PatientsLikeMe ™

I care for my husband, Jeff Repetto (Bluffy), 44, since his diagnosis in August of 2003. He has progressed very quickly. He is now using a feeding tube, on a vent, and can only communicate by raising one eye for yes. His other eye is closed most of the time. He is now almost locked in. We've been through almost everything, so we have lots of useful information to share. The one thing I always say, no question is too stupid.