1533-full
pokie too
Sex: F
Data Quality: 1 star
Parkinson's: 17 yrs
Hoehn-Yahr 1 Type: Parkinson's disease On
Mouth/throat: none
Arms: mild
Chest: mild
Legs: mild
pokie too
Female, 66 years
IL, United States
Primary Condition
Parkinson's and 2 more
Type
Parkinson's disease
First symptom
Diagnosis
Interests
Advocacy, Alternative Medicine and 4 more
See more
  1. 1533-thumb
    pokie too
    Sex: F
    Data Quality: 1 star
    On
    Mouth/throat: none
    Arms: mild
    Chest: mild
    Legs: mild
    I am: vg
    I have:
    Parkinson's
    star earnedstar  notearnedstar  notearned 1 star
    lost a star Feb 19, 2013
  2. 1533-thumb
    pokie too
    Sex: F
    Data Quality: 1 star
    On
    Mouth/throat: none
    Arms: mild
    Chest: mild
    Legs: mild
    I am: vg
    I have:
    Parkinson's
    star earnedstar earnedstar  notearned 2 stars
    earned a star! Feb 11, 2013
  3. 1533-thumb
    pokie too
    Sex: F
    Data Quality: 1 star
    On
    Mouth/throat: none
    Arms: mild
    Chest: mild
    Legs: mild
    I am: vg
    I have:
    Parkinson's

    Very good

    added an InstantMe for Dec 11, 2012 Dec 11, 2012 11:35AM

    Very little pain. I slept well and it's sun shinning.

  4. 1533-thumb
    pokie too
    Sex: F
    Data Quality: 1 star
    On
    Mouth/throat: none
    Arms: mild
    Chest: mild
    Legs: mild
    I am: vg
    I have:
    Parkinson's

    Warfarin

      • Started: Mar 14, 2011
      • Current Dosage: 7.5 mg daily
    • Purpose:
    updated the treatment Warfarin Dec 11, 2012
    • Added
      • Started: Mar 14, 2011
      • Dosage: 10 mg daily
      • Mar 14, 2011
    • Changed Dosage
      • Dosage: 7.5 mg daily
      • Mar 14, 2012
  5. 1533-thumb
    pokie too
    Sex: F
    Data Quality: 1 star
    On
    Mouth/throat: none
    Arms: mild
    Chest: mild
    Legs: mild
    I am: vg
    I have:
    Parkinson's

    Rasagiline Treatment Evaluation

    • Perceived effectiveness for Parkinson's Disease: Led_efficacy_1Led_defaultLed_defaultLed_defaultNone
    • Side Effects: NoneNoneNoneNoneNone
    • Adherence: AlwaysAlwaysAlwaysAlwaysAlways
    • Burden: Not at allNot at allNot at allNot at allNot at all
    added a treatment evaluation for Rasagiline Nov 21, 2012
  6. 1533-thumb
    pokie too
    Sex: F
    Data Quality: 1 star
    On
    Mouth/throat: none
    Arms: mild
    Chest: mild
    Legs: mild
    I am: vg
    I have:
    Parkinson's

    PDRS: 14

    • On Treatment
    • none Mouth/throat
    • mild Arms
    • mild Chest
    • mild Legs
    completed the PDRS survey for Nov 21, 2012 Nov 21, 2012
  7. 1533-thumb
    pokie too
    Sex: F
    Data Quality: 1 star
    On
    Mouth/throat: none
    Arms: mild
    Chest: mild
    Legs: mild
    I am: vg
    I have:
    Parkinson's

    Meloxicam Treatment Evaluation

    • Perceived effectiveness for Parkinson's Disease: Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major
    • Side Effects: NoneNoneNoneNoneNone
    • Adherence: AlwaysAlwaysAlwaysAlwaysAlways
    • Burden: Not at allNot at allNot at allNot at allNot at all
    added a treatment evaluation for Meloxicam Nov 21, 2012
  8. 1533-thumb
    pokie too
    Sex: F
    Data Quality: 1 star
    On
    Mouth/throat: none
    Arms: mild
    Chest: mild
    Legs: mild
    I am: vg
    I have:
    Parkinson's

    Symptom Update

    • moderate Weakness in arms
    • none Water retention in hands and feet
    • mild Vivid dreams
    • none Urinary frequency
    • moderate Tremor(s)
    • moderate Tremor in left hand
    • See more
    updated her symptoms for Nov 21, 2012 Nov 21, 2012
  9. 1533-thumb
    pokie too
    Sex: F
    Data Quality: 1 star
    On
    Mouth/throat: none
    Arms: mild
    Chest: mild
    Legs: mild
    I am: vg
    I have:
    Parkinson's

    Rasagiline

      • Stopped: Nov 21, 2012
      • Reason: Did not seem to work
      • Started: Nov 21, 2012
      • Last Dosage: 0.5 mg daily
    • Purpose: Parkinson's
    • View Latest Evaluation
    updated the treatment Rasagiline Nov 21, 2012
    • Added
      • Started: Nov 21, 2012
      • Dosage: 0.5 mg daily
      • Purpose: Parkinson's Disease
      • Nov 21, 2012
    • Stopped
      • Date: Nov 21, 2012
      • Reason: Did not seem to work
      • Nov 21, 2012
    • Stopped
      • Date: Nov 21, 2012
      • Reason: Did not seem to work
      • Nov 21, 2012
    • Evaluated
  10. 1533-thumb
    pokie too
    Sex: F
    Data Quality: 1 star
    On
    Mouth/throat: none
    Arms: mild
    Chest: mild
    Legs: mild
    I am: vg
    I have:
    Parkinson's

    Meloxicam

      • Started: Mar 27, 2008
      • Current Dosage: 15 mg daily
    • Purpose: Inflammation and Parkinson's
    • View Latest Evaluation
    updated the treatment Meloxicam Nov 21, 2012
    • Added
      • Started: Mar 27, 2008
      • Dosage: 30 mg daily
      • Purpose: Inflammation and Parkinson's Disease
      • Mar 27, 2008
    • Stopped
      • Date: Jun 07, 2008
      • Reason: Doctor's advice
      • Jun 07, 2008
    • Restarted
      • Dosage: 15 mg daily
      • Oct 21, 2008
    • Evaluated
    • Evaluated
    • Evaluated
    • Evaluated
  11. 1533-thumb
    pokie too
    Sex: F
    Data Quality: 1 star
    On
    Mouth/throat: none
    Arms: mild
    Chest: mild
    Legs: mild
    I am: vg
    I have:
    Parkinson's

    Epilepsy

    • First seizure: ?
    • Diagnosis: ?
    updated the condition Epilepsy Nov 21, 2012
  12. 1533-thumb
    pokie too
    Sex: F
    Data Quality: 1 star
    On
    Mouth/throat: none
    Arms: mild
    Chest: mild
    Legs: mild
    I am: vg
    I have:
    Parkinson's

    Very good

    added an InstantMe for Nov 21, 2012 Nov 21, 2012 9:40PM
  13. 1533-thumb
    pokie too
    Sex: F
    Data Quality: 1 star
    On
    Mouth/throat: none
    Arms: mild
    Chest: mild
    Legs: mild
    I am: vg
    I have:
    Parkinson's

    Diabetes Type 2

    • First symptom: ?
    • Diagnosis: ?
    updated the condition Diabetes Type 2 Nov 21, 2012
  14. 1533-thumb
    pokie too
    Sex: F
    Data Quality: 1 star
    On
    Mouth/throat: none
    Arms: mild
    Chest: mild
    Legs: mild
    I am: vg
    I have:
    Parkinson's

    Keppra XR Treatment Evaluation

    • Perceived effectiveness for Parkinson's Disease: Led_efficacy_3Led_efficacy_3Led_efficacy_3Led_defaultModerate
    • Side Effects: SevereSevereSevereSevereSevere
    • Adherence: AlwaysAlwaysAlwaysAlwaysAlways
    • Burden: Not at allNot at allNot at allNot at allNot at all
    added a treatment evaluation for Keppra XR Nov 18, 2012
  15. 1533-thumb
    pokie too
    Sex: F
    Data Quality: 1 star
    On
    Mouth/throat: none
    Arms: mild
    Chest: mild
    Legs: mild
    I am: vg
    I have:
    Parkinson's

    Keppra XR

      • Stopped: Nov 18, 2012
      • Reason: Side effects too severe
      • Started: Nov 19, 2010
      • Last Dosage: 500 mg daily
    • Purpose: Parkinson's
    • View Latest Evaluation
    updated the treatment Keppra XR Nov 18, 2012
    • Added
      • Started: Nov 19, 2010
      • Dosage: 500 mg daily
      • Purpose: Parkinson's Disease
      • Nov 19, 2010
    • Stopped
      • Date: Nov 18, 2012
      • Reason: Side effects too severe
      • Nov 18, 2012
    • Evaluated
  16. 1533-thumb
    pokie too
    Sex: F
    Data Quality: 1 star
    On
    Mouth/throat: none
    Arms: mild
    Chest: mild
    Legs: mild
    I am: vg
    I have:
    Parkinson's

    Very good

    added an InstantMe for Nov 18, 2012 Nov 18, 2012 6:12PM
  17. 1533-thumb
    pokie too
    Sex: F
    Data Quality: 1 star
    On
    Mouth/throat: none
    Arms: mild
    Chest: mild
    Legs: mild
    I am: vg
    I have:
    Parkinson's

    Parkinson's Disease

    • First symptom:
    • Diagnosis:
    updated the condition Parkinson's Disease Nov 18, 2012
  18. 1533-thumb
    pokie too
    Sex: F
    Data Quality: 1 star
    On
    Mouth/throat: none
    Arms: mild
    Chest: mild
    Legs: mild
    I am: vg
    I have:
    Parkinson's

    Updated Bio

    In 1996 I had two grand mal seizures and was diagnosed as epileptic and took depacote 2000mg per day for 2 years. I could not function and ask to work myself off it. October 2005 I started my road of severe surgeries.Both knees replaced in one year. two years ago I had my right hip replaced and March 2012 I had reverse rotor cup surgery on my left shoulder for replacement. I went through seizures prior and after the last surgery but am currently only on carblevadopa and vitamins plus meloxicam. My treatment is exercise, rest, limited stress and limited hard drugs. I was being over medicated.

    I am very much my own person who has become tough to survive. I continue to educate myself and use that education to fit MY DISEASES.

    updated her bio Nov 18, 2012