speechlessinseattle's Journal

speechlessinseattle: Sex: F; Data Quality: 3 stars; ALS: 6 yrs; Bulbar: mild; Arms: none; Chest: none; Legs: moderate

speechlessinseattle: Female, 52 years; Seattle, WA

Primary Condition: ALS and 2 more ▼

First symptom: Oct 2006
Diagnosis: Feb 2009

Interests: Alternative Medicine, and Research

speechlessinseattle

Sex: F

Data Quality: 3 stars

Bulbar: mild

Arms: none

Chest: none

Legs: moderate

I am: n

I have:
ALS
Albuterol Inhaler Treatment Evaluation
- Perceived effectiveness for Decreased respiration: Slight
- Side Effects: None
- Adherence: Sometimes
- Burden: Not at all
Cost

< $25 monthly

speechlessinseattle added a treatment evaluation for Albuterol Inhaler May 09, 2013
speechlessinseattle

Sex: F

Data Quality: 3 stars

Bulbar: mild

Arms: none

Chest: none

Legs: moderate

I am: n

I have:
ALS
Albuterol Inhaler
- - Started: Oct 1, 2008
  - Current Dosage: 90mcg/inh as needed
- Purpose: Decreased respiration
- View Latest Evaluation
speechlessinseattle updated the treatment Albuterol Inhaler May 09, 2013
- Added
  - Started: Oct 01, 2008
  - Dosage: 90mcg/inh as needed
  - Purpose: Decreased respiration
  - Oct 01, 2008
- Evaluated
  - View Evaluation
  - Jun 01, 2009
- Evaluated
  - View Evaluation
  - Sep 02, 2010
- Evaluated
  - View Evaluation
  - Sep 17, 2011
- Evaluated
  - View Evaluation
  - May 09, 2013
speechlessinseattle

Sex: F

Data Quality: 3 stars

Bulbar: mild

Arms: none

Chest: none

Legs: moderate

I am: n

I have:
ALS
ALS (Amyotrophic Lateral Sclerosis)
- First symptom: Oct 1, 2006
- Diagnosis: Feb 1, 2009
speechlessinseattle updated the condition ALS (Amyotrophic Lateral Sclerosis) May 06, 2013
speechlessinseattle

Sex: F

Data Quality: 3 stars

Bulbar: mild

Arms: none

Chest: none

Legs: moderate

I am: n

I have:
ALS
FRS: 35
- mild Head
- none Arms
- none Torso
- moderate Legs
speechlessinseattle completed the FRS survey for Apr 30, 2013 May 04, 2013
speechlessinseattle

Sex: F

Data Quality: 3 stars

Bulbar: mild

Arms: none

Chest: none

Legs: moderate

I am: n

I have:
ALS

Neutral
speechlessinseattle added an InstantMe for Apr 20, 2013 Apr 20, 2013 2:54PM
speechlessinseattle

Sex: F

Data Quality: 3 stars

Bulbar: mild

Arms: none

Chest: none

Legs: moderate

I am: n

I have:
ALS

Good
speechlessinseattle added an InstantMe for Apr 19, 2013 Apr 20, 2013 1:42AM
speechlessinseattle

Sex: F

Data Quality: 3 stars

Bulbar: mild

Arms: none

Chest: none

Legs: moderate

I am: n

I have:
ALS
QOL
- Good Social
- Good Mental
- Good Physical
speechlessinseattle completed the QOL survey for Apr 14, 2013 Apr 15, 2013
speechlessinseattle

Sex: F

Data Quality: 3 stars

Bulbar: mild

Arms: none

Chest: none

Legs: moderate

I am: n

I have:
ALS

Good
speechlessinseattle added an InstantMe for Apr 14, 2013 Apr 15, 2013 1:01AM
speechlessinseattle

Sex: F

Data Quality: 3 stars

Bulbar: mild

Arms: none

Chest: none

Legs: moderate

I am: n

I have:
ALS
Symptom Update
- moderate Acid reflux
- mild Anxious mood
- mild Atrophy of calf muscles
- none Atrophy of hand muscles
- moderate Back pain
- severe Balance problems
- mild Biting inner lip
- mild Bowel urgency
- mild Breathing difficulty
- mild Burning sensation in soles of feet
- mild Chest pressure
- none Choking in my sleep
- mild Choking on food
- mild Choking on liquids
- severe Clonus spasms
- severe Cold and heat intolerance
- severe Cold intolerance
- mild Constipation
- mild Coughing while drinking
- mild Coughing while eating
- moderate Cramps
- moderate Cramps in feet
- moderate Cramps in hands
- mild Decreased respiration
- mild Depressed mood
- moderate Difficulty sleeping through night
- mild Difficulty turning over or moving in bed
- mild Disease progression increased
- none Dizziness
- moderate Dry skin
- none Ears pop
- moderate Emotional lability
- none Excessive yawning
- mild Excess mucus
- none Excess saliva
- mild Falls
- moderate Fasciculations
- mild Fatigue
- severe Foot drop
- severe Foot drop (left)
- severe Foot drop (right)
- moderate Gag response abnormal
- mild Generalized weakness (asthenia)
- mild Headaches
- moderate Heartburn
- moderate Hyperreflexia
- moderate Indigestion
- mild Insomnia
- none Intermittent strong vibration down right leg
- none Lightheadedness
- none Loss of manual dexterity
- mild Muscle weakness
- mild Nasal congestion
- mild Neck movement dizziness (Cervicogenic dizziness)
- moderate Pain
- moderate Slurred speech
- moderate Staggering walk
- moderate Startle easily (hyperexplexia)
- none Stiffness in neck
- mild Stiffness/Spasticity
- mild Swelling in legs, feet and ankles
- none Tiredness increased
- mild Tongue biting
- moderate Uncontrollable laughter
- moderate Urinary urgency
- none Vitamin D deficiency
- moderate Walking problems
- none Weakness in arms
- mild Weakness in legs
- none Weakness in lips
- none Weakness in neck (head drop)
- See more
speechlessinseattle updated her symptoms for Apr 14, 2013 Apr 15, 2013
speechlessinseattle

Sex: F

Data Quality: 3 stars

Bulbar: mild

Arms: none

Chest: none

Legs: moderate

I am: n

I have:
ALS
QOL
- Good Social
- Good Mental
- Bad Physical
speechlessinseattle completed the QOL survey for Apr 11, 2013 Apr 11, 2013
speechlessinseattle

Sex: F

Data Quality: 3 stars

Bulbar: mild

Arms: none

Chest: none

Legs: moderate

I am: n

I have:
ALS

Good
speechlessinseattle added an InstantMe for Apr 7, 2013 Apr 07, 2013 11:01PM
speechlessinseattle

Sex: F

Data Quality: 3 stars

Bulbar: mild

Arms: none

Chest: none

Legs: moderate

I am: n

I have:
ALS
FRS: 36
- mild Head
- none Arms
- none Torso
- moderate Legs
speechlessinseattle completed the FRS survey for Apr 4, 2013 Apr 04, 2013
speechlessinseattle

Sex: F

Data Quality: 3 stars

Bulbar: mild

Arms: none

Chest: none

Legs: moderate

I am: n

I have:
ALS

Good
speechlessinseattle added an InstantMe for Mar 27, 2013 Mar 27, 2013 4:16PM
speechlessinseattle

Sex: F

Data Quality: 3 stars

Bulbar: mild

Arms: none

Chest: none

Legs: moderate

I am: n

I have:
ALS

Good
speechlessinseattle added an InstantMe for Mar 20, 2013 Mar 20, 2013 7:51PM
speechlessinseattle

Sex: F

Data Quality: 3 stars

Bulbar: mild

Arms: none

Chest: none

Legs: moderate

I am: n

I have:
ALS

228 lb BMI: 39.1
speechlessinseattle updated her weight for Mar 17, 2013 Mar 17, 2013
speechlessinseattle

Sex: F

Data Quality: 3 stars

Bulbar: mild

Arms: none

Chest: none

Legs: moderate

I am: n

I have:
ALS
Symptom Update
- moderate Acid reflux
- mild Anxious mood
- mild Atrophy of calf muscles
- none Atrophy of hand muscles
- moderate Back pain
- severe Balance problems
- moderate Biting inner lip
- mild Bowel urgency
- mild Breathing difficulty
- mild Burning sensation in soles of feet
- none Chest pressure
- none Choking in my sleep
- mild Choking on food
- mild Choking on liquids
- severe Clonus spasms
- moderate Cold and heat intolerance
- moderate Cold intolerance
- mild Constipation
- mild Coughing while drinking
- mild Coughing while eating
- moderate Cramps
- moderate Cramps in feet
- moderate Cramps in hands
- mild Decreased respiration
- mild Depressed mood
- moderate Difficulty sleeping through night
- mild Difficulty turning over or moving in bed
- mild Disease progression increased
- none Dizziness
- moderate Dry skin
- mild Ears pop
- moderate Electric shock sensations
- moderate Emotional lability
- none Excessive yawning
- none Excess mucus
- mild Excess saliva
- none Falls
- mild Fasciculations
- mild Fatigue
- severe Foot drop
- severe Foot drop (left)
- severe Foot drop (right)
- moderate Gag response abnormal
- mild Generalized weakness (asthenia)
- none Headaches
- moderate Heartburn
- severe Hyperreflexia
- moderate Indigestion
- moderate Insomnia
- mild Intermittent strong vibration down right leg
- none Lightheadedness
- none Loss of manual dexterity
- mild Muscle weakness
- none Nasal congestion
- none Neck movement dizziness (Cervicogenic dizziness)
- moderate Pain
- moderate Slurred speech
- moderate Staggering walk
- severe Startle easily (hyperexplexia)
- none Stiffness in neck
- moderate Stiffness/Spasticity
- mild Swelling in legs, feet and ankles
- none Tiredness increased
- mild Tongue biting
- moderate Uncontrollable laughter
- mild Urinary urgency
- none Vitamin D deficiency
- moderate Walking problems
- none Weakness in arms
- mild Weakness in legs
- none Weakness in lips
- none Weakness in neck (head drop)
- See more
speechlessinseattle updated her symptoms for Mar 17, 2013 Mar 17, 2013
speechlessinseattle

Sex: F

Data Quality: 3 stars

Bulbar: mild

Arms: none

Chest: none

Legs: moderate

I am: n

I have:
ALS

Good
speechlessinseattle added an InstantMe for Mar 17, 2013 Mar 17, 2013 5:02AM
speechlessinseattle

Sex: F

Data Quality: 3 stars

Bulbar: mild

Arms: none

Chest: none

Legs: moderate

I am: n

I have:
ALS

Neutral
speechlessinseattle added an InstantMe for Mar 16, 2013 Mar 16, 2013 6:12AM
speechlessinseattle

Sex: F

Data Quality: 3 stars

Bulbar: mild

Arms: none

Chest: none

Legs: moderate

I am: n

I have:
ALS
FRS: 36
- mild Head
- none Arms
- none Torso
- moderate Legs
speechlessinseattle completed the FRS survey for Feb 27, 2013 Feb 27, 2013
speechlessinseattle

Sex: F

Data Quality: 3 stars

Bulbar: mild

Arms: none

Chest: none

Legs: moderate

I am: n

I have:
ALS
Symptom Update
- moderate Acid reflux
- mild Anxious mood
- mild Atrophy of calf muscles
- none Atrophy of hand muscles
- moderate Back pain
- severe Balance problems
- mild Biting inner lip
- mild Bowel urgency
- none Breathing difficulty
- mild Burning sensation in soles of feet
- none Chest pressure
- none Choking in my sleep
- mild Choking on food
- mild Choking on liquids
- moderate Clonus spasms
- severe Cold and heat intolerance
- severe Cold intolerance
- mild Constipation
- mild Coughing while drinking
- mild Coughing while eating
- moderate Cramps
- moderate Cramps in feet
- moderate Cramps in hands
- none Decreased respiration
- none Depressed mood
- mild Difficulty sleeping through night
- mild Difficulty turning over or moving in bed
- mild Disease progression increased
- none Dizziness
- moderate Dry skin
- none Ears pop
- none Electric shock sensations
- moderate Emotional lability
- none Excessive yawning
- none Excess mucus
- none Excess saliva
- none Falls
- moderate Fasciculations
- mild Fatigue
- severe Foot drop
- severe Foot drop (left)
- severe Foot drop (right)
- mild Gag response abnormal
- mild Generalized weakness (asthenia)
- none Headaches
- moderate Heartburn
- severe Hyperreflexia
- moderate Indigestion
- mild Insomnia
- none Intermittent strong vibration down right leg
- none Lightheadedness
- none Loss of manual dexterity
- mild Muscle weakness
- none Nasal congestion
- none Neck movement dizziness (Cervicogenic dizziness)
- mild Pain
- moderate Slurred speech
- moderate Staggering walk
- moderate Startle easily (hyperexplexia)
- none Stiffness in neck
- severe Stiffness/Spasticity
- mild Swelling in legs, feet and ankles
- mild Tiredness increased
- mild Tongue biting
- moderate Uncontrollable laughter
- mild Urinary urgency
- mild Vitamin D deficiency
- moderate Walking problems
- none Weakness in arms
- mild Weakness in legs
- none Weakness in lips
- none Weakness in neck (head drop)
- See more
speechlessinseattle updated her symptoms for Feb 24, 2013 Feb 24, 2013
Show more