Fairy Goth Mother's Journal

Fairy Goth Mother: Sex: F; Data Quality: 2 stars; MS: 6 yrs; Type: Relapsing-Remitting; Sensation: Moderate; Overall: Mild; Cognition: moderate; Vision: moderate; Speech: none; Swallowing: none; Upper limb: moderate; Walking: mild

Fairy Goth Mother: Female, 47 years; Olive Branch, MS

Primary Condition: MS

Type: Relapsing-Remitting

First symptom: Jul 2006
Diagnosis: Sep 2007

Interests: Alternative Medicine

Fairy Goth Mother

Sex: F

Data Quality: 2 stars

Sensation: Moderate

Overall: Mild

Cognition: moderate

Vision: moderate

Speech: none

Swallowing: none

Upper limb: moderate

Walking: mild

I am: n

I have:
MS

2 stars
Fairy Goth Mother lost a star May 01, 2013
Fairy Goth Mother

Sex: F

Data Quality: 2 stars

Sensation: Moderate

Overall: Mild

Cognition: moderate

Vision: moderate

Speech: none

Swallowing: none

Upper limb: moderate

Walking: mild

I am: n

I have:
MS

235 lb BMI: 41.6
Fairy Goth Mother updated her weight for Apr 14, 2013 Apr 14, 2013

Too much pain to exercise. Boredom and inactivity.
Fairy Goth Mother

Sex: F

Data Quality: 2 stars

Sensation: Moderate

Overall: Mild

Cognition: moderate

Vision: moderate

Speech: none

Swallowing: none

Upper limb: moderate

Walking: mild

I am: n

I have:
MS
MSRS: 32
- Mild Cognition
- Mild Vision
- No Symptoms Speech
- No Symptoms Swallowing
- Mild Upper Limb
- None Walking
- Mild Sensation
Fairy Goth Mother completed the MSRS survey for Apr 14, 2013 Apr 14, 2013

Spring is helping. With cold intolerance, my ms gets worse.
Fairy Goth Mother

Sex: F

Data Quality: 2 stars

Sensation: Moderate

Overall: Mild

Cognition: moderate

Vision: moderate

Speech: none

Swallowing: none

Upper limb: moderate

Walking: mild

I am: n

I have:
MS
QOL
- Bad Social
- Good Mental
- Good Physical
Fairy Goth Mother completed the QOL survey for Apr 14, 2013 Apr 14, 2013

A lot of things right now.
Fairy Goth Mother

Sex: F

Data Quality: 2 stars

Sensation: Moderate

Overall: Mild

Cognition: moderate

Vision: moderate

Speech: none

Swallowing: none

Upper limb: moderate

Walking: mild

I am: n

I have:
MS

3 stars
Fairy Goth Mother earned a star! Apr 14, 2013

YAY !! Need Tee shirts in other colors. The white one gets stained too easily and cannot wear out.
Fairy Goth Mother

Sex: F

Data Quality: 2 stars

Sensation: Moderate

Overall: Mild

Cognition: moderate

Vision: moderate

Speech: none

Swallowing: none

Upper limb: moderate

Walking: mild

I am: n

I have:
MS
Symptom Update
- mild Acid reflux
- mild Anxiety and frustration
- mild Anxious mood
- mild Bladder problems
- mild Bowel problems
- mild Brain fog
- none Chest pain
- moderate Chills
- mild Cold hands
- moderate Cold legs below knee
- mild Depressed mood
- severe Difficulty sleeping through night
- none Dragging foot
- severe Dry mouth (xerostomia)
- mild Electric shock pain radiating down left leg
- moderate Elevated blood pressure
- mild Emotional lability
- severe Excessive daytime sleepiness (somnolence)
- severe Fatigue
- moderate Headaches
- moderate Heat intolerance
- mild Insomnia
- severe Joint Pain (hips, shoulders, knees)
- mild Mood swings
- severe Muscle and joint pain
- moderate Muscle spasms
- moderate Neck pain
- none Numbness under fingernails
- moderate Pain
- mild Pain in back of head
- severe Pain in knees
- severe Pain in lower back
- moderate Pain in shoulders
- moderate Radiating pain in spine
- moderate Relapse MS (exacerbation)
- moderate Ringing in ears (tinnitus)
- severe Sexual dysfunction
- severe Skin discoloration
- moderate Sleep problems
- severe Stiffness in knees
- moderate Stiffness/Spasticity
- severe Swelling in ankles
- severe Swelling in feet
- mild Tremor in right hand
- mild Walking problems
- severe Cold intolerance
- See more
Fairy Goth Mother updated her symptoms for Apr 14, 2013 Apr 14, 2013

They all suck.
Fairy Goth Mother

Sex: F

Data Quality: 2 stars

Sensation: Moderate

Overall: Mild

Cognition: moderate

Vision: moderate

Speech: none

Swallowing: none

Upper limb: moderate

Walking: mild

I am: n

I have:
MS
Nortriptyline
- - Started: Jul 16, 2010
  - Current Dosage: 100 mg daily
- Purpose: Pain
Fairy Goth Mother updated the treatment Nortriptyline Apr 14, 2013

It works better than Neurontin for me. No Zombie effect.
- Added
  - Started: Jul 16, 2010
  - Dosage: 50 mg daily
  - Purpose: Pain
  - Jul 16, 2010
- Changed Dosage
  - Dosage: 100 mg daily
  - Jan 18, 2013
Fairy Goth Mother

Sex: F

Data Quality: 2 stars

Sensation: Moderate

Overall: Mild

Cognition: moderate

Vision: moderate

Speech: none

Swallowing: none

Upper limb: moderate

Walking: mild

I am: n

I have:
MS

Neutral
Fairy Goth Mother added an InstantMe for Apr 14, 2013 Apr 14, 2013 2:28PM

Because MS sucks...why else?
Fairy Goth Mother

Sex: F

Data Quality: 2 stars

Sensation: Moderate

Overall: Mild

Cognition: moderate

Vision: moderate

Speech: none

Swallowing: none

Upper limb: moderate

Walking: mild

I am: n

I have:
MS

2 stars
Fairy Goth Mother lost a star Feb 21, 2013
Fairy Goth Mother

Sex: F

Data Quality: 2 stars

Sensation: Moderate

Overall: Mild

Cognition: moderate

Vision: moderate

Speech: none

Swallowing: none

Upper limb: moderate

Walking: mild

I am: n

I have:
MS

3 stars
Fairy Goth Mother earned a star! Feb 11, 2013
Fairy Goth Mother

Sex: F

Data Quality: 2 stars

Sensation: Moderate

Overall: Mild

Cognition: moderate

Vision: moderate

Speech: none

Swallowing: none

Upper limb: moderate

Walking: mild

I am: n

I have:
MS

Good
Fairy Goth Mother added an InstantMe for Jan 31, 2013 Jan 31, 2013 4:54PM

My ms hug is gone. YAY
Fairy Goth Mother

Sex: F

Data Quality: 2 stars

Sensation: Moderate

Overall: Mild

Cognition: moderate

Vision: moderate

Speech: none

Swallowing: none

Upper limb: moderate

Walking: mild

I am: n

I have:
MS
QOL
- Good Social
- Best Mental
- Good Physical
Fairy Goth Mother completed the QOL survey for Jan 31, 2013 Jan 31, 2013
Fairy Goth Mother

Sex: F

Data Quality: 2 stars

Sensation: Moderate

Overall: Mild

Cognition: moderate

Vision: moderate

Speech: none

Swallowing: none

Upper limb: moderate

Walking: mild

I am: n

I have:
MS
MSRS: 46
- Mild Cognition
- Mild Vision
- None Speech
- None Swallowing
- Mild Upper Limb
- Mild Walking
- Moderate Sensation
Fairy Goth Mother completed the MSRS survey for Jan 31, 2013 Jan 31, 2013
Fairy Goth Mother

Sex: F

Data Quality: 2 stars

Sensation: Moderate

Overall: Mild

Cognition: moderate

Vision: moderate

Speech: none

Swallowing: none

Upper limb: moderate

Walking: mild

I am: n

I have:
MS
Symptom Update
- mild Acid reflux
- none Anxiety and frustration
- none Anxious mood
- mild Bladder problems
- mild Bowel problems
- mild Brain fog
- none Chest pain
- moderate Chills
- moderate Cold hands
- moderate Cold legs below knee
- none Depressed mood
- mild Difficulty sleeping through night
- none Dragging foot
- moderate Dry mouth (xerostomia)
- moderate Electric shock pain radiating down left leg
- moderate Elevated blood pressure
- none Emotional lability
- moderate Excessive daytime sleepiness (somnolence)
- moderate Fatigue
- moderate Headaches
- moderate Heat intolerance
- mild Insomnia
- severe Joint Pain (hips, shoulders, knees)
- none Mood swings
- severe Muscle and joint pain
- moderate Muscle spasms
- moderate Neck pain
- none Numbness under fingernails
- moderate Pain
- moderate Pain in back of head
- severe Pain in knees
- moderate Pain in lower back
- moderate Pain in shoulders
- moderate Radiating pain in spine
- mild Relapse MS (exacerbation)
- moderate Ringing in ears (tinnitus)
- severe Sexual dysfunction
- mild Skin discoloration
- moderate Sleep problems
- moderate Stiffness in knees
- moderate Stiffness/Spasticity
- moderate Swelling in ankles
- moderate Swelling in feet
- mild Tremor in right hand
- mild Walking problems
- See more
Fairy Goth Mother updated her symptoms for Jan 31, 2013 Jan 31, 2013
Fairy Goth Mother

Sex: F

Data Quality: 2 stars

Sensation: Moderate

Overall: Mild

Cognition: moderate

Vision: moderate

Speech: none

Swallowing: none

Upper limb: moderate

Walking: mild

I am: n

I have:
MS
MS (Multiple Sclerosis)
- First symptom: Jul 1, 2006
- Diagnosis: Sep 1, 2007
Fairy Goth Mother updated the condition MS (Multiple Sclerosis) Jan 31, 2013
Fairy Goth Mother

Sex: F

Data Quality: 2 stars

Sensation: Moderate

Overall: Mild

Cognition: moderate

Vision: moderate

Speech: none

Swallowing: none

Upper limb: moderate

Walking: mild

I am: n

I have:
MS

2 stars
Fairy Goth Mother lost a star Dec 16, 2012
Fairy Goth Mother

Sex: F

Data Quality: 2 stars

Sensation: Moderate

Overall: Mild

Cognition: moderate

Vision: moderate

Speech: none

Swallowing: none

Upper limb: moderate

Walking: mild

I am: n

I have:
MS

Good
Fairy Goth Mother added an InstantMe for Sep 17, 2012 Sep 17, 2012 11:14PM

why not?
Fairy Goth Mother

Sex: F

Data Quality: 2 stars

Sensation: Moderate

Overall: Mild

Cognition: moderate

Vision: moderate

Speech: none

Swallowing: none

Upper limb: moderate

Walking: mild

I am: n

I have:
MS

208 lb BMI: 36.8
Fairy Goth Mother updated her weight for Sep 17, 2012 Sep 17, 2012
Fairy Goth Mother

Sex: F

Data Quality: 2 stars

Sensation: Moderate

Overall: Mild

Cognition: moderate

Vision: moderate

Speech: none

Swallowing: none

Upper limb: moderate

Walking: mild

I am: n

I have:
MS
QOL
- Good Social
- Good Mental
- Good Physical
Fairy Goth Mother completed the QOL survey for Sep 17, 2012 Sep 17, 2012
Fairy Goth Mother

Sex: F

Data Quality: 2 stars

Sensation: Moderate

Overall: Mild

Cognition: moderate

Vision: moderate

Speech: none

Swallowing: none

Upper limb: moderate

Walking: mild

I am: n

I have:
MS
MSRS: 25
- None Cognition
- Mild Vision
- No Symptoms Speech
- No Symptoms Swallowing
- None Upper Limb
- None Walking
- Mild Sensation
Fairy Goth Mother completed the MSRS survey for Sep 17, 2012 Sep 17, 2012
Show more

About Fairy Goth Mother

Interests

235 lb BMI: 41.6

MSRS: 32

QOL

Symptom Update

Nortriptyline

Neutral

Good

QOL

MSRS: 46

Symptom Update

MS (Multiple Sclerosis)

Good

208 lb BMI: 36.8

QOL

MSRS: 25