1. 12488 thumb
    Gerd-NF
    Sex: M
    Data Quality: 3 stars
    Bulbar: severe
    Arms: severe
    Chest: severe
    Legs: severe
    I am: g
    I have:
    ALS

    Gerd-NF completed the FRS survey

    • FRS: 0
    • severe Head
    • severe Arms
    • severe Torso
    • severe Legs
  2. 12488 thumb
    Gerd-NF
    Sex: M
    Data Quality: 3 stars
    Bulbar: severe
    Arms: severe
    Chest: severe
    Legs: severe
    I am: g
    I have:
    ALS

    Gerd-NF updated his weight

  3. 12488 thumb
    Gerd-NF
    Sex: M
    Data Quality: 3 stars
    Bulbar: severe
    Arms: severe
    Chest: severe
    Legs: severe
    I am: g
    I have:
    ALS

    Gerd-NF updated his symptoms

    Anxious mood WorseAnxious mood, Depressed mood, Fasciculations, Pain throughout body
  4. 12488 thumb
    Gerd-NF
    Sex: M
    Data Quality: 3 stars
    Bulbar: severe
    Arms: severe
    Chest: severe
    Legs: severe
    I am: g
    I have:
    ALS

    Gerd-NF became a 3 star data donor! star earnedstar earnedstar earned

  5. 12488 thumb
    Gerd-NF
    Sex: M
    Data Quality: 3 stars
    Bulbar: severe
    Arms: severe
    Chest: severe
    Legs: severe
    I am: g
    I have:
    ALS

    Gerd-NF shared details about Speech / Language Therapy

    Stopped
  6. 12488 thumb
    Gerd-NF
    Sex: M
    Data Quality: 3 stars
    Bulbar: severe
    Arms: severe
    Chest: severe
    Legs: severe
    I am: g
    I have:
    ALS

    Gerd-NF became a 3 star data donor! star earnedstar earnedstar earned

  7. 12488 thumb
    Gerd-NF
    Sex: M
    Data Quality: 3 stars
    Bulbar: severe
    Arms: severe
    Chest: severe
    Legs: severe
    I am: g
    I have:
    ALS

    Gerd-NF updated his weight

  8. 12488 thumb
    Gerd-NF
    Sex: M
    Data Quality: 3 stars
    Bulbar: severe
    Arms: severe
    Chest: severe
    Legs: severe
    I am: g
    I have:
    ALS

    Gerd-NF updated his symptoms for

    Fatigue WorseFatigue
  9. 12488 thumb
    Gerd-NF
    Sex: M
    Data Quality: 3 stars
    Bulbar: severe
    Arms: severe
    Chest: severe
    Legs: severe
    I am: g
    I have:
    ALS

    Gerd-NF became a 3 star data donor! star earnedstar earnedstar earned

  10. 12488 thumb
    Gerd-NF
    Sex: M
    Data Quality: 3 stars
    Bulbar: severe
    Arms: severe
    Chest: severe
    Legs: severe
    I am: g
    I have:
    ALS

    Gerd-NF completed the FRS survey

    • FRS: 0
    • severe Head
    • severe Arms
    • severe Torso
    • severe Legs
  11. 12488 thumb
    Gerd-NF
    Sex: M
    Data Quality: 3 stars
    Bulbar: severe
    Arms: severe
    Chest: severe
    Legs: severe
    I am: g
    I have:
    ALS

    Gerd-NF became a 3 star data donor! star earnedstar earnedstar earned

  12. 12488 thumb
    Gerd-NF
    Sex: M
    Data Quality: 3 stars
    Bulbar: severe
    Arms: severe
    Chest: severe
    Legs: severe
    I am: g
    I have:
    ALS

    Gerd-NF added a treatment evaluation for Botox to Salivary Glands

    • Perceived effectiveness for Excess saliva: None
    • Side Effects: None
    • Adherence: Always
    • Burden: Somewhat
    • Dosage: 80 mL Every 3 months
  13. 12488 thumb
    Gerd-NF
    Sex: M
    Data Quality: 3 stars
    Bulbar: severe
    Arms: severe
    Chest: severe
    Legs: severe
    I am: g
    I have:
    ALS

    Gerd-NF shared details about Metoclopramide

    Stopped
  14. 12488 thumb
    Gerd-NF
    Sex: M
    Data Quality: 3 stars
    Bulbar: severe
    Arms: severe
    Chest: severe
    Legs: severe
    I am: g
    I have:
    ALS

    Gerd-NF shared details about Ibuprofen Prescription

    2400 mg weekly (was 4000 mg weekly until ) Dosage2400 mg weekly (was 4000 mg weekly until )
  15. 12488 thumb
    Gerd-NF
    Sex: M
    Data Quality: 3 stars
    Bulbar: severe
    Arms: severe
    Chest: severe
    Legs: severe
    I am: g
    I have:
    ALS
  16. 12488 thumb
    Gerd-NF
    Sex: M
    Data Quality: 3 stars
    Bulbar: severe
    Arms: severe
    Chest: severe
    Legs: severe
    I am: g
    I have:
    ALS

    Gerd-NF started taking Gastrozepin

    Dosage100 mg daily (starting )
  17. 12488 thumb
    Gerd-NF
    Sex: M
    Data Quality: 3 stars
    Bulbar: severe
    Arms: severe
    Chest: severe
    Legs: severe
    I am: g
    I have:
    ALS

    Gerd-NF stopped taking Botox to Salivary Glands

    ReasonsDid not seem to work
  18. 12488 thumb
    Gerd-NF
    Sex: M
    Data Quality: 3 stars
    Bulbar: severe
    Arms: severe
    Chest: severe
    Legs: severe
    I am: g
    I have:
    ALS

    Gerd-NF updated his weight

  19. 12488 thumb
    Gerd-NF
    Sex: M
    Data Quality: 3 stars
    Bulbar: severe
    Arms: severe
    Chest: severe
    Legs: severe
    I am: g
    I have:
    ALS

    Gerd-NF updated his symptoms

    Depressed mood WorseDepressed mood, Insomnia, Pain, Pain in knees
  20. 12488 thumb
    Gerd-NF
    Sex: M
    Data Quality: 3 stars
    Bulbar: severe
    Arms: severe
    Chest: severe
    Legs: severe
    I am: g
    I have:
    ALS

    Gerd-NF became a 3 star data donor! star earnedstar earnedstar earned

  21. Show more