ShakyBabe's Carbilev History

ShakyBabe: Sex: F; Data Quality: 0 stars; Parkinson's: 4 yrs; Hoehn-Yahr 1 Type: Parkinson's disease On; Mouth/throat: none; Arms: mild; Chest: none; Legs: mild

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ShakyBabe's Carbilev is for:

ShakyBabe's Carbilev History (Ongoing)
Carbilev (carbidopa-levodopa cr)
1.5 other Daily Dec 03 - 22, 2009
3 x 25 mg-100 mg Daily Apr 13, 2010 - Last Update
Stopped Did not seem to work Dec 22, 2009
Stopped Did not seem to work, Personal research, and Side effects too severe Dec 27, 2009

Date: Apr 30, 2010
Advice & Tips: I do take Motilium 20 minutes prior to taking the Carbilev 25/250. I works well and I have not been nauseous at all as was the case in December when I took only the Carbilev 25/100. Side effects were very bad. Now I feel wonderful - tremors totally under control.

Date: Dec 27, 2009
Advice & Tips: Because of the severe side-effects (nausea, palpitations, dizziness) and the fact that the tremors stayed the same I weaned myself and decided to research all the natural possibilities.

Date: Dec 22, 2009
Advice & Tips: Was taken off Requip XL (edema and sleeping problems). The first week taking Carbilev was terrible, half 3 x pd 25/100. I really felt so blah! Nauseous, heart racing, teary etc. Then I decided to not give up, but go on: 1, and half 2 x. After another week I realised that although there were no side-effects, there was also no difference in the tremors. That was when I decided to go off Carbilev. My neurologist is away on holiday, and I'm trying this by myself. My hubby and kids feel I'm doing the right thing - sure they hope that this will indicate that PD was wrongly diagnosed (of course so do I). But what next - do I share with her (Dr), do I wait and see whether I progress or retrogress. Muscles slightly stiff, right hand and leg tremor not worse and they listen when I "speak" to them.