PatientsLikeMe ™

He is now is a nursing home which is very difficult for him & me. There has been a drop in some of the pain issues but the stiffness has really taken over. I sleep for mayb two hrs then Im up for 4-6hrs. I tell everyone I am a perfect example that Zoloff works, & it does when I remember to take it. The restless leg is helped with Gabapentin, 300mg 2-3 x's a day. I take up to 20 vicodin a mth (cause that is all I am allowed) so I plan when I want to have agood weekend & take mayb 2-3 a day to cut the edge of pain. My teenagers understand what I am doing & we make the most of those times together. They r my only resouse for support (I hate having to rely on them cause they r so young & working hard to prepare for college). Their are other children but I have no real family support as they all think I am the classic Hypercondreak (or however u spell it). So I have spent most of my life just living with it, crying only when others can't see me. I have gained almost 130 lbs since this problem raised it's ugly head. I try to make jokes & keep a good sense of humor cause if I don't I truely believe I would crash form all the stress.  Wow thats the most I have ever shared with anyone. I sure hope I don't sound like some cry baby, lol.