17214-full
Serenitygal
Sex: F
Data Quality: 2 stars
ALS: 9 yrs
Bi-Pap Wheelchair Feeding tube
Bulbar: mild
Arms: moderate
Chest: mild
Legs: moderate
Serenitygal
Female, 64 years
Westbank, BC
Primary Condition
ALS and 1 more
First symptom
Diagnosis
Deceased
Oct 04, 2012
See more
  1. 17214-thumb
    Serenitygal
    Sex: F
    Data Quality: 2 stars
    Bulbar: mild
    Arms: moderate
    Chest: mild
    Legs: moderate
    I am: n
    I have:
    ALS

    FRS: 21

    • mild Head
    • moderate Arms
    • mild Torso
    • moderate Legs
    completed the FRS survey for May 23, 2012 May 23, 2012

    Tiredness, stress, trauma(falling)

  2. 17214-thumb
    Serenitygal
    Sex: F
    Data Quality: 2 stars
    Bulbar: mild
    Arms: moderate
    Chest: mild
    Legs: moderate
    I am: n
    I have:
    ALS

    Neutral

    added an InstantMe for May 23, 2012 May 23, 2012 3:39AM

    on the decline

  3. 17214-thumb
    Serenitygal
    Sex: F
    Data Quality: 2 stars
    Bulbar: mild
    Arms: moderate
    Chest: mild
    Legs: moderate
    I am: n
    I have:
    ALS

    QOL

    • Good Social
    • Good Mental
    • Bad Physical
    completed the QOL survey for Apr 19, 2012 Apr 20, 2012

    My quality of life is not improving. Confined to wheelchair now, not getting out much

  4. 17214-thumb
    Serenitygal
    Sex: F
    Data Quality: 2 stars
    Bulbar: mild
    Arms: moderate
    Chest: mild
    Legs: moderate
    I am: n
    I have:
    ALS

    FRS: 22

    • none Head
    • moderate Arms
    • mild Torso
    • moderate Legs
    completed the FRS survey for Apr 17, 2012 Apr 18, 2012

    generally doing to much and not getting enough rest as I live on my own, makes my ALS worse

  5. 17214-thumb
    Serenitygal
    Sex: F
    Data Quality: 2 stars
    Bulbar: mild
    Arms: moderate
    Chest: mild
    Legs: moderate
    I am: n
    I have:
    ALS

    FRS: 22

    • none Head
    • moderate Arms
    • mild Torso
    • moderate Legs
    completed the FRS survey for Apr 18, 2012 Apr 18, 2012

    My hands and legs are worse, weaker, I am mostly in a wheelchair now

  6. 17214-thumb
    Serenitygal
    Sex: F
    Data Quality: 2 stars
    Bulbar: mild
    Arms: moderate
    Chest: mild
    Legs: moderate
    I am: n
    I have:
    ALS

    QOL

    • Good Social
    • Good Mental
    • Bad Physical
    completed the QOL survey for Jan 14, 2012 Jan 15, 2012

    My quality of life is improving because I am keeping active with filming a few documentaries, advocating for things I believe in and raising money for ALS

  7. 17214-thumb
    Serenitygal
    Sex: F
    Data Quality: 2 stars
    Bulbar: mild
    Arms: moderate
    Chest: mild
    Legs: moderate
    I am: n
    I have:
    ALS

    FRS: 23

    • none Head
    • moderate Arms
    • mild Torso
    • moderate Legs
    completed the FRS survey for Jan 14, 2012 Jan 15, 2012

    Overdoing things and getting too tired makes my ALS worse

  8. 17214-thumb
    Serenitygal
    Sex: F
    Data Quality: 2 stars
    Bulbar: mild
    Arms: moderate
    Chest: mild
    Legs: moderate
    I am: n
    I have:
    ALS

    Albuterol Inhaler

      • Started: ?
      • Dosage: ?
    • Purpose: COPD
    added the treatment Albuterol Inhaler Jan 05, 2012

    I just have this on hand for emergencies, haven't had to use it yet.

  9. 17214-thumb
    Serenitygal
    Sex: F
    Data Quality: 2 stars
    Bulbar: mild
    Arms: moderate
    Chest: mild
    Legs: moderate
    I am: n
    I have:
    ALS

    COPD (Chronic Obstructive Pulmonary Disease)

    • First symptom: ?
    • Diagnosis: ?
    added the condition COPD (Chronic Obstructive Pulmonary Disease) Nov 02, 2011

    I would scream from the mountain tops about taking "RESPIRACTIN" a natural, good tasting remedy for lung problems and allergies. No allergies for 3 years now!!!! And... my lung function tests went from failing to above normal and have maintained for 2 1/2 years. Lots of family and friends have tried it, no more allergies and no more sinus problems etc etc. We cleanse all sorts of body parts but never think to cleanse our lungs, which need it more than a lot of the others. Try it, you'll like it. emoticon smile

  10. 17214-thumb
    Serenitygal
    Sex: F
    Data Quality: 2 stars
    Bulbar: mild
    Arms: moderate
    Chest: mild
    Legs: moderate
    I am: n
    I have:
    ALS

    Neutral

    added an InstantMe for Jun 12, 2011 Jun 12, 2011 3:26AM

    Things going downhill again but could be worse I guess

  11. 17214-thumb
    Serenitygal
    Sex: F
    Data Quality: 2 stars
    Bulbar: mild
    Arms: moderate
    Chest: mild
    Legs: moderate
    I am: n
    I have:
    ALS

    Neutral

    added an InstantMe for Jun 1, 2011 Jun 01, 2011 3:23AM

    hands, arms and body weaker, less use of hands

  12. 17214-thumb
    Serenitygal
    Sex: F
    Data Quality: 2 stars
    Bulbar: mild
    Arms: moderate
    Chest: mild
    Legs: moderate
    I am: n
    I have:
    ALS

    Neutral

    added an InstantMe for Mar 9, 2011 Mar 09, 2011 4:21AM

    Voice is okay now, hands slowly wasting away, hard to do things now

  13. 17214-thumb
    Serenitygal
    Sex: F
    Data Quality: 2 stars
    Bulbar: mild
    Arms: moderate
    Chest: mild
    Legs: moderate
    I am: n
    I have:
    ALS

    Good

    added an InstantMe for Dec 20, 2010 Dec 20, 2010 5:43AM

    I'm losing the use of my hands, body a lot weaker inability to do more things tired, overall not bad