tlheyne's Journal

tlheyne: Sex: F; Data Quality: 2 stars; MS: 4 yrs; Type: Primary Progressive; Sensation: Severe; Overall: Moderate; Cognition: moderate; Vision: moderate; Speech: moderate; Swallowing: moderate; Upper limb: moderate; Walking: moderate

tlheyne: Female, 57 years; Strawberry Plains, TN

Primary Condition: MS
Type: Primary Progressive
First symptom: Mar 2008
Diagnosis: Mar 2009

2 stars
tlheyne lost a star • Apr 23, 2012
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InstantMe

Bad
tlheyne added an InstantMe for Jan 24, 2012 • Jan 24, 2012 10:34PM

Left leg/foot is burning badly.

What's making you feel bad?
Updated outcome

QOL
- Bad Social
- Good Mental
- Good Physical
tlheyne completed the QOL survey for Jan 24, 2012 • Jan 24, 2012
Your Quality of Life is improving! What sort of things are making it better?
MSRS

57
- Mild Cognition
- Mild Vision
- Mild Speech
- Mild Swallowing
- Mild Upper Limb
- Mild Walking
- Total Disability Sensation
tlheyne completed the MSRS survey for Jan 24, 2012 • Jan 24, 2012
What sort of things are making your MS symptoms worse?
Weight

198 lb

BMI

34.0
tlheyne updated heryour weight for Jan 24, 2012 • Jan 24, 2012
Is there anything in particular that influenced this weight decrease?
New evaluation

Mirapex Treatment Evaluation
- Efficacy for Restless feeling in legs: Major
- Side Effects: None
- Adherence: Always
- Burden: Not at all
tlheyne added a treatment evaluation for Mirapex from Jan 1, 2012 • Jan 24, 2012
Stopped treatment

Mirapex
- Stopped: Jan 1, 2012
- Reason: Change in health plan coverage
tlheyne stopped taking the treatment Mirapex • Jan 24, 2012
What else would you like to share about stopping this treatment?
Hospitalization

Thyroidectomy
- Admitted: Aug 13, 2008
- Discharged: Aug 14, 2008
tlheyne added a hospitalization for Thyroidectomy • Jan 24, 2012
What else would you like to share about this hospitalization?
Added

Symptom Update
- mild Walking problems
- mild Startle easily
- severe Numbness and Tingling with Pins and Needles
- none Choking on liquids
- severe Burning sensation
- mild Tremor
- mild Neck bones click with movement
- mild Heat and cold exacerbate symptoms
- mild Elevated blood pressure
- mild Stiffness in fingers
- moderate Restless feeling in legs
- severe Numbness
- severe Brain fog
- moderate Pain in knees
- mild Electric shock sensations in wrists and hands
- none Anxious mood
- moderate Weakness in arms
- none Emotional lability
- mild Balance problems
- none Muscle twitching (fasciculations)
- mild Fatigue
- mild Acid reflux
- mild Uhthoff's phenomenon
- mild Stiffness/Spasticity
- severe Pain
- mild Excessive daytime sleepiness (somnolence)
- none Night sweats
- none Mood swings
- moderate Joint stiffness
- severe Sexual dysfunction
- mild Memory lapses (brain blinks)
- moderate Joint pain
- none Depressed mood
- mild Choking on food
- none Insomnia
- moderate Heat intolerance
- severe Dental problems
- none Coughing while drinking
- mild Bowel problems
- severe Weight gain
- mild Walking slower
- severe Nerve pain (neuralgia)
- none Coughing while eating
- moderate Bladder problems
- See more
tlheyne updated heryour symptoms for Jan 24, 2012 • Jan 24, 2012
What else would you like to share about these symptoms?
3 stars
tlheyne earned 2 stars! • Jan 24, 2012
Congrats! Did you know 3 star members can get a free PLM t-shirt?
1 star
tlheyne lost a star • Jan 22, 2012
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InstantMe

Neutral
tlheyne added an InstantMe for Dec 30, 2011 • Dec 30, 2011 9:36PM

Very, very sleepy.

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Added

Symptom Update
tlheyne updated heryour symptoms for Dec 31, 2011 • Dec 30, 2011
What else would you like to share about these symptoms?
InstantMe

Bad
tlheyne added an InstantMe for Jan 30, 2011 • Jan 30, 2011 2:40PM

So very sleepy. Slight eye strain.

What's making you feel bad?

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About tlheyne