Tulabee's Journal

Tulabee: Sex: F; Data Quality: 3 stars; Parkinson's: 7 yrs; Hoehn-Yahr 2 Type: Parkinson's disease On; Mouth/throat: mild; Arms: mild; Chest: mild; Legs: mild

Tulabee: Female, 51 years; Minneapolis, MN

Primary Condition: Parkinson's

Type: Parkinson's disease

First symptom: Jul 2005
Diagnosis: Sep 2009

Tulabee

Sex: F

Data Quality: 3 stars

On

Mouth/throat: mild

Arms: mild

Chest: mild

Legs: mild

I am: g

I have:
Parkinson's
PDRS: 20
- On Treatment
- mild Mouth/throat
- mild Arms
- mild Chest
- mild Legs
Tulabee completed the PDRS survey for Apr 20, 2013 Apr 20, 2013
Tulabee

Sex: F

Data Quality: 3 stars

On

Mouth/throat: mild

Arms: mild

Chest: mild

Legs: mild

I am: g

I have:
Parkinson's

Good
Tulabee added an InstantMe for Apr 18, 2013 Apr 18, 2013 11:06PM

Have completed some tasks for the canoe club; good to get out of the way. Don't have to do any immediate tasks tonight.
Tulabee

Sex: F

Data Quality: 3 stars

On

Mouth/throat: mild

Arms: mild

Chest: mild

Legs: mild

I am: g

I have:
Parkinson's
PDRS: 7
- Off Treatment
- mild Mouth/throat
- none Arms
- none Chest
- mild Legs
Tulabee completed the PDRS survey for May 1, 2009 Apr 18, 2013
Tulabee

Sex: F

Data Quality: 3 stars

On

Mouth/throat: mild

Arms: mild

Chest: mild

Legs: mild

I am: g

I have:
Parkinson's
PDRS: 2
- Off Treatment
- none Mouth/throat
- none Arms
- none Chest
- none Legs
Tulabee completed the PDRS survey for Jul 15, 2006 Apr 18, 2013
Tulabee

Sex: F

Data Quality: 3 stars

On

Mouth/throat: mild

Arms: mild

Chest: mild

Legs: mild

I am: g

I have:
Parkinson's

154 lb BMI: 22.7
Tulabee updated her weight for Apr 18, 2013 Apr 18, 2013
Tulabee

Sex: F

Data Quality: 3 stars

On

Mouth/throat: mild

Arms: mild

Chest: mild

Legs: mild

I am: g

I have:
Parkinson's

151 lb BMI: 22.3
Tulabee updated her weight for Jul 24, 2012 Apr 18, 2013
Tulabee

Sex: F

Data Quality: 3 stars

On

Mouth/throat: mild

Arms: mild

Chest: mild

Legs: mild

I am: g

I have:
Parkinson's
Yoga Treatment Evaluation
- Perceived effectiveness for Stiffness/Spasticity: Moderate
- Side Effects: None
- Adherence: Usually
- Burden: A little
Advice & Tips

From Oct2012 to April2012 I was unable to do the daily sun salutation, due to shoulder pain. The PT thinks it was probably the fall when i missed the step at JAn's party. It has not gone away. I felt it the other day when i slipped a little on an ice patch. I am doing the sun salutation again. Some evening in front of the TV i do many stretches.

Cost

< $25 monthly

Tulabee added a treatment evaluation for Yoga Apr 18, 2013
Tulabee

Sex: F

Data Quality: 3 stars

On

Mouth/throat: mild

Arms: mild

Chest: mild

Legs: mild

I am: g

I have:
Parkinson's
Tai Chi Treatment Evaluation
- Perceived effectiveness for Parkinson's Disease: Slight
- Side Effects: None
- Adherence: Sometimes
- Burden: A little
Advice & Tips

I have gone back to the arthritis for Tai Chi form. I try to do it before i leave the house. I would like to do more, but haven't made effort.

Cost

< $25 monthly

Tulabee added a treatment evaluation for Tai Chi Apr 18, 2013
Tulabee

Sex: F

Data Quality: 3 stars

On

Mouth/throat: mild

Arms: mild

Chest: mild

Legs: mild

I am: g

I have:
Parkinson's
Stretching Treatment Evaluation
- Perceived effectiveness for Parkinson's Disease: Moderate
- Side Effects: None
- Adherence: Usually
- Burden: Somewhat
Advice & Tips

I must stretch to get going in the morning. It seems a natural thing to do.

Cost

< $25 monthly

Tulabee added a treatment evaluation for Stretching Apr 18, 2013
Tulabee

Sex: F

Data Quality: 3 stars

On

Mouth/throat: mild

Arms: mild

Chest: mild

Legs: mild

I am: g

I have:
Parkinson's
Provigil Treatment Evaluation
- Perceived effectiveness for Excessive daytime sleepiness (somnolence): Moderate
- Side Effects: Moderate
- Adherence: Always
- Burden: Not at all
Advice & Tips

I still take this in the fall (when the days are just starting to get short) like the end of August. I then stop in March. I have used Nuvigil or Provigil. If I decrease dose, i am sleepy during day. If i maintain does, it is very easy to stay up until 1am.

Cost

$25-49 monthly

Tulabee added a treatment evaluation for Provigil Apr 18, 2013
Tulabee

Sex: F

Data Quality: 3 stars

On

Mouth/throat: mild

Arms: mild

Chest: mild

Legs: mild

I am: g

I have:
Parkinson's
Cymbalta Treatment Evaluation
- Perceived effectiveness for Depressed mood: Major
- Side Effects: Mild
- Adherence: Always
- Burden: Not at all
Advice & Tips

I will take this until the effectivess goes away.

Cost

$25-49 monthly

Tulabee added a treatment evaluation for Cymbalta Apr 18, 2013
Tulabee

Sex: F

Data Quality: 3 stars

On

Mouth/throat: mild

Arms: mild

Chest: mild

Legs: mild

I am: g

I have:
Parkinson's
Azilect Treatment Evaluation
- Perceived effectiveness for Parkinson's Disease: ?Can't tell
- Side Effects: None
- Adherence: Always
- Burden: Not at all
Advice & Tips

I am still taking this in hopes of neuro-protective effects.

Cost

$25-49 monthly

Tulabee added a treatment evaluation for Azilect Apr 18, 2013
Tulabee

Sex: F

Data Quality: 3 stars

On

Mouth/throat: mild

Arms: mild

Chest: mild

Legs: mild

I am: g

I have:
Parkinson's
Amantadine Treatment Evaluation
- Perceived effectiveness for Parkinson's Disease: Slight
- Side Effects: None
- Adherence: Always
- Burden: Not at all
Advice & Tips

This did not seem to decrease the dyskiinesia caused by l-dopa.

Cost

< $25 monthly

Tulabee added a treatment evaluation for Amantadine from Oct 1, 2011 Apr 18, 2013
Tulabee

Sex: F

Data Quality: 3 stars

On

Mouth/throat: mild

Arms: mild

Chest: mild

Legs: mild

I am: g

I have:
Parkinson's
QOL
- Good Social
- Good Mental
- Good Physical
Tulabee completed the QOL survey for Apr 18, 2013 Apr 18, 2013
Tulabee

Sex: F

Data Quality: 3 stars

On

Mouth/throat: mild

Arms: mild

Chest: mild

Legs: mild

I am: g

I have:
Parkinson's
Carbidopa-Levodopa 25-100 Treatment Evaluation
- Perceived effectiveness for Parkinson's Disease: Moderate
- Side Effects: Moderate
- Adherence: Always
- Burden: Somewhat
Advice & Tips

This survey doesn't account for the way i take L-dopa. I started out at 1 tablet every 6 hours. Now I am at 0.75 tablet every 4 hours. So this means i am taking a smaller dose at more frequent intervals as Parkinson's progresses. If I take more than needed, the dyskinesia starts. If I go too long without a dose (usually sitting at work or computer), forget to take it, hand tremor starts.

Cost

< $25 monthly

Tulabee added a treatment evaluation for Carbidopa-Levodopa 25-100 Apr 18, 2013
Tulabee

Sex: F

Data Quality: 3 stars

On

Mouth/throat: mild

Arms: mild

Chest: mild

Legs: mild

I am: g

I have:
Parkinson's
PDRS: 22
- On Treatment
- mild Mouth/throat
- mild Arms
- mild Chest
- mild Legs
Tulabee completed the PDRS survey for Apr 18, 2013 Apr 18, 2013
Tulabee

Sex: F

Data Quality: 3 stars

On

Mouth/throat: mild

Arms: mild

Chest: mild

Legs: mild

I am: g

I have:
Parkinson's
Symptom Update
- none Anxious mood
- mild Bilateral shoulder and upper back pain upon movement and worsens with repetitive movement
- mild Constipation
- none Depressed mood
- mild Dyskinesia
- none Excessive daytime sleepiness (somnolence)
- mild Excess saliva
- mild Fatigue
- mild Gait problems
- mild Insomnia
- mild Jerky movements (dyskinesia)
- none Memory problems
- none Muscle twitching (fasciculations)
- mild Numbness and Tingling with Pins and Needles
- none Pain
- moderate Slowness
- none Stiffness in jaw
- mild Stiffness in neck
- mild Stiffness/Spasticity
- mild Tremor in hands
- mild Numbness in feet
- See more
Tulabee updated her symptoms for Apr 18, 2013 Apr 18, 2013
Tulabee

Sex: F

Data Quality: 3 stars

On

Mouth/throat: mild

Arms: mild

Chest: mild

Legs: mild

I am: g

I have:
Parkinson's
Yoga
- - Started: Jan 15, 2012
  - Current Dosage: 5 min daily
- Purpose: Stiffness/Spasticity
- View Latest Evaluation
Tulabee updated the treatment Yoga Apr 18, 2013
- Added
  - Started: Jan 15, 2012
  - Dosage: 5 min daily
  - Purpose: Stiffness/Spasticity
  - Jan 15, 2012
- Evaluated
  - View Evaluation
  - Apr 18, 2013
Tulabee

Sex: F

Data Quality: 3 stars

On

Mouth/throat: mild

Arms: mild

Chest: mild

Legs: mild

I am: g

I have:
Parkinson's
Tai Chi
- - Started: Mar 2, 2011
  - Current Dosage: 5 min m,w,f
- Purpose: Parkinson's
- View Latest Evaluation
Tulabee updated the treatment Tai Chi Apr 18, 2013
- Added
  - Started: Mar 02, 2011
  - Dosage: 10 min m,w,f
  - Purpose: Parkinson's Disease
  - Mar 02, 2011
- Changed Dosage
  - Dosage: 6 min daily
  - May 01, 2011
- Evaluated
  - View Evaluation
  - Aug 23, 2011
- Changed Dosage
  - Dosage: 5 min m,w,f
  - Jan 15, 2012
- Evaluated
  - View Evaluation
  - Apr 18, 2013
Tulabee

Sex: F

Data Quality: 3 stars

On

Mouth/throat: mild

Arms: mild

Chest: mild

Legs: mild

I am: g

I have:
Parkinson's
Stretching
- - Started: Oct 15, 2009
  - Current Dosage: daily
- Purpose: Parkinson's
- View Latest Evaluation
Tulabee updated the treatment Stretching Apr 18, 2013
- Added
  - Started: Oct 15, 2009
  - Dosage: daily
  - Purpose: Parkinson's Disease
  - Oct 15, 2009
- Evaluated
  - View Evaluation
  - Aug 23, 2011
- Evaluated
  - View Evaluation
  - Apr 18, 2013
Show more