Geno16
Geno16
Sex: M
Data Quality: 0 stars
MSA: 5 yrs
Type: Multiple System Atrophy (MSA)
Mood: Good
Cognition: Mild
Autonomic: Moderate
Head: moderate
Arms: moderate
Legs: moderate
Tremors: moderate
Geno16
Male, 59 years
Bakersfield, CA
Primary Condition
MSA
Type
Multiple System Atrophy (MSA)
First symptom
Jul 2006
Diagnosis
Feb 2009

About Geno16

I was first misdiagnosed with a stroke and essential tremors in 2006. I was already experienceing ED and urine retention. I could no longer slip my right foot into my sandle. My right shoulder was painfull. My wife and I realized I probably had Parkinson's and we got a second opinion. I was told I had Parkinson's in March of 2007. I was still working full time. My neurologist was pro Deep Brain Stimulation and I wanted anything that would help me at this point. So, in June of 08 I had the first DBS surgery for the right side of my body. It helped with my stiffness but I had a slo...

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Member since: Jul 22, 2009 Last Login Mar 11, 2010

More About Geno16

 I was first misdiagnosed with a stroke and essential tremors in 2006.  I was already experienceing ED and urine retention.  I could no longer slip my right foot into my sandle.  My right shoulder was painfull.
My wife and I realized I probably had Parkinson's and we got a second opinion.  I was told I had Parkinson's in March of 2007.  I was still working full time.  My neurologist was pro Deep Brain Stimulation and I wanted anything that would help me at this point.  So, in June of 08 I had the first DBS surgery for the right side of my body.  It helped with my stiffness but I had a slow recovery.  I went back to work but I was light headed and just not the same.  Despite not being quite "right" they did the second DBS surgery for my left side in Nov. of 08.  I was never the same after that.  My systems exploded:  neruogenic bladder ( I self cath now) passing out (OH) falling alot, bad speech, sleep apnea, swollowing problems, constipation, weight gain (florinef ?) massive fatique and stiffness.  My wife suspected that I had MSA but my neurologist said no.  He finally agreed it was MSA in Feb. of 09.  I am no longer able to work.  I just want to do some good for other people with this disease.