1. 10013-thumb
    ava
    Sex: F
    Data Quality: 1 star
    Bulbar: mild
    Arms: severe
    Chest: mild
    Legs: moderate
    I am: vg
    I have:
    ALS

    ava added a new Forced Vital Capacity Percentage value for

    • Forced Vital Capacity Percentage: 36 %
  2. 10013-thumb
    ava
    Sex: F
    Data Quality: 1 star
    Bulbar: mild
    Arms: severe
    Chest: mild
    Legs: moderate
    I am: vg
    I have:
    ALS

    ava completed the FRS survey

    • FRS: 16
    • mild Head
    • severe Arms
    • mild Torso
    • moderate Legs
  3. 10013-thumb
    ava
    Sex: F
    Data Quality: 1 star
    Bulbar: mild
    Arms: severe
    Chest: mild
    Legs: moderate
    I am: vg
    I have:
    ALS

    ava completed the QOL survey

  4. 10013-thumb
    ava
    Sex: F
    Data Quality: 1 star
    Bulbar: mild
    Arms: severe
    Chest: mild
    Legs: moderate
    I am: vg
    I have:
    ALS

    ava updated her basic information

  5. 10013-thumb
    ava
    Sex: F
    Data Quality: 1 star
    Bulbar: mild
    Arms: severe
    Chest: mild
    Legs: moderate
    I am: vg
    I have:
    ALS

    ava was in the hospital for Kidney stone

    Dates
    -
  6. 10013-thumb
    ava
    Sex: F
    Data Quality: 1 star
    Bulbar: mild
    Arms: severe
    Chest: mild
    Legs: moderate
    I am: vg
    I have:
    ALS

    ava was in the hospital for Sepsis, Kidney stone, and UTI (Urinary Tract Infection)

    Dates
    -
  7. 10013-thumb
    ava
    Sex: F
    Data Quality: 1 star
    Bulbar: mild
    Arms: severe
    Chest: mild
    Legs: moderate
    I am: vg
    I have:
    ALS

    ava added UTI (Urinary Tract Infection)

    • First symptom: ?
    • Diagnosis: ?
  8. 10013-thumb
    ava
    Sex: F
    Data Quality: 1 star
    Bulbar: mild
    Arms: severe
    Chest: mild
    Legs: moderate
    I am: vg
    I have:
    ALS

    ava added Kidney stone

    • First symptom: ?
    • Diagnosis: ?
  9. 10013-thumb
    ava
    Sex: F
    Data Quality: 1 star
    Bulbar: mild
    Arms: severe
    Chest: mild
    Legs: moderate
    I am: vg
    I have:
    ALS

    ava added Sepsis

    • First symptom: ?
    • Diagnosis: ?
  10. 10013-thumb
    ava
    Sex: F
    Data Quality: 1 star
    Bulbar: mild
    Arms: severe
    Chest: mild
    Legs: moderate
    I am: vg
    I have:
    ALS

    ava was feeling very good

  11. 10013-thumb
    ava
    Sex: F
    Data Quality: 1 star
    Bulbar: mild
    Arms: severe
    Chest: mild
    Legs: moderate
    I am: vg
    I have:
    ALS

    ava updated the treatment Clinical check-up

    • Started:
    • Current Dosage: every 3 months
  12. 10013-thumb
    ava
    Sex: F
    Data Quality: 1 star
    Bulbar: mild
    Arms: severe
    Chest: mild
    Legs: moderate
    I am: vg
    I have:
    ALS

    ava updated the treatment Blood test

    • Started:
    • Current Dosage: as needed
  13. 10013-thumb
    ava
    Sex: F
    Data Quality: 1 star
    Bulbar: mild
    Arms: severe
    Chest: mild
    Legs: moderate
    I am: vg
    I have:
    ALS

    ava updated the treatment Zocor

    • Started:
    • Current Dosage: 20 mg daily
  14. 10013-thumb
    ava
    Sex: F
    Data Quality: 1 star
    Bulbar: mild
    Arms: severe
    Chest: mild
    Legs: moderate
    I am: vg
    I have:
    ALS

    ava updated the treatment Zocor

    • Started:
    • Current Dosage: 20 mg daily
  15. 10013-thumb
    ava
    Sex: F
    Data Quality: 1 star
    Bulbar: mild
    Arms: severe
    Chest: mild
    Legs: moderate
    I am: vg
    I have:
    ALS

    ava updated the treatment Protonix

    • Started:
    • Current Dosage: 40 mg daily
  16. 10013-thumb
    ava
    Sex: F
    Data Quality: 1 star
    Bulbar: mild
    Arms: severe
    Chest: mild
    Legs: moderate
    I am: vg
    I have:
    ALS

    ava updated the treatment Protonix

    • Started:
    • Current Dosage: 40 mg daily
  17. 10013-thumb
    ava
    Sex: F
    Data Quality: 1 star
    Bulbar: mild
    Arms: severe
    Chest: mild
    Legs: moderate
    I am: vg
    I have:
    ALS

    star earnedstar not earnedstar not earned ava earned a star!

  18. 10013-thumb
    ava
    Sex: F
    Data Quality: 1 star
    Bulbar: mild
    Arms: severe
    Chest: mild
    Legs: moderate
    I am: vg
    I have:
    ALS

    ava updated her bio

  19. 10013-thumb
    ava
    Sex: F
    Data Quality: 1 star
    Bulbar: mild
    Arms: severe
    Chest: mild
    Legs: moderate
    I am: vg
    I have:
    ALS

    Stopped Pneumococcal Vaccine

    • Stopped:
    • Reasons: Course of treatment ended
  20. 10013-thumb
    ava
    Sex: F
    Data Quality: 1 star
    Bulbar: mild
    Arms: severe
    Chest: mild
    Legs: moderate
    I am: vg
    I have:
    ALS

    ava completed the FRS survey

    • FRS: 17
    • mild Head
    • severe Arms
    • mild Torso
    • severe Legs
  21. Show more