ALS Public Registry
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- ava
- Sex: F
- Data Quality: 1 star
- Bulbar: mild
- Arms: severe
- Chest: mild
- Legs: moderate
- I am: vg
I have:ALSava completed the FVC survey for Jan 19, 2012 Apr 19, 2012FVC: 36%
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- ava
- Sex: F
- Data Quality: 1 star
- Bulbar: mild
- Arms: severe
- Chest: mild
- Legs: moderate
- I am: vg
I have:ALSava completed the FRS survey for Apr 19, 2012 Apr 19, 2012FRS: 16
- Head
- Arms
- Torso
- Legs
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- ava
- Sex: F
- Data Quality: 1 star
- Bulbar: mild
- Arms: severe
- Chest: mild
- Legs: moderate
- I am: vg
I have:ALSava completed the QOL survey for Apr 19, 2012 Apr 19, 2012QOL
- Best Social
- Good Mental
- Bad Physical
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- ava
- Sex: F
- Data Quality: 1 star
- Bulbar: mild
- Arms: severe
- Chest: mild
- Legs: moderate
- I am: vg
I have:ALSava updated her basic information Apr 19, 2012Basic Information
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- ava
- Sex: F
- Data Quality: 1 star
- Bulbar: mild
- Arms: severe
- Chest: mild
- Legs: moderate
- I am: vg
I have:ALSava added a hospitalization for Kidney stone Apr 19, 2012Hospitalization for Kidney stone
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Admitted:
Mar 5, 2010
- Discharged: Mar 10, 2010
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- ava
- Sex: F
- Data Quality: 1 star
- Bulbar: mild
- Arms: severe
- Chest: mild
- Legs: moderate
- I am: vg
I have:ALSava added a hospitalization for UTI (Urinary Tract Infection), Kidney stone, and Sepsis Apr 19, 2012Hospitalization for UTI (Urinary Tract Infection), Kidney stone, and Sepsis
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Admitted:
Feb 12, 2010
- Discharged: Feb 18, 2010
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- ava
- Sex: F
- Data Quality: 1 star
- Bulbar: mild
- Arms: severe
- Chest: mild
- Legs: moderate
- I am: vg
I have:ALSava added the condition UTI (Urinary Tract Infection) Apr 19, 2012UTI (Urinary Tract Infection)
- First symptom: ?
- Diagnosis: ?
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- ava
- Sex: F
- Data Quality: 1 star
- Bulbar: mild
- Arms: severe
- Chest: mild
- Legs: moderate
- I am: vg
I have:ALSava added the condition Kidney stone Apr 19, 2012Kidney stone
- First symptom: ?
- Diagnosis: ?
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- ava
- Sex: F
- Data Quality: 1 star
- Bulbar: mild
- Arms: severe
- Chest: mild
- Legs: moderate
- I am: vg
I have:ALSava added the condition Sepsis Apr 19, 2012Sepsis
- First symptom: ?
- Diagnosis: ?
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- ava
- Sex: F
- Data Quality: 1 star
- Bulbar: mild
- Arms: severe
- Chest: mild
- Legs: moderate
- I am: vg
I have:ALSava added an InstantMe for Apr 19, 2012 Apr 19, 2012 3:25PMVery good
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- ava
- Sex: F
- Data Quality: 1 star
- Bulbar: mild
- Arms: severe
- Chest: mild
- Legs: moderate
- I am: vg
I have:ALSava updated the treatment Clinical check-up Apr 19, 2012Clinical check-up
- Started: Mar 11, 2012
- Current Dosage: every 3 months
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Purpose:
-
- ava
- Sex: F
- Data Quality: 1 star
- Bulbar: mild
- Arms: severe
- Chest: mild
- Legs: moderate
- I am: vg
I have:ALSava updated the treatment Blood test Apr 19, 2012Blood test
- Started: Oct 25, 2011
- Current Dosage: as needed
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Purpose:
-
- ava
- Sex: F
- Data Quality: 1 star
- Bulbar: mild
- Arms: severe
- Chest: mild
- Legs: moderate
- I am: vg
I have:ALSava updated the treatment Zocor Apr 19, 2012Zocor
- Started: Jul 1, 2008
- Current Dosage: 20 mg daily
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Purpose:
-
- ava
- Sex: F
- Data Quality: 1 star
- Bulbar: mild
- Arms: severe
- Chest: mild
- Legs: moderate
- I am: vg
I have:ALSava updated the treatment Zocor Apr 19, 2012Zocor
- Started: Jul 1, 2008
- Current Dosage: 20 mg daily
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Purpose:
-
- ava
- Sex: F
- Data Quality: 1 star
- Bulbar: mild
- Arms: severe
- Chest: mild
- Legs: moderate
- I am: vg
I have:ALSava updated the treatment Protonix Apr 19, 2012Protonix
- Started: Mar 15, 2012
- Current Dosage: 40 mg daily
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Purpose:
-
- ava
- Sex: F
- Data Quality: 1 star
- Bulbar: mild
- Arms: severe
- Chest: mild
- Legs: moderate
- I am: vg
I have:ALSava updated the treatment Protonix Apr 19, 2012Protonix
- Started: Mar 15, 2012
- Current Dosage: 40 mg daily
-
Purpose:
-
- ava
- Sex: F
- Data Quality: 1 star
- Bulbar: mild
- Arms: severe
- Chest: mild
- Legs: moderate
- I am: vg
I have:ALSava earned a star! Apr 19, 2012
1 star
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- ava
- Sex: F
- Data Quality: 1 star
- Bulbar: mild
- Arms: severe
- Chest: mild
- Legs: moderate
- I am: vg
I have:ALSUpdated Bio
ava updated her bio Apr 19, 2012I'VE HAD SYMPTONS OF ALS SINCE '97 AND WAS DIAGNOSED IN '99. THE FIRST 48HRS., AFTER DIAGNOSIS, WAS DEVISTATING, BUT THE YEARS AFTER HAVE ALL BEEN POSITIVE. I WORKED FULL TIME UNTIL JAN.'06. I HAVE 3 AMAZING KIDS AND 6 PRECSIOUS GRANDCHILDREN. THEY KEEP MY LIFE FULL. I'VE BEEN UPBEAT AND GRATEFUL FOR HAVING THE SUPPORT I GET TO KEEP ME GOING.
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- ava
- Sex: F
- Data Quality: 1 star
- Bulbar: mild
- Arms: severe
- Chest: mild
- Legs: moderate
- I am: vg
I have:ALSava stopped taking the treatment Pneumococcal Vaccine Dec 16, 2011Stopped: Pneumococcal Vaccine
- Stopped: Feb 15, 2006
- Reason: Course of treatment ended
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- ava
- Sex: F
- Data Quality: 1 star
- Bulbar: mild
- Arms: severe
- Chest: mild
- Legs: moderate
- I am: vg
I have:ALSava completed the FRS survey for Dec 16, 2011 Dec 16, 2011FRS: 17
- Head
- Arms
- Torso
- Legs
- Show more
