PatientsLikeMe ™

7/08/10

This has been a very long 10 months for me in some ways and other ways it has flown!  One day I was fine doing my normal daily activities. The next day, my 47 BD! 10-04-09 I woke up with  numbness on complete left side stopping at left  shin. The whole top of my head was covered like a metal cap pushing down. It came down and covered my left eye brow. Worse next day. Stroke? 

No way! I just had a physical two weeks before! Doc said I was the most fit 47 year old she had seen! Haven't even had a cold in 6 years!

Many Mri's and Cats later, Nero finds aneurysms in small veins in front right side of my brain. AND MRI's also found MS!

After observing me two days, it was decided surgery was too risky. 80% chance of losing total use of all left side.

I was told I could go home if I agreed to listen to terms. Sit in recliner propped up, don't lay flat, don't cry, don't laugh too hard, be calm, no stress. I was allowed to use bath, but other wise sit tight. The plan was to wait to see if aneurysms would heal on their own. If not, we would try radiation treatment.

By end of October 09, I could no longer walk with out help, I have gone down hill sooo fast, I'm really starting to be alarmed!

The MS symps are severe 24/7. I haven't had 1 min free of multi symps.

Have lost most of my sight in left eye. Symps no longer on only Left.

I feel like I'm a guinea pig........

I have been to so many Doc/Neros in the past 10 mo I can't begin to name them

all! I'm "STILL" sitting here on this recliner, still testing at Duke, 4.5 hours from

home, still no more answers!!  So, I wait........WITH, CABIN FEVER!!!!!!!!!!

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But WAIT!!! A new plan has been formed just for me!

My oldest son has been in the Navy for 10 years. He is based in Hawaii.

He has bought me  one way ticket to come and stay with him while Doctors in

Hawaii  check out the bleeds in my brain. And get yet another opinion on PPMS.

We know there aren't any MS specialist there from what we can find.

If nothing else, I will be pampered and be able to enjoy the beautiful sights of 

the island : )

I leave on the 2nd and that isn't that far off. I need to start packing the 2

suitcases 50 lbs each that I get to tke with me!

Now how in the world do I fit my house into those 2 small spaces????

My son says mom, I'll buy you more just come I have your room almost ready.

I wonder how my MS and CVMs  will hbdle the flight and the new climate going

from SC to Hawaii?

At any rate I will adjust n love the new views of crystal waters and enjoy digging

my toes in the sand

Will be much better having a way to get out of the house!

I can only get out here when I go to the Doctor. I'm READY!!!