grampa's Journal

grampa: Sex: M; Data Quality: 2 stars; MSA: 7 yrs; Type: Striatonigral degeneration (MSA-p); Mood: Good; Cognition: Mild; Autonomic: Mild; Head: moderate; Arms: severe; Legs: moderate; Tremors: none

grampa: Male, 67 years; Toronto, ON

Primary Condition: MSA

Type: Striatonigral degeneration (MSA-p)

First symptom: Oct 2004
Diagnosis: Jun 2008

Deceased: Jul 26, 2012

grampa

Sex: M

Data Quality: 2 stars

Mood: Good

Cognition: Mild

Autonomic: Mild

Head: moderate

Arms: severe

Legs: moderate

Tremors: none

I am: vg

I have:
MSA
Lactulose
- - Stopped: Nov 01, 2011
  - Reason: Doctor's advice and Other
  - Started: Jan 1, 2011
  - Last Dosage: 10 g/15 mL daily
- Purpose: Gas, Hard stool, and Constipation
- View Latest Evaluation
grampa updated the treatment Lactulose Feb 17, 2013
- Added
  - Started: Jan 01, 2011
  - Dosage: 10 g/15 mL daily
  - Purpose: Gas, Hard stool, Constipation, and Loose stools
  - Jan 01, 2011
- Stopped
  - Date: Nov 01, 2011
  - Reason: Doctor's advice and Other
  - Nov 01, 2011
- Evaluated
  - View Evaluation
  - Nov 01, 2011
grampa

Sex: M

Data Quality: 2 stars

Mood: Good

Cognition: Mild

Autonomic: Mild

Head: moderate

Arms: severe

Legs: moderate

Tremors: none

I am: vg

I have:
MSA
Symptom Update
- moderate Gas
- moderate Hard stool
- none Excessive daytime sleepiness (somnolence)
- none Depressed mood
- mild Apraxia
- mild Sexual dysfunction
- none Dry skin
- moderate Constipation
- moderate Parkinsonism
- mild Muscle tension
- none Insomnia
- mild Cold hands and feet
- none Bladder problems
- none Startle easily (hyperexplexia)
- none Loss of balance and injury to head
- mild Hearing non-existent music
- none Elevated blood pressure
- mild Drooling
- moderate Weakness in neck (head drop)
- mild Restless feeling in legs
- none Redness in hands
- none Problems concentrating
- moderate Swallowing difficulty (dysphagia)
- moderate Slurred speech
- mild Redness in feet and especially toes
- none Dry mouth (xerostomia)
- moderate Choking
- none Anxious mood
- none Loose stools
- none Emotional lability
- none Difficulty getting comfortable in bed
- severe Balance problems
- none Fatigue
- moderate Ataxia (lack of coordination)
- none Apathy
- mild Slowness
- none Pain
- none Difficulty breathing at night
- moderate Stiffness/Spasticity
- none Memory problems
- none Dizziness with hypotension upon standing
- See more
grampa updated his symptoms for Mar 7, 2012 Feb 17, 2013
grampa

Sex: M

Data Quality: 2 stars

Mood: Good

Cognition: Mild

Autonomic: Mild

Head: moderate

Arms: severe

Legs: moderate

Tremors: none

I am: vg

I have:
MSA
Symptom Update
- moderate Gas
- moderate Hard stool
- none Excessive daytime sleepiness (somnolence)
- none Depressed mood
- severe Apraxia
- none Sexual dysfunction
- mild Dry skin
- moderate Constipation
- severe Parkinsonism
- mild Muscle tension
- none Insomnia
- mild Cold hands and feet
- none Bladder problems
- mild Startle easily (hyperexplexia)
- mild Loss of balance and injury to head
- mild Hearing non-existent music
- none Elevated blood pressure
- mild Drooling
- moderate Weakness in neck (head drop)
- mild Restless feeling in legs
- none Problems concentrating
- moderate Swallowing difficulty (dysphagia)
- moderate Slurred speech
- mild Redness in feet and especially toes
- mild Dry mouth (xerostomia)
- moderate Choking
- none Anxious mood
- none Loose stools
- none Emotional lability
- mild Difficulty getting comfortable in bed
- severe Balance problems
- none Fatigue
- moderate Ataxia (lack of coordination)
- none Apathy
- moderate Slowness
- none Pain
- moderate Difficulty breathing at night
- severe Stiffness/Spasticity
- none Memory problems
- none Dizziness with hypotension upon standing
- See more
grampa updated his symptoms for Dec 3, 2011 Feb 17, 2013
grampa

Sex: M

Data Quality: 2 stars

Mood: Good

Cognition: Mild

Autonomic: Mild

Head: moderate

Arms: severe

Legs: moderate

Tremors: none

I am: vg

I have:
MSA

2 stars
grampa lost a star May 30, 2012
grampa

Sex: M

Data Quality: 2 stars

Mood: Good

Cognition: Mild

Autonomic: Mild

Head: moderate

Arms: severe

Legs: moderate

Tremors: none

I am: vg

I have:
MSA

Very good
grampa added an InstantMe for Mar 20, 2012 Mar 20, 2012 6:13PM

I rode my recumbent 'trike' outside for the first time in 4 months! My power chair is my 'home' daytime & continues to strengthen my neck mscles.
grampa

Sex: M

Data Quality: 2 stars

Mood: Good

Cognition: Mild

Autonomic: Mild

Head: moderate

Arms: severe

Legs: moderate

Tremors: none

I am: vg

I have:
MSA

136 lb BMI: 21.3
grampa updated his weight for Mar 1, 2012 Mar 07, 2012
grampa

Sex: M

Data Quality: 2 stars

Mood: Good

Cognition: Mild

Autonomic: Mild

Head: moderate

Arms: severe

Legs: moderate

Tremors: none

I am: vg

I have:
MSA
Invacare Power Wheelchair Treatment Evaluation
- Perceived effectiveness for Improve mobility: Major
- Perceived effectiveness for Strengthen neck muscles: Major
- Side Effects: None
- Adherence: Always
- Burden: Not at all
Advice & Tips

My speech improved. My comfort improved. Off the power chair, I can now hold my head up better.

Cost

< $25 monthly

grampa added a treatment evaluation for Invacare Power Wheelchair Mar 07, 2012
grampa

Sex: M

Data Quality: 2 stars

Mood: Good

Cognition: Mild

Autonomic: Mild

Head: moderate

Arms: severe

Legs: moderate

Tremors: none

I am: vg

I have:
MSA
Advil Extra Strength Treatment Evaluation
- Perceived effectiveness for Pain: Moderate
- Side Effects: None
- Adherence: Always
- Burden: Not at all
Advice & Tips

Take 1 pill if needed for pain

Cost

< $25 monthly

grampa added a treatment evaluation for Advil Extra Strength from Jun 1, 2011 Mar 07, 2012
grampa

Sex: M

Data Quality: 2 stars

Mood: Good

Cognition: Mild

Autonomic: Mild

Head: moderate

Arms: severe

Legs: moderate

Tremors: none

I am: vg

I have:
MSA
Stopped: Advil Extra Strength
- Stopped: Jun 1, 2011
- Reason: Other
grampa stopped taking the treatment Advil Extra Strength Mar 07, 2012
grampa

Sex: M

Data Quality: 2 stars

Mood: Good

Cognition: Mild

Autonomic: Mild

Head: moderate

Arms: severe

Legs: moderate

Tremors: none

I am: vg

I have:
MSA
Stopped: Obus Forme
- Stopped: Dec 20, 2011
- Reason: Other
grampa stopped taking the treatment Obus Forme Mar 07, 2012
grampa

Sex: M

Data Quality: 2 stars

Mood: Good

Cognition: Mild

Autonomic: Mild

Head: moderate

Arms: severe

Legs: moderate

Tremors: none

I am: vg

I have:
MSA
LSVT - Lee Silverman Voice Treatment Treatment Evaluation
- Perceived effectiveness for To improve/ maintain loudness, clarity and quality of speech: Major
- Perceived effectiveness for Support social interaction: Major
- Side Effects: None
- Adherence: Usually
- Burden: Not at all
Advice & Tips

very cost-effective speech therapy

Cost

< $25 monthly

grampa added a treatment evaluation for LSVT - Lee Silverman Voice Treatment Mar 07, 2012
grampa

Sex: M

Data Quality: 2 stars

Mood: Good

Cognition: Mild

Autonomic: Mild

Head: moderate

Arms: severe

Legs: moderate

Tremors: none

I am: vg

I have:
MSA
Magnesium Treatment Evaluation
- Perceived effectiveness for General health: ?Can't tell
- Perceived effectiveness for Constipation: Moderate
- Side Effects: None
- Adherence: Always
- Burden: Not at all
Advice & Tips

This is the only thing I'm taking for constipation. The trick is finding the right dosage to move from constipation toward regularity without moving to loose stools or diarrhea. It is a moving target.

Cost

< $25 monthly

grampa added a treatment evaluation for Magnesium Mar 07, 2012
grampa

Sex: M

Data Quality: 2 stars

Mood: Good

Cognition: Mild

Autonomic: Mild

Head: moderate

Arms: severe

Legs: moderate

Tremors: none

I am: vg

I have:
MSA
Pramipexole Treatment Evaluation
- Perceived effectiveness for Restless feeling in legs: Moderate
- Perceived effectiveness for MSA (Multiple System Atrophy): ?Can't tell
- Side Effects: None
- Adherence: Always
- Burden: Not at all
Advice & Tips

After no restless leg for over 3 years, my legs are jumpy in the 1-2 hours after getting out of bed, until my morning meds kick in (I presume)

Cost

< $25 monthly

grampa added a treatment evaluation for Pramipexole Mar 07, 2012
grampa

Sex: M

Data Quality: 2 stars

Mood: Good

Cognition: Mild

Autonomic: Mild

Head: moderate

Arms: severe

Legs: moderate

Tremors: none

I am: vg

I have:
MSA
Invacare Power Wheelchair
- - Started: Dec 20, 2011
  - Current Dosage: daily
- Purpose: Improve flexibility/strength and Improve mobility
- View Latest Evaluation
grampa updated the treatment Invacare Power Wheelchair Mar 07, 2012
- Added
  - Started: Dec 20, 2011
  - Dosage: daily
  - Purpose: Improve flexibility/strength, Strengthen neck muscles, and Improve mobility
  - Dec 20, 2011
- Evaluated
  - View Evaluation
  - Mar 07, 2012
grampa

Sex: M

Data Quality: 2 stars

Mood: Good

Cognition: Mild

Autonomic: Mild

Head: moderate

Arms: severe

Legs: moderate

Tremors: none

I am: vg

I have:
MSA

3 stars
grampa earned a star! Mar 07, 2012
grampa

Sex: M

Data Quality: 2 stars

Mood: Good

Cognition: Mild

Autonomic: Mild

Head: moderate

Arms: severe

Legs: moderate

Tremors: none

I am: vg

I have:
MSA

Very good
grampa added an InstantMe for Mar 6, 2012 Mar 06, 2012 10:22AM

My power chair has eliminated my neck-brace need. I have begun a new project on Canadian MSAA Support. And my weight stopped falling; instead, I gained 4 lbs.!
grampa

Sex: M

Data Quality: 2 stars

Mood: Good

Cognition: Mild

Autonomic: Mild

Head: moderate

Arms: severe

Legs: moderate

Tremors: none

I am: vg

I have:
MSA
Lactulose Treatment Evaluation
- Perceived effectiveness for Gas: Moderate
- Perceived effectiveness for Hard stool: Moderate
- Perceived effectiveness for Constipation: None
- Side Effects: None
- Adherence: Always
- Burden: A little
Advice & Tips

Replaced Lactulose with Tri-Magnesium tablets

Cost

< $25 monthly

grampa added a treatment evaluation for Lactulose from Nov 1, 2011 Mar 06, 2012
grampa

Sex: M

Data Quality: 2 stars

Mood: Good

Cognition: Mild

Autonomic: Mild

Head: moderate

Arms: severe

Legs: moderate

Tremors: none

I am: vg

I have:
MSA
Stopped: Lactulose
- Stopped: Nov 1, 2011
- Reason: Doctor's advice and Other
grampa stopped taking the treatment Lactulose Mar 06, 2012
grampa

Sex: M

Data Quality: 2 stars

Mood: Good

Cognition: Mild

Autonomic: Mild

Head: moderate

Arms: severe

Legs: moderate

Tremors: none

I am: vg

I have:
MSA
QOL
- Good Social
- Best Mental
- Bad Physical
grampa completed the QOL survey for Mar 6, 2012 Mar 06, 2012
grampa

Sex: M

Data Quality: 2 stars

Mood: Good

Cognition: Mild

Autonomic: Mild

Head: moderate

Arms: severe

Legs: moderate

Tremors: none

I am: vg

I have:
MSA
MDRS: 67
- moderate Head
- severe Arms
- moderate Legs
- none Tremors
- severe Balance
grampa completed the MDRS survey for Mar 6, 2012 Mar 06, 2012
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