1. 1100 thumb
    dixie pixie
    Sex: F
    Data Quality: 3 stars
    On
    Mouth/throat: mild
    Arms: mild
    Chest: mild
    Legs: mild
    I am: g
    I have:
    Parkinson's

    dixie pixie was feeling good

  2. 1100 thumb
    dixie pixie
    Sex: F
    Data Quality: 3 stars
    On
    Mouth/throat: mild
    Arms: mild
    Chest: mild
    Legs: mild
    I am: g
    I have:
    Parkinson's

    dixie pixie was feeling very good

    I feel my attitude has gotten much better.

  3. 1100 thumb
    dixie pixie
    Sex: F
    Data Quality: 3 stars
    On
    Mouth/throat: mild
    Arms: mild
    Chest: mild
    Legs: mild
    I am: g
    I have:
    Parkinson's

    dixie pixie updated her basic information

  4. 1100 thumb
    dixie pixie
    Sex: F
    Data Quality: 3 stars
    On
    Mouth/throat: mild
    Arms: mild
    Chest: mild
    Legs: mild
    I am: g
    I have:
    Parkinson's
    I am 80 years young. I was diagnoised with PDF in 2003. The biggest trouble I have is masking of the face, dry eyes, and nor as coordinated as I use to be. I am on sinemet. I know I am fortunate not to have the shakes and other symptoms, but it stillis hard not knowing what will happen in the years to come/ however I an an optomist and am determined not to let this get me down. I am a widow , but haven't given up on a friendly relationship. I am a Tennessee hillbilly=relocated to Cleveland to be near my son. This is me, as my brother calls me The Dixie Pixie.

    I am very much a people person. I know I have let down some of my PLM people by not keeping up with them and not keeping my three stars up.

    I would love to say that I have Parkinson"s but my doctor just told me a month ago , he feels like I do not have Parkinson"s, and it is like Parkinism"s, but again it isn"t.
    How would I describe myself to someone with my medical condition. I first would ask him what is his diagnosis. then I would tell him about mine. Then I would try to keep his spirits up, by being me what ever that is! This is what I would do.  MY NEW DOCTOR SEEMS TO THINK I DO HAVE PARKINSON'S.  OH WELL-- WHAT EVER IT IS IT IS STILL DEBILATATING TO A DEGREE.  I SHALL NOT BECOME DEPRESSED THO!

    3 comments from other members. Only showing public users' comments. Sign up to see all comments!
      1100 thumb
      dixie pixie about 5 weeks ago

      That is a hard thing to do. if some one does not want to go to the doctor it is hard to get them to go. You might try the caring daughter role. "Mom, I love you and do not want to see you go down hill as you are doing." Or just telling her you had someone you wanted her to see. I wish I had the answer, but I so not. Good luck and please keep me posted. love , Dixie pixie

  5. 1100 thumb
    dixie pixie
    Sex: F
    Data Quality: 3 stars
    On
    Mouth/throat: mild
    Arms: mild
    Chest: mild
    Legs: mild
    I am: g
    I have:
    Parkinson's

    dixie pixie updated her basic information

  6. 1100 thumb
    dixie pixie
    Sex: F
    Data Quality: 3 stars
    On
    Mouth/throat: mild
    Arms: mild
    Chest: mild
    Legs: mild
    I am: g
    I have:
    Parkinson's

    dixie pixie completed the QOL survey

  7. 1100 thumb
    dixie pixie
    Sex: F
    Data Quality: 3 stars
    On
    Mouth/throat: mild
    Arms: mild
    Chest: mild
    Legs: mild
    I am: g
    I have:
    Parkinson's

    dixie pixie earned a star! star earnedstar earnedstar earned

  8. 1100 thumb
    dixie pixie
    Sex: F
    Data Quality: 3 stars
    On
    Mouth/throat: mild
    Arms: mild
    Chest: mild
    Legs: mild
    I am: g
    I have:
    Parkinson's

    dixie pixie completed the PDRS survey

    • PDRS: 26
    • On treatment
    • mild Mouth/throat
    • mild Arms
    • mild Chest
    • mild Legs
  9. 1100 thumb
    dixie pixie
    Sex: F
    Data Quality: 3 stars
    On
    Mouth/throat: mild
    Arms: mild
    Chest: mild
    Legs: mild
    I am: g
    I have:
    Parkinson's

    dixie pixie updated the condition Parkinson's Disease

    • First symptom:
    • Diagnosis:

    I have had Parkinsons or Parkinsonisms for over 6 years./ sometimes I feel as if it is getting better ==then all of a sudden it tends to get worse. I really wish I knew what I have,. my Doctor says he is not certain. IT does not act like true Parkinson's, but it does not have all the things Parkinsonisms have. it is really a puzzle tome , but I wish
    I knew. I am going to get another opinion next month. will let every one know what is said.

    1 comment from other members. Only showing public users' comments. Sign up to see all comments!
    • 1100 thumb
      dixie pixie
      Sex: F
      Data Quality: 3 stars
      On
      Mouth/throat: mild
      Arms: mild
      Chest: mild
      Legs: mild
      I am: g
      I have:
      Parkinson's

      dixie pixie updated her symptoms

      Constipation BetterConstipation, Pain
      Anxious mood WorseAnxious mood, Bruising, Depressed mood, Dry eyes, Dry mouth (xerostomia) See more
    • 1100 thumb
      dixie pixie
      Sex: F
      Data Quality: 3 stars
      On
      Mouth/throat: mild
      Arms: mild
      Chest: mild
      Legs: mild
      I am: g
      I have:
      Parkinson's
    • 1100 thumb
      dixie pixie
      Sex: F
      Data Quality: 3 stars
      On
      Mouth/throat: mild
      Arms: mild
      Chest: mild
      Legs: mild
      I am: g
      I have:
      Parkinson's

      dixie pixie shared details about Carbidopa Levodopa ER

      2 x 25 mg-250 mg daily (was 25 mg-100 mg daily until ) Dosage2 x 25 mg-250 mg daily (was 25 mg-100 mg daily until )
    • 1100 thumb
      dixie pixie
      Sex: F
      Data Quality: 3 stars
      On
      Mouth/throat: mild
      Arms: mild
      Chest: mild
      Legs: mild
      I am: g
      I have:
      Parkinson's

      dixie pixie added a treatment evaluation for Carbidopa Levodopa ER

      • Perceived effectiveness for Parkinson's Disease: Moderate
      • Side Effects: None
      • Adherence: Usually
      • Burden: Not at all
      • Dosage: 2 x 25 mg-250 mg Daily
      • Cost: < $25 monthly
    • 1100 thumb
      dixie pixie
      Sex: F
      Data Quality: 3 stars
      On
      Mouth/throat: mild
      Arms: mild
      Chest: mild
      Legs: mild
      I am: g
      I have:
      Parkinson's
    • 1100 thumb
      dixie pixie
      Sex: F
      Data Quality: 3 stars
      On
      Mouth/throat: mild
      Arms: mild
      Chest: mild
      Legs: mild
      I am: g
      I have:
      Parkinson's

      dixie pixie added a treatment evaluation for Eye Drops

      • Perceived effectiveness for Dry eyes: Slight
      • Side Effects: None
      • Adherence: Usually
      • Burden: A little
      • Cost: < $25 monthly
    • 1100 thumb
      dixie pixie
      Sex: F
      Data Quality: 3 stars
      On
      Mouth/throat: mild
      Arms: mild
      Chest: mild
      Legs: mild
      I am: g
      I have:
      Parkinson's

      dixie pixie updated her weight

    • 1100 thumb
      dixie pixie
      Sex: F
      Data Quality: 3 stars
      On
      Mouth/throat: mild
      Arms: mild
      Chest: mild
      Legs: mild
      I am: g
      I have:
      Parkinson's

      dixie pixie updated her basic information

    • 1100 thumb
      dixie pixie
      Sex: F
      Data Quality: 3 stars
      On
      Mouth/throat: mild
      Arms: mild
      Chest: mild
      Legs: mild
      I am: g
      I have:
      Parkinson's

      dixie pixie lost a star star earnedstar earnedstar not earned

    • 1100 thumb
      dixie pixie
      Sex: F
      Data Quality: 3 stars
      On
      Mouth/throat: mild
      Arms: mild
      Chest: mild
      Legs: mild
      I am: g
      I have:
      Parkinson's

      dixie pixie was feeling good

      I went to my class and saw a movie.

    • 1100 thumb
      dixie pixie
      Sex: F
      Data Quality: 3 stars
      On
      Mouth/throat: mild
      Arms: mild
      Chest: mild
      Legs: mild
      I am: g
      I have:
      Parkinson's

      dixie pixie completed the QOL survey

      I have come to the point that it doesn't help to be depressed or negative about things. I feel much better by keeping a positive outlook towards life.

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