, but he's still gluten, dairy, soy (and some others) free.
- Show more
I wouldn't call something "appropriate" if it removes services that are well-deserved and needed, so I'm going to have to see how it plays out. For our specific case, we're getting to the point where the types of services we need are not typically going to be covered by insurance anyway. But if we have millions of kids with Aspergers suddenly losing their services, there are going to huge public health implications in the future.