Aturo's Journal

Aturo: Sex: M; Data Quality: 2 stars; MS: 3 yrs; Mentor; Type: Primary Progressive; Sensation: Moderate; Overall: Severe; Cognition: moderate; Vision: moderate; Speech: moderate; Swallowing: moderate; Upper limb: moderate; Walking: severe

Aturo: Male, 49 years; MI, United States

Primary Condition: MS and 2 more ▼

Type: Primary Progressive

First symptom: Sep 2009
Diagnosis: Jan 2010

Aturo

Sex: M

Data Quality: 2 stars

Sensation: Moderate

Overall: Severe

Cognition: moderate

Vision: moderate

Speech: moderate

Swallowing: moderate

Upper limb: moderate

Walking: severe

I am: g

I have:
MS
MS (Multiple Sclerosis)
- First symptom: Sep 1, 2009
- Diagnosis: Jan 4, 2010
Aturo updated the condition MS (Multiple Sclerosis) Apr 22, 2013

Along with the MS I have a Tag-a-Long called Huntingtons "Chorea" is a non genetic form of the disease although the outcome is the same. So, if your going to do something right, Do it RIGHT the First Time. emoticon smile
Aturo

Sex: M

Data Quality: 2 stars

Sensation: Moderate

Overall: Severe

Cognition: moderate

Vision: moderate

Speech: moderate

Swallowing: moderate

Upper limb: moderate

Walking: severe

I am: g

I have:
MS
MSRS: 78
- Moderate Cognition
- Moderate Vision
- Moderate Speech
- Moderate Swallowing
- Moderate Upper Limb
- Total Disability Walking
- Moderate Sensation
Aturo completed the MSRS survey for Apr 22, 2013 Apr 22, 2013
Aturo

Sex: M

Data Quality: 2 stars

Sensation: Moderate

Overall: Severe

Cognition: moderate

Vision: moderate

Speech: moderate

Swallowing: moderate

Upper limb: moderate

Walking: severe

I am: g

I have:
MS

2 stars
Aturo lost a star Mar 23, 2013
Aturo

Sex: M

Data Quality: 2 stars

Sensation: Moderate

Overall: Severe

Cognition: moderate

Vision: moderate

Speech: moderate

Swallowing: moderate

Upper limb: moderate

Walking: severe

I am: g

I have:
MS
MSRS: 82
- Moderate Cognition
- Moderate Vision
- Moderate Speech
- Moderate Swallowing
- Moderate Upper Limb
- Total Disability Walking
- Total Disability Sensation
Aturo completed the MSRS survey for Feb 17, 2013 Feb 17, 2013
I'm unable to walk at all any more. The Pain in my legs, for now are pretty rough.

I have had a exaserpation. That has kept me in bede for the past 6 days. No appitite. small drinks of water. Body slowing down. Triing to keep updeat and pooositive.

I'm SO VERY GREATFUL FOR ME FAMILY.... !!!! emoticon smile
Aturo

Sex: M

Data Quality: 2 stars

Sensation: Moderate

Overall: Severe

Cognition: moderate

Vision: moderate

Speech: moderate

Swallowing: moderate

Upper limb: moderate

Walking: severe

I am: g

I have:
MS
Symptom Update
- none Increased appetite
- severe Balance problems
- none Constant hunger
- moderate Dizziness
- none Injection site irritation
- severe Numbness and Tingling with Pins and Needles
- severe Stiffness/Spasticity
- moderate Brain fog
- severe Heat intolerance
- severe Muscle spasms in back
- moderate Pain
- none Weight gain
- mild Emotional lability
- moderate Fatigue
- severe Imbalance when walking
- none Mild side effects
- moderate Pins and needles
- severe Difficulty sleeping through night
- mild Anxious mood
- moderate Back pain
- none weight can be heavy use only ice packs that are needed
- none Flu like symptoms
- none Seizures (partial focal)
- severe Sleeplessness
- moderate Bladder problems
- none Injection site burning
- severe Mobility decreased
- moderate Pain in hips
- mild Bowel problems
- mild Depression with anxiety
- moderate Pain in legs
- moderate Dizziness (vertigo)
- severe Sexual dysfunction
- moderate Vertigo
- severe Insomnia
- moderate Mood swings
- severe Muscle spasms in legs
- moderate Pain in feet
- mild Depressed mood
- none Excessive daytime sleepiness (somnolence)
- none Injection site bruising
- See more
Aturo updated his symptoms for Sep 6, 2011 Feb 17, 2013
Aturo

Sex: M

Data Quality: 2 stars

Sensation: Moderate

Overall: Severe

Cognition: moderate

Vision: moderate

Speech: moderate

Swallowing: moderate

Upper limb: moderate

Walking: severe

I am: g

I have:
MS
Huntington's Disease
- First symptom: Jun 20, 2010
- Diagnosis: Aug 15, 2011
Aturo updated the condition Huntington's Disease Jan 04, 2013

I Have what is called Huntingtons Ballistic Chorea: a @aturo2@yahoo.cokmlong with Progressive Multiple Sclero
This is something that has scared everyone I have encountered when they see it in action. The muscle spasms get so intense that they have thrown me off my feet and even out of my wheelchair. I had one during a visit with another Pastor one day and it tossed me onto the floor.

Huntingtons also effect the Pulminanry System. BE SURE TO HAVE YOUR FLU AND
Pneumonia shot.
Aturo

Sex: M

Data Quality: 2 stars

Sensation: Moderate

Overall: Severe

Cognition: moderate

Vision: moderate

Speech: moderate

Swallowing: moderate

Upper limb: moderate

Walking: severe

I am: g

I have:
MS
Celexa
- - Started: Oct 15, 2010
  - Current Dosage: 40 mg daily
- Purpose: Huntington's and Emotional lability
Aturo updated the treatment Celexa Jan 04, 2013
Aturo

Sex: M

Data Quality: 2 stars

Sensation: Moderate

Overall: Severe

Cognition: moderate

Vision: moderate

Speech: moderate

Swallowing: moderate

Upper limb: moderate

Walking: severe

I am: g

I have:
MS
TIA (Transient Ischemic Attack)
- First symptom: Jun 20, 2010
- Diagnosis: Feb 19, 2012
Aturo updated the condition TIA (Transient Ischemic Attack) Dec 23, 2012

For me, was learning that with TIA's they can strike with no warning. WEAR a bracelet, or necklace letting people know that you have TIA's. Because of mine, I'm never left alone. I could crash to the floor become injured somehow or by accident start a fire in the kitchen while cooking. All because I Pass out cold. anytime, anywhere. Keep someone near you that understands your medical condition and needs.
Aturo

Sex: M

Data Quality: 2 stars

Sensation: Moderate

Overall: Severe

Cognition: moderate

Vision: moderate

Speech: moderate

Swallowing: moderate

Upper limb: moderate

Walking: severe

I am: g

I have:
MS
MSRS: 78
- Moderate Cognition
- Mild Vision
- Moderate Speech
- Moderate Swallowing
- Moderate Upper Limb
- Total Disability Walking
- Total Disability Sensation
Aturo completed the MSRS survey for Dec 22, 2012 Dec 22, 2012

Progresssive MS is hitting hard, the TIA's are having a blast with my head, and the Huntingtons "Chorea", has a very tight grip on my Back and Lungs. I'm in Hospice care now this is a home based service for me.
Aturo

Sex: M

Data Quality: 2 stars

Sensation: Moderate

Overall: Severe

Cognition: moderate

Vision: moderate

Speech: moderate

Swallowing: moderate

Upper limb: moderate

Walking: severe

I am: g

I have:
MS
Skelaxin Treatment Evaluation
- Perceived effectiveness for Muscle spasms: None
- Side Effects: None
- Adherence: Always
- Burden: A little
Advice & Tips

This did not work for me it was a change up from Baclofen. The Dr's. wanted to do a baclofen pump. I wanted something different. Currently on Ativan and Oral Morphine.

Cost

< $25 monthly

Aturo added a treatment evaluation for Skelaxin from Oct 15, 2012 Dec 23, 2012
Aturo

Sex: M

Data Quality: 2 stars

Sensation: Moderate

Overall: Severe

Cognition: moderate

Vision: moderate

Speech: moderate

Swallowing: moderate

Upper limb: moderate

Walking: severe

I am: g

I have:
MS

190 lb 3 oz BMI: 28.1
Aturo updated his weight for Dec 23, 2012 Dec 23, 2012
Aturo

Sex: M

Data Quality: 2 stars

Sensation: Moderate

Overall: Severe

Cognition: moderate

Vision: moderate

Speech: moderate

Swallowing: moderate

Upper limb: moderate

Walking: severe

I am: g

I have:
MS
Roxanol
- - Started: Dec 20, 2012
  - Current Dosage: 20mg/mL as needed
- Purpose:
Aturo updated the treatment Roxanol Dec 23, 2012
Aturo

Sex: M

Data Quality: 2 stars

Sensation: Moderate

Overall: Severe

Cognition: moderate

Vision: moderate

Speech: moderate

Swallowing: moderate

Upper limb: moderate

Walking: severe

I am: g

I have:
MS
Skelaxin
- - Stopped: Oct 15, 2012
  - Reason: Doctor's advice
  - Started: May 7, 2012
  - Last Dosage: 2400 mg daily
- Purpose: Muscle spasms
- View Latest Evaluation
Aturo updated the treatment Skelaxin Dec 23, 2012
- Added
  - Started: May 07, 2012
  - Dosage: 2400 mg daily
  - Purpose: Muscle spasms
  - May 07, 2012
- Stopped
  - Date: Oct 15, 2012
  - Reason: Doctor's advice
  - Oct 15, 2012
- Stopped
  - Date: Oct 15, 2012
  - Reason: Doctor's advice
  - Oct 15, 2012
- Evaluated
  - View Evaluation
  - Oct 15, 2012
Aturo

Sex: M

Data Quality: 2 stars

Sensation: Moderate

Overall: Severe

Cognition: moderate

Vision: moderate

Speech: moderate

Swallowing: moderate

Upper limb: moderate

Walking: severe

I am: g

I have:
MS
Medical marijuana
- - Started: May 7, 2011
  - Current Dosage: 3 INH daily
- Purpose: MS dementia (subcortical dementia), MS, and 5 more
- View Latest Evaluation
Aturo updated the treatment Medical marijuana Dec 23, 2012
- Added
  - Started: May 07, 2011
  - Dosage: 3INH as needed
  - Purpose: MS dementia (subcortical dementia), MS (Multiple Sclerosis), Stiffness/Spasticity, Pain, Pins and needles, Dizziness (vertigo), and Muscle spasms in back
  - May 07, 2011
- Evaluated
  - View Evaluation
  - Jul 12, 2011
- Evaluated
  - View Evaluation
  - Jul 31, 2011
- Evaluated
  - View Evaluation
  - Oct 17, 2011
- Evaluated
  - View Evaluation
  - Mar 15, 2012
Aturo

Sex: M

Data Quality: 2 stars

Sensation: Moderate

Overall: Severe

Cognition: moderate

Vision: moderate

Speech: moderate

Swallowing: moderate

Upper limb: moderate

Walking: severe

I am: g

I have:
MS
Symptom Update
- mild Anxious mood
- severe Back pain
- severe Balance problems
- severe Ballismus movements
- severe Bladder problems
- moderate Bowel problems
- moderate Brain fog
- severe Brain lesions
- severe Chorea movements
- mild Depressed mood
- mild Depression with anxiety
- severe Difficulty sleeping through night
- mild Dizziness
- severe Dizziness (vertigo)
- mild Emotional lability
- severe Excessive daytime sleepiness (somnolence)
- severe Fatigue
- severe Heat intolerance
- severe Imbalance when walking
- severe Insomnia
- severe Mobility decreased
- mild Mood swings
- severe Muscle spasms
- severe Muscle spasms in back
- severe Muscle spasms in legs
- severe Numbness and Tingling with Pins and Needles
- severe Pain
- severe Pain in feet
- moderate Pain in hips
- moderate Pain in legs
- mild Paralysis of all four limbs (quadriplegia)
- severe Pins and needles
- none Seizures (partial focal)
- severe Sexual dysfunction
- moderate Sleeplessness
- severe Stiffness/Spasticity
- moderate Vertigo
- severe MS dementia (subcortical dementia)
- See more
Aturo updated his symptoms for Dec 23, 2012 Dec 23, 2012
Aturo

Sex: M

Data Quality: 2 stars

Sensation: Moderate

Overall: Severe

Cognition: moderate

Vision: moderate

Speech: moderate

Swallowing: moderate

Upper limb: moderate

Walking: severe

I am: g

I have:
MS
Hospitalization for Huntington's Disease, MS dementia (subcortical dementia), and Huntingtons Chorea
- Discharged: Nov 6, 2012
Aturo added a hospitalization for Huntington's Disease, MS dementia (subcortical dementia), and Huntingtons Chorea Dec 23, 2012
Aturo

Sex: M

Data Quality: 2 stars

Sensation: Moderate

Overall: Severe

Cognition: moderate

Vision: moderate

Speech: moderate

Swallowing: moderate

Upper limb: moderate

Walking: severe

I am: g

I have:
MS
Hospitalization for Relapse MS (exacerbation)
- Discharged: Oct 31, 2012
Aturo added a hospitalization for Relapse MS (exacerbation) Dec 23, 2012
Aturo

Sex: M

Data Quality: 2 stars

Sensation: Moderate

Overall: Severe

Cognition: moderate

Vision: moderate

Speech: moderate

Swallowing: moderate

Upper limb: moderate

Walking: severe

I am: g

I have:
MS
QOL
- Bad Social
- Good Mental
- Worst Physical
Aturo completed the QOL survey for Dec 22, 2012 Dec 22, 2012
Aturo

Sex: M

Data Quality: 2 stars

Sensation: Moderate

Overall: Severe

Cognition: moderate

Vision: moderate

Speech: moderate

Swallowing: moderate

Upper limb: moderate

Walking: severe

I am: g

I have:
MS

3 stars
Aturo earned a star! Dec 23, 2012
Aturo

Sex: M

Data Quality: 2 stars

Sensation: Moderate

Overall: Severe

Cognition: moderate

Vision: moderate

Speech: moderate

Swallowing: moderate

Upper limb: moderate

Walking: severe

I am: g

I have:
MS
MSRS: 67
- Moderate Cognition
- Moderate Vision
- Mild Speech
- Mild Swallowing
- Moderate Upper Limb
- Total Disability Walking
- Mild Sensation
Aturo completed the MSRS survey for Aug 19, 2012 Aug 19, 2012

Medical Marijuana, and Ativan, to reduce spasms. Clexia, to help with the mood swings and depression.
1 comment from other members. Only showing public users' comments. Sign up to see all comments!
- Aturo
  
  Weather has a lot to do with this also. Sunny days and comfortable not hot, Barometric Pressure can play havoc with your body.
  
  about 9 months ago
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