I went to the rheumatologist today. For the last 4 weeks with only a 3 day break I have woke up with swollen lips, they itch during the day some days and then look horrible in the morning, after several days the corners of my mouth start cracking & it's hard to eat & brush my teeth. Then it get numb in the corners and I can't tell that I'm drooling. There are bubbles around the edge at times like poison ivy and they bust if I scratch or rub my lips together. The NP suggested zyrtec, that didn't work so its' not an allergy. I asked that she do a test for autoimmune and the ANA came back positive. 9 days later she finally called in a script for a lupus panel, but the day I had it done my symptoms were almost gone (right before the 3 day break). It was negative. Fluorescent lights have bothered me for the last 4 years, I take Gabapentin to control the things they do to my brain, but it doesn't keep them from breaking my body down. I am at 2 jobs that keep me under them for 8 hrs a day. I'm hoping that once I quit one of the jobs later this month that it will help me heal. But I want answers as well. Everything I keep researching points met o autoimmune, namely lupus. It's not what I want, but I'd rather have a name to what I have then wonder. He's waiting on the last test results before ordering more, next time I go in to get blood drawn I will make sure I'm in the middle of this mess so hopefully something shows
My joint pain has come back. I have itching, then wake up the next morning with swelling of my lips so bad that I'm uncomfortable all the time. The swelling goes down some during the day but returns in the night. It's been going on since I got up Saturday morning. My nurse practitioner started me out on Zertec to see if it would respond. It doesn't appear to be an allergy because there is no change. I have looked up what it might be and the closest thing I can find is Angioedema. I'm waiting for the results to come back from my ANA test to see if an autoimmune issue shows up. The itching starts while I'm at work, I work at 2 different schools in the cafeteria area so there is no carpet or materials that could hold anything I could be allergic to anyway.
I've been having problems w/exhaustion & pain since March '09. We've finally figured out what part was thyroid trouble & gall bladder. 12/10 The rheumatologist said that I have fibro & UV sensitivity. I think I have a Lupus type thing but it won't show on tests & thank God the rash is staying away. My platelets are lower then normal & were dropping in '09. Yoga, exercise & foot bath detox help the most. For muscle weakness I drink sugar-free AMP & Monster. 1 can a day & over a period of 2 hrs while I'm at work. 5/9/11 I have Celiac disease, self diagnosed. I feel 80% better on the diet!
It has been a nightmare but I am much better. I have fought to find answers and do a lot of research on my own. When I'd build a list of symptoms & matched it with an ailment I would ask the doctor to check & rule it out. Once I was diagnosed with fibromyalgia and I realized I had an auto-immune disease (even though they couldn't find it in blood tests) I started researching natural remedies. The foot bath detox is excellent! I can't begin to tell about what it's done in the way of helping joint pain, body aches, skin tenderness & exhaustion! My machine broke 2 wks ago and I'm going back down hill again after a couple months of feeling normal. That is thanks to finding I'm horribly allergic to gluten & going on a gluten-free diet :) I've also slept much better b/c of the diet and school being out so the kids let me sleep. I list yoga in here b/c if you have muscle spasms or stiff joints & you do yoga it will pull all of that out! When I was at my worst I'd force myself to do a beginners yoga dvd all the way through a session & I would get up feeling almost like a new person. Fluorescent lights really bother me & I lost my job at a tax office because of them. They mess with my concentration & ability to read numbers. Some computer screens flash & that makes it even harder. Sunlight is fine but if I am under those bulbs for 3 hrs up & they are right overhead I turn red & am a mess mentally & emotionally. Physically I hurt for the next couple of days. I had an EEG done 11/11 & it showed abnormal readings but not seizures. The doctor put me on gabapentin & it is doing wonders with concentration and has gotten rid of almost all my symptoms due to flickering lights & computer screens.
My sister also has fibromyalgia and is dealing with a lupus type ailment. It is REALLY hard on her because of her long stressful hrs at work. We have learned to leave our family out of our daily pain & frustrations & text each other with complaints of pain & anything else going on. It takes a load off the family & we know we are talking to someone who understands. I really only talk to my husband about it if I have a new symptom I've had checked out or I've been to the doctor & he needs to know something. It seems to work better that way for both of us. I don't always feel I'm whining & he knows when I say something about it that it's really gotten worse or there's a new development he needs to know about.
I am tired all the time. I started taking Cymbalta and it seems to have messed up my sleep and now I'm tired and just want to lay around. I don't sleep for very long though when I do lay down. I took 3 naps yesterday! I does help the depression tho. I don't cry or feel sad now anyway. I'll be glad when school starts next month so I can go back to work and start taking classes again
I started taking cymbolta yday. I was fine most of the day then last nite I got sick and dizzy really fast. I couldn't sleep very well & I felt like I was floating. Today Ive been dizzy & tired. I wouldn't mess with it but my depression and saddness has got to go. There is not really any reason for it so I figure it's fibro.
Since last Thurday I have been bruised and they are spreading. I was exhausted to the point of not being able to keep my eyes open until yesterday. Ive felt much better but the bruising isn't going away. I called the hemetologist and left a message last nite. I wonder if I should call the NP and get a blood test for platlet count again. I'm so glad I got my tattoo when I did. It was perfect timing
I don't have pain other then yesterday when I had shooting pains up the side of my neck which alerted me to thyroid issues. I've been feeling dead inside for the last few wks. I can smile & laugh on the outside, but have none of the feeling inside, I haven't even been angy or frustrated, just empty. I think its contected to thyroid & I'll be glad to get it straightened out! I have to up the dose of Metabolic Advantage for a couple weeks and it evens me out. I forgot to bring it on vacation so that explains alot. The generic Neurontin throws the thyroid off & I took that while I was gone but no Thyroid supplement. Here's praying that's the problem and it's not fibro depression
- mild Allergies
- mild Anxious mood
- none Arthritis pain
- mild Balance problems
- mild Bowel irritability
- mild Brain fog
- severe Depressed mood
- severe Fatigue
- none feels like mini seizures or strokes
- none Headaches
- mild Insomnia
- mild Left eye flickering
- none Memory problems
- none Migraine headaches
- moderate Multiple tender areas
- none Muscle and joint pain
- none Muscle spasms
- mild Muscle spasms in back
- none Muscle weakness
- mild Neck pain
- none Numbness and Tingling
- mild Pain
- none Pain in ear
- mild Pain in lower back
- none Pain in shoulders
- none Rashes (redness, swelling)
- none Raynaud's phenomenon
- none Restless feeling in legs
- none Seizures (absence or petit mal)
- none Spasms in jaw
- none Swelling in legs, feet and ankles
- none TMJ (Temporomandibular joint) pain
- none Vitamin D deficiency
- none Water retention
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We went on a 6 day vacation and got back wednesday evening! The only time i had pain was the 1st day driving down. After that I did great even walking alot on the beach and staying up late. I know it was because there were no demands or stress. The kids even did great! Even my girl with disabilities enjoyed herself & didn't mind the changes. I got a tattoo on my foot the evening before we left and I didn't have any bleeding or fibro pain in other areas. Yday I took 2 naps and today I was tired but caffiene helped me get alot done. I'm draggin now but it's about bedtime emoticon smile
My lower back has been in knots since this morning. Now I cant sit, stand, or lay any way that doesn't hurt. My sister said she's had a horrible day so I told her to take a pain pill, not even remembering I have some to take. DUH! I feel a little better now & hope to sleep soon. I layed down for about an hr at 8pm, it helped the exhaustion. I haven't had a period in exactly 7wks. I've spoted old stuff off and on since last Wed but nothing that really even needs a pad. We're going on vacation in 2 days and I feel HUGE. I was doing so well last week too.
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