1. Portrait default thumb
    Dieborras
    Data Quality: 2 stars
    • Sex: M
    • Age: 28
    Condition: SCID 2 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: b
    I have:
    SCID

    Doctors tested all antifungal drugs and is doing me no effect. I also implemented immunoglobulin are not working for me.
    I really feel hopeless

  2. Portrait default thumb
    Dieborras
    Data Quality: 2 stars
    • Sex: M
    • Age: 28
    Condition: SCID 2 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: b
    I have:
    SCID

    Dieborras added a treatment evaluation for posaconazole from

    • Perceived effectiveness for Oral thrush (candidiasis): None
    • Side Effects: None
    • Adherence: Always
    • Burden: A little
    • Dosage: 40 mg Twice daily
    • Advice & Tips: I haven't any positive response
    I haven't any positive response
  3. Portrait default thumb
    Dieborras
    Data Quality: 2 stars
    • Sex: M
    • Age: 28
    Condition: SCID 2 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: b
    I have:
    SCID

    Dieborras updated his weight

  4. Portrait default thumb
    Dieborras
    Data Quality: 2 stars
    • Sex: M
    • Age: 28
    Condition: SCID 2 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: b
    I have:
    SCID

    Dieborras completed the QOL survey

    • moderate Social
    • moderate Mental
    • moderate Physical
  5. Portrait default thumb
    Dieborras
    Data Quality: 2 stars
    • Sex: M
    • Age: 28
    Condition: SCID 2 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: b
    I have:
    SCID

    Dieborras is in the hospital for Infectious disease specialist consult

    Admitted
  6. Portrait default thumb
    Dieborras
    Data Quality: 2 stars
    • Sex: M
    • Age: 28
    Condition: SCID 2 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: b
    I have:
    SCID

    Dieborras stopped taking Amphotericin B

    ReasonsDid not seem to work
  7. Portrait default thumb
    Dieborras
    Data Quality: 2 stars
    • Sex: M
    • Age: 28
    Condition: SCID 2 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: b
    I have:
    SCID

    Dieborras shared details about Nystatin

  8. Portrait default thumb
    Dieborras
    Data Quality: 2 stars
    • Sex: M
    • Age: 28
    Condition: SCID 2 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: b
    I have:
    SCID

    Dieborras shared details about Caspofungin

    Stopped
  9. Portrait default thumb
    Dieborras
    Data Quality: 2 stars
    • Sex: M
    • Age: 28
    Condition: SCID 2 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: b
    I have:
    SCID

    Dieborras updated the condition Candidiasis (yeast infection)

    • First symptom:
    • Diagnosis:
  10. Portrait default thumb
    Dieborras
    Data Quality: 2 stars
    • Sex: M
    • Age: 28
    Condition: SCID 2 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: b
    I have:
    SCID

    Dieborras shared details about posaconazole

    Dosage40 mg twice daily (starting )
  11. Portrait default thumb
    Dieborras
    Data Quality: 2 stars
    • Sex: M
    • Age: 28
    Condition: SCID 2 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: b
    I have:
    SCID

    Dieborras updated his basic information

  12. Portrait default thumb
    Dieborras
    Data Quality: 2 stars
    • Sex: M
    • Age: 28
    Condition: SCID 2 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: b
    I have:
    SCID

    Dieborras updated his symptoms

    Fatigue BetterFatigue, Pain, Pneumonia symptoms
    Insomnia WorseInsomnia
  13. Portrait default thumb
    Dieborras
    Data Quality: 2 stars
    • Sex: M
    • Age: 28
    Condition: SCID 2 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: b
    I have:
    SCID

    Dieborras updated the condition SCID (Severe Combined Immunodeficiency Disease)

    • First symptom:
    • Diagnosis: ?
  14. Portrait default thumb
    Dieborras
    Data Quality: 2 stars
    • Sex: M
    • Age: 28
    Condition: SCID 2 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: b
    I have:
    SCID

    Dieborras updated his weight

  15. Portrait default thumb
    Dieborras
    Data Quality: 2 stars
    • Sex: M
    • Age: 28
    Condition: SCID 2 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: b
    I have:
    SCID

    Stopped Ketoconazole

    • Stopped:
    • Reasons: Doctor's advice
  16. Portrait default thumb
    Dieborras
    Data Quality: 2 stars
    • Sex: M
    • Age: 28
    Condition: SCID 2 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: b
    I have:
    SCID

    Stopped Itraconazole

    • Stopped:
    • Reasons: Did not seem to work
  17. Portrait default thumb
    Dieborras
    Data Quality: 2 stars
    • Sex: M
    • Age: 28
    Condition: SCID 2 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: b
    I have:
    SCID

    Stopped Intravenous Immuno Globulin IVIg

    • Stopped:
    • Reasons: Change in health plan coverage
  18. Portrait default thumb
    Dieborras
    Data Quality: 2 stars
    • Sex: M
    • Age: 28
    Condition: SCID 2 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: b
    I have:
    SCID

    Dieborras completed the QOL survey

    • moderate Social
    • severe Mental
    • moderate Physical
  19. Portrait default thumb
    Dieborras
    Data Quality: 2 stars
    • Sex: M
    • Age: 28
    Condition: SCID 2 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: b
    I have:
    SCID

    Dieborras was in the hospital for Pneumonia symptoms

    Dates
    -
  20. Portrait default thumb
    Dieborras
    Data Quality: 2 stars
    • Sex: M
    • Age: 28
    Condition: SCID 2 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: b
    I have:
    SCID

    Dieborras updated his symptoms

    severe SeverePneumonia symptoms, Fatigue
    moderate ModeratePain, Anxious mood, Depressed mood
  21. Show more