27338-full
gridly1
Sex: F
Data Quality: 1 star
Pain: All
Fatigue: All
Sleep: All
Stiffness: All
function: None
external_stress: All
Stickman: all
Description:F53y
FM:4y Dx
CFS:?y
gridly1
Female, 53 years
Wilmette, IL
Primary Condition
CFS and 13 more
First symptom
Diagnosis
Undiagnosed
See more
  1. 27338-thumb
    gridly1
    Sex: F
    Data Quality: 1 star
    Pain: All
    Fatigue: All
    Sleep: All
    Stiffness: All
    function: None
    external_stress: All
    Stickman: all
    Description:F53y
    CFS:?y
    FM:4y Dx
    I am: b
    I have:
    CFS

    Bad

    added an InstantMe for Jun 17, 2013 Jun 17, 2013 1:51AM

    With FM, there is NO normal!

  2. 27338-thumb
    gridly1
    Sex: F
    Data Quality: 1 star
    Pain: All
    Fatigue: All
    Sleep: All
    Stiffness: All
    function: None
    external_stress: All
    Stickman: all
    Description:F53y
    CFS:?y
    FM:4y Dx
    I am: b
    I have:
    CFS

    Bad

    added an InstantMe for Jun 1, 2013 Jun 01, 2013 2:47AM

    17 days since magnesium l-threonate. Praise God , I had about 90 minutes through the day that i wasn't over whelmed by discomfort. I'm laughing more +evan have glimpses of creativity. My son accused me of Bi-Polor! In Nov. '12, I purchased a used sewing machine w/out a control foot peddle, which I've not had funds +momentum to purchase yet. Creativity/Imagination and Hygiene are Barometers of health for me. Showering is extremely strenuous, so I only do it every 4-7 days. I would like to get up the strength to henna my hair again too. I have continuous hot flashes after a shower, which makes me feel it to be a waste.

  3. 27338-thumb
    gridly1
    Sex: F
    Data Quality: 1 star
    Pain: All
    Fatigue: All
    Sleep: All
    Stiffness: All
    function: None
    external_stress: All
    Stickman: all
    Description:F53y
    CFS:?y
    FM:4y Dx
    I am: b
    I have:
    CFS

    Migraine

    • First symptom:
    • Diagnosis:
    updated the condition Migraine Jun 01, 2013
  4. 27338-thumb
    gridly1
    Sex: F
    Data Quality: 1 star
    Pain: All
    Fatigue: All
    Sleep: All
    Stiffness: All
    function: None
    external_stress: All
    Stickman: all
    Description:F53y
    CFS:?y
    FM:4y Dx
    I am: b
    I have:
    CFS

    Bad

    added an InstantMe for Jun 1, 2013 Jun 01, 2013 2:22AM
  5. 27338-thumb
    gridly1
    Sex: F
    Data Quality: 1 star
    Pain: All
    Fatigue: All
    Sleep: All
    Stiffness: All
    function: None
    external_stress: All
    Stickman: all
    Description:F53y
    CFS:?y
    FM:4y Dx
    I am: b
    I have:
    CFS

    Bad

    added an InstantMe for May 22, 2013 May 22, 2013 6:03PM

    Since I started the MagMind, Magnesium L-Threonate on May 14th, I have had better moods, my brain is sharper, and the RLS is all but Gone!
    Everything hurts,I hate that I am so used to SO many nagging symptoms, but Today, the pain is at least manageable and I'm emotionally encouraged! Praise God!
    Unfortunately there is not a category between good and neutral or bad and Very Bad. Plus Neutral does not effectively describe an degree of intensity of feeling, pain or discomfort.

  6. 27338-thumb
    gridly1
    Sex: F
    Data Quality: 1 star
    Pain: All
    Fatigue: All
    Sleep: All
    Stiffness: All
    function: None
    external_stress: All
    Stickman: all
    Description:F53y
    CFS:?y
    FM:4y Dx
    I am: b
    I have:
    CFS

    Hypothyroidism

    • First symptom:
    • Diagnosis:
    updated the condition Hypothyroidism May 22, 2013
  7. 27338-thumb
    gridly1
    Sex: F
    Data Quality: 1 star
    Pain: All
    Fatigue: All
    Sleep: All
    Stiffness: All
    function: None
    external_stress: All
    Stickman: all
    Description:F53y
    CFS:?y
    FM:4y Dx
    I am: b
    I have:
    CFS

    Eszopiclone Treatment Evaluation

    • Perceived effectiveness for Primary Insomnia: Led_efficacy_1Led_defaultLed_defaultLed_defaultNone
    • Side Effects: NoneNoneNoneNoneNone
    • Adherence: AlwaysAlwaysAlwaysAlwaysAlways
    • Burden: Not at allNot at allNot at allNot at allNot at all
    added a treatment evaluation for Eszopiclone from Jul 1, 2002 May 17, 2013
    2 comments from other members. Only showing public users' comments. Sign up to see all comments!
    • 27338-thumb

      Hi Daflower,
      The Lunesta did not work for me because I have the MTHFR mutation. FMers EEGs indicate under-stimulated Cerebellum (the brains movement control center) Hence RLS, etc. This is explained by Dr. St. Amand's FM Theory. ie; Guaifenesin protocol/ Theory of fibromyalgia cause- This theory involves phosphate accumulation in cells that eventually reach a level to impede the ATP process, possibly caused by a kidney dysfunction or missing enzyme that prevents the removal of excess phosphates from the blood stream. This theory posits that fibromyalgia is an inherited disorder, and that phosphate build up in cells is gradual (but can be accelerated by trauma or illness). Calcium is required to buffer the excess phosphate when it enters the cells. The additional phosphate slows down the ATP process; however the excess calcium prods the cell to action. Dr. St Amand goes on to say in his book "What Your Doctor May Not Have Told You About Fibromyalgia" that then the cells become exhausted…thus in the brain, leading to Insomnia etc. http://en.wikipedia.org/wiki/Guaifenesin_protocol

      about 4 weeks ago
  8. 27338-thumb
    gridly1
    Sex: F
    Data Quality: 1 star
    Pain: All
    Fatigue: All
    Sleep: All
    Stiffness: All
    function: None
    external_stress: All
    Stickman: all
    Description:F53y
    CFS:?y
    FM:4y Dx
    I am: b
    I have:
    CFS

    Vicodin Treatment Evaluation

    • Perceived effectiveness for Anxious mood: Led_efficacy_3Led_efficacy_3Led_efficacy_3Led_defaultModerate
    • Side Effects: ModerateModerateModerateModerateModerate
    • Adherence: AlwaysAlwaysAlwaysAlwaysAlways
    • Burden: Not at allNot at allNot at allNot at allNot at all
    added a treatment evaluation for Vicodin from Jul 1, 2002 May 17, 2013
  9. 27338-thumb
    gridly1
    Sex: F
    Data Quality: 1 star
    Pain: All
    Fatigue: All
    Sleep: All
    Stiffness: All
    function: None
    external_stress: All
    Stickman: all
    Description:F53y
    CFS:?y
    FM:4y Dx
    I am: b
    I have:
    CFS

    Pregabalin Treatment Evaluation

    • Perceived effectiveness for Fibromyalgia: Led_efficacy_1Led_defaultLed_defaultLed_defaultNone
    • Perceived effectiveness for Chronic Fatigue Syndrome: Led_efficacy_1Led_defaultLed_defaultLed_defaultNone
    • Side Effects: ModerateModerateModerateModerateModerate
    • Adherence: AlwaysAlwaysAlwaysAlwaysAlways
    • Burden: Not at allNot at allNot at allNot at allNot at all
    added a treatment evaluation for Pregabalin from Jul 1, 2009 May 17, 2013
  10. 27338-thumb
    gridly1
    Sex: F
    Data Quality: 1 star
    Pain: All
    Fatigue: All
    Sleep: All
    Stiffness: All
    function: None
    external_stress: All
    Stickman: all
    Description:F53y
    CFS:?y
    FM:4y Dx
    I am: b
    I have:
    CFS

    Olanzapine Treatment Evaluation

    • Perceived effectiveness for Psychosis Disorder: Led_efficacy_2Led_efficacy_2Led_defaultLed_defaultSlight
    • Side Effects: NoneNoneNoneNoneNone
    • Adherence: AlwaysAlwaysAlwaysAlwaysAlways
    • Burden: Not at allNot at allNot at allNot at allNot at all
    added a treatment evaluation for Olanzapine from Jul 1, 2000 May 17, 2013
  11. 27338-thumb
    gridly1
    Sex: F
    Data Quality: 1 star
    Pain: All
    Fatigue: All
    Sleep: All
    Stiffness: All
    function: None
    external_stress: All
    Stickman: all
    Description:F53y
    CFS:?y
    FM:4y Dx
    I am: b
    I have:
    CFS

    Vicodin

    updated the treatment Vicodin May 17, 2013
    • Evaluated
    • Stopped
      • Date: Jul 01, 2002
      • Reason: Course of treatment ended
      • Jul 01, 2002
    • Stopped
      • Date: Jul 01, 2002
      • Reason: Change in health plan coverage
      • Jul 01, 2002
    • Added
      • Started: Jul 12, 2011
      • Dosage: 500mg-5mg as needed
      • Purpose: Anxious mood
      • Jul 12, 2011
  12. 27338-thumb
    gridly1
    Sex: F
    Data Quality: 1 star
    Pain: All
    Fatigue: All
    Sleep: All
    Stiffness: All
    function: None
    external_stress: All
    Stickman: all
    Description:F53y
    CFS:?y
    FM:4y Dx
    I am: b
    I have:
    CFS

    Pregabalin

      • Stopped: Jul 01, 2009
      • Reason: Side effects too severe
      • Started: Jul 1, 2009
      • Last Dosage: 50 mg daily
    • Purpose: CFS and Fibromyalgia
    • View Latest Evaluation
    updated the treatment Pregabalin May 17, 2013
    • Added
      • Started: Jul 01, 2009
      • Dosage: 50 mg daily
      • Purpose: Chronic Fatigue Syndrome and Fibromyalgia
      • Jul 01, 2009
    • Stopped
      • Date: Jul 01, 2009
      • Reason: Side effects too severe
      • Jul 01, 2009
    • Stopped
      • Date: Jul 01, 2009
      • Reason: Side effects too severe
      • Jul 01, 2009
    • Evaluated
  13. 27338-thumb
    gridly1
    Sex: F
    Data Quality: 1 star
    Pain: All
    Fatigue: All
    Sleep: All
    Stiffness: All
    function: None
    external_stress: All
    Stickman: all
    Description:F53y
    CFS:?y
    FM:4y Dx
    I am: b
    I have:
    CFS

    Olanzapine

      • Stopped: Aug 15, 2000
      • Reason: Did not seem to work
      • Started: Jan 15, 2000
      • Last Dosage: 20 mg daily
    • Purpose: Psychotic Disorder
    • View Latest Evaluation
    updated the treatment Olanzapine May 17, 2013
    • Added
      • Started: Jan 15, 2000
      • Dosage: 10 mg daily
      • Purpose: Psychosis Disorder
      • Jan 15, 2000
    • Stopped
      • Date: Jul 01, 2000
      • Reason: Did not seem to work and Side effects too severe
      • Jul 01, 2000
    • Evaluated
    • Restarted
      • Dosage: 20 mg daily
      • Jul 15, 2000
    • Stopped
      • Date: Aug 15, 2000
      • Reason: Did not seem to work
      • Aug 15, 2000
  14. 27338-thumb
    gridly1
    Sex: F
    Data Quality: 1 star
    Pain: All
    Fatigue: All
    Sleep: All
    Stiffness: All
    function: None
    external_stress: All
    Stickman: all
    Description:F53y
    CFS:?y
    FM:4y Dx
    I am: b
    I have:
    CFS

    Eszopiclone

      • Stopped: Jul 15, 2002
      • Reason: Did not seem to work
      • Started: Jul 10, 2002
      • Last Dosage: 2 mg daily
    • Purpose: Primary Insomnia
    • View Latest Evaluation
    updated the treatment Eszopiclone May 17, 2013
    • Evaluated
    • Stopped
      • Date: Jul 01, 2002
      • Reason: Did not seem to work
      • Jul 01, 2002
    • Added
      • Started: Jul 10, 2002
      • Dosage: 2 mg daily
      • Purpose: Primary Insomnia
      • Jul 10, 2002
    • Stopped
      • Date: Jul 15, 2002
      • Reason: Did not seem to work
      • Jul 15, 2002
  15. 27338-thumb
    gridly1
    Sex: F
    Data Quality: 1 star
    Pain: All
    Fatigue: All
    Sleep: All
    Stiffness: All
    function: None
    external_stress: All
    Stickman: all
    Description:F53y
    CFS:?y
    FM:4y Dx
    I am: b
    I have:
    CFS

    Magnesium L-threonate

      • Started: May 14, 2013
      • Current Dosage: 1 capsule(s) daily
    • Purpose: General health, Support brain health, and Restless Legs
    updated the treatment Magnesium L-threonate May 17, 2013
    • Added
      • Started: May 14, 2013
      • Dosage: 2 capsule(s) daily
      • Purpose: General health, Support brain health, and RLS (Restless Legs Syndrome)
      • May 14, 2013
    • Changed Dosage
      • Dosage: 1 capsule(s) daily
      • May 17, 2013
  16. 27338-thumb
    gridly1
    Sex: F
    Data Quality: 1 star
    Pain: All
    Fatigue: All
    Sleep: All
    Stiffness: All
    function: None
    external_stress: All
    Stickman: all
    Description:F53y
    CFS:?y
    FM:4y Dx
    I am: b
    I have:
    CFS

    RLS (Restless Legs Syndrome)

    • First symptom: ?
    • Diagnosis: ?
    updated the condition RLS (Restless Legs Syndrome) May 17, 2013
  17. 27338-thumb
    gridly1
    Sex: F
    Data Quality: 1 star
    Pain: All
    Fatigue: All
    Sleep: All
    Stiffness: All
    function: None
    external_stress: All
    Stickman: all
    Description:F53y
    CFS:?y
    FM:4y Dx
    I am: b
    I have:
    CFS

    Chronic Fatigue Syndrome

    • First symptom:
    • Diagnosis: ?
    updated the condition Chronic Fatigue Syndrome May 17, 2013
  18. 27338-thumb
    gridly1
    Sex: F
    Data Quality: 1 star
    Pain: All
    Fatigue: All
    Sleep: All
    Stiffness: All
    function: None
    external_stress: All
    Stickman: all
    Description:F53y
    CFS:?y
    FM:4y Dx
    I am: b
    I have:
    CFS

    Mood Map

    • Function
    • Distress
    • External Stress
    • Depression
    • Emotional
    • Compulsion
    • Anxiety
    • Mania
    completed the Mood Map survey for May 15, 2013 May 15, 2013
  19. 27338-thumb
    gridly1
    Sex: F
    Data Quality: 1 star
    Pain: All
    Fatigue: All
    Sleep: All
    Stiffness: All
    function: None
    external_stress: All
    Stickman: all
    Description:F53y
    CFS:?y
    FM:4y Dx
    I am: b
    I have:
    CFS

    Bad

    added an InstantMe for May 8, 2013 May 08, 2013 11:01PM

    still really bad!

  20. 27338-thumb
    gridly1
    Sex: F
    Data Quality: 1 star
    Pain: All
    Fatigue: All
    Sleep: All
    Stiffness: All
    function: None
    external_stress: All
    Stickman: all
    Description:F53y
    CFS:?y
    FM:4y Dx
    I am: b
    I have:
    CFS

    Bad

    added an InstantMe for May 7, 2013 May 07, 2013 1:28AM

    I am thankful that i have felt only bad recently rather than Very Bad. This is a Horrible existence!

  21. Show more