1. 10013 thumb
    ava
    Sex: F
    Data Quality: 1 star
    Bulbar: mild
    Arms: severe
    Chest: mild
    Legs: moderate
    I am: vg
    I have:
    ALS

    ava added a new Forced Vital Capacity Percentage value for

    • Forced Vital Capacity Percentage: 36 %
  2. 10013 thumb
    ava
    Sex: F
    Data Quality: 1 star
    Bulbar: mild
    Arms: severe
    Chest: mild
    Legs: moderate
    I am: vg
    I have:
    ALS

    ava completed the FRS survey

    • FRS: 16
    • mild Head
    • severe Arms
    • mild Torso
    • moderate Legs
  3. 10013 thumb
    ava
    Sex: F
    Data Quality: 1 star
    Bulbar: mild
    Arms: severe
    Chest: mild
    Legs: moderate
    I am: vg
    I have:
    ALS

    ava completed the QOL survey

  4. 10013 thumb
    ava
    Sex: F
    Data Quality: 1 star
    Bulbar: mild
    Arms: severe
    Chest: mild
    Legs: moderate
    I am: vg
    I have:
    ALS

    ava updated her basic information

  5. 10013 thumb
    ava
    Sex: F
    Data Quality: 1 star
    Bulbar: mild
    Arms: severe
    Chest: mild
    Legs: moderate
    I am: vg
    I have:
    ALS

    ava was in the hospital for Kidney stone

    Dates
    -
  6. 10013 thumb
    ava
    Sex: F
    Data Quality: 1 star
    Bulbar: mild
    Arms: severe
    Chest: mild
    Legs: moderate
    I am: vg
    I have:
    ALS

    ava was in the hospital for Sepsis, Kidney stone, and UTI (Urinary Tract Infection)

    Dates
    -
  7. 10013 thumb
    ava
    Sex: F
    Data Quality: 1 star
    Bulbar: mild
    Arms: severe
    Chest: mild
    Legs: moderate
    I am: vg
    I have:
    ALS

    ava added UTI (Urinary Tract Infection)

    • First symptom: ?
    • Diagnosis: ?
  8. 10013 thumb
    ava
    Sex: F
    Data Quality: 1 star
    Bulbar: mild
    Arms: severe
    Chest: mild
    Legs: moderate
    I am: vg
    I have:
    ALS

    ava added Kidney stone

    • First symptom: ?
    • Diagnosis: ?
  9. 10013 thumb
    ava
    Sex: F
    Data Quality: 1 star
    Bulbar: mild
    Arms: severe
    Chest: mild
    Legs: moderate
    I am: vg
    I have:
    ALS

    ava added Sepsis

    • First symptom: ?
    • Diagnosis: ?
  10. 10013 thumb
    ava
    Sex: F
    Data Quality: 1 star
    Bulbar: mild
    Arms: severe
    Chest: mild
    Legs: moderate
    I am: vg
    I have:
    ALS

    ava was feeling very good

  11. 10013 thumb
    ava
    Sex: F
    Data Quality: 1 star
    Bulbar: mild
    Arms: severe
    Chest: mild
    Legs: moderate
    I am: vg
    I have:
    ALS
  12. 10013 thumb
    ava
    Sex: F
    Data Quality: 1 star
    Bulbar: mild
    Arms: severe
    Chest: mild
    Legs: moderate
    I am: vg
    I have:
    ALS

    ava shared details about Blood test

  13. 10013 thumb
    ava
    Sex: F
    Data Quality: 1 star
    Bulbar: mild
    Arms: severe
    Chest: mild
    Legs: moderate
    I am: vg
    I have:
    ALS

    ava shared details about Zocor

  14. 10013 thumb
    ava
    Sex: F
    Data Quality: 1 star
    Bulbar: mild
    Arms: severe
    Chest: mild
    Legs: moderate
    I am: vg
    I have:
    ALS

    ava shared details about Zocor

  15. 10013 thumb
    ava
    Sex: F
    Data Quality: 1 star
    Bulbar: mild
    Arms: severe
    Chest: mild
    Legs: moderate
    I am: vg
    I have:
    ALS

    ava shared details about Protonix

    Dosage40 mg daily (starting )
  16. 10013 thumb
    ava
    Sex: F
    Data Quality: 1 star
    Bulbar: mild
    Arms: severe
    Chest: mild
    Legs: moderate
    I am: vg
    I have:
    ALS

    ava shared details about Protonix

  17. 10013 thumb
    ava
    Sex: F
    Data Quality: 1 star
    Bulbar: mild
    Arms: severe
    Chest: mild
    Legs: moderate
    I am: vg
    I have:
    ALS

    ava updated her bio

    I'VE HAD SYMPTONS OF ALS SINCE '97 AND WAS DIAGNOSED IN '99. THE FIRST 48HRS., AFTER DIAGNOSIS, WAS DEVISTATING, BUT THE YEARS AFTER HAVE ALL BEEN POSITIVE. I WORKED FULL TIME UNTIL JAN.'06. I HAVE 3 AMAZING KIDS AND 6 PRECSIOUS GRANDCHILDREN. THEY KEEP MY LIFE FULL. I'VE BEEN UPBEAT AND GRATEFUL FOR HAVING THE SUPPORT I GET TO KEEP ME GOING.
  18. 10013 thumb
    ava
    Sex: F
    Data Quality: 1 star
    Bulbar: mild
    Arms: severe
    Chest: mild
    Legs: moderate
    I am: vg
    I have:
    ALS

    Stopped Pneumococcal Vaccine

    • Stopped:
    • Reasons: Course of treatment ended
  19. 10013 thumb
    ava
    Sex: F
    Data Quality: 1 star
    Bulbar: mild
    Arms: severe
    Chest: mild
    Legs: moderate
    I am: vg
    I have:
    ALS

    ava completed the FRS survey

    • FRS: 17
    • mild Head
    • severe Arms
    • mild Torso
    • severe Legs
  20. 10013 thumb
    ava
    Sex: F
    Data Quality: 1 star
    Bulbar: mild
    Arms: severe
    Chest: mild
    Legs: moderate
    I am: vg
    I have:
    ALS

    ava was feeling good