12164-full
speechlessinseattle
Sex: F
Data Quality: 3 stars
ALS: 6 yrs
Bulbar: mild
Arms: none
Chest: none
Legs: moderate
speechlessinseattle
Female, 52 years
Seattle, WA
Primary Condition
ALS and 2 more
First symptom
Diagnosis
Interests
Alternative Medicine, and Research
See more
  1. 12164-thumb
    speechlessinseattle
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: none
    Chest: none
    Legs: moderate
    I am: g
    I have:
    ALS

    Good

    added an InstantMe for Jun 17, 2013 Jun 17, 2013 4:03PM

    Because I fell getting out of tub' all I got was bloody fat lip so I can work with that no problem!

    1 comment from other members. Only showing public users' comments. Sign up to see all comments!
    • 12164-thumb
      speechlessinseattle
      Sex: F
      Data Quality: 3 stars
      Bulbar: mild
      Arms: none
      Chest: none
      Legs: moderate
      I am: g
      I have:
      ALS

      223 lb BMI: 38.3

      updated her weight for Jun 16, 2013 Jun 16, 2013
    • 12164-thumb
      speechlessinseattle
      Sex: F
      Data Quality: 3 stars
      Bulbar: mild
      Arms: none
      Chest: none
      Legs: moderate
      I am: g
      I have:
      ALS
      star earnedstar earnedstar earned 3 stars
      earned a star! Jun 16, 2013
    • 12164-thumb
      speechlessinseattle
      Sex: F
      Data Quality: 3 stars
      Bulbar: mild
      Arms: none
      Chest: none
      Legs: moderate
      I am: g
      I have:
      ALS

      Good

      added an InstantMe for Jun 15, 2013 Jun 15, 2013 10:15AM
    • 12164-thumb
      speechlessinseattle
      Sex: F
      Data Quality: 3 stars
      Bulbar: mild
      Arms: none
      Chest: none
      Legs: moderate
      I am: g
      I have:
      ALS
      star earnedstar earnedstar  notearned 2 stars
      lost a star Jun 15, 2013
    • 12164-thumb
      speechlessinseattle
      Sex: F
      Data Quality: 3 stars
      Bulbar: mild
      Arms: none
      Chest: none
      Legs: moderate
      I am: g
      I have:
      ALS

      QOL

      • Good Social
      • Good Mental
      • Bad Physical
      completed the QOL survey for Jun 5, 2013 Jun 05, 2013
    • 12164-thumb
      speechlessinseattle
      Sex: F
      Data Quality: 3 stars
      Bulbar: mild
      Arms: none
      Chest: none
      Legs: moderate
      I am: g
      I have:
      ALS

      FRS: 34

      • mild Head
      • none Arms
      • none Torso
      • moderate Legs
      completed the FRS survey for May 29, 2013 May 29, 2013
    • 12164-thumb
      speechlessinseattle
      Sex: F
      Data Quality: 3 stars
      Bulbar: mild
      Arms: none
      Chest: none
      Legs: moderate
      I am: g
      I have:
      ALS

      Albuterol Inhaler Treatment Evaluation

      • Perceived effectiveness for Decreased respiration: Led_efficacy_2Led_efficacy_2Led_defaultLed_defaultSlight
      • Side Effects: NoneNoneNoneNoneNone
      • Adherence: SometimesSometimesSometimesSometimesSometimes
      • Burden: Not at allNot at allNot at allNot at allNot at all
      added a treatment evaluation for Albuterol Inhaler May 09, 2013
    • 12164-thumb
      speechlessinseattle
      Sex: F
      Data Quality: 3 stars
      Bulbar: mild
      Arms: none
      Chest: none
      Legs: moderate
      I am: g
      I have:
      ALS

      Albuterol Inhaler

        • Started: Oct 1, 2008
        • Current Dosage: 90mcg/inh as needed
      • Purpose: Decreased respiration
      • View Latest Evaluation
      updated the treatment Albuterol Inhaler May 09, 2013
    • 12164-thumb
      speechlessinseattle
      Sex: F
      Data Quality: 3 stars
      Bulbar: mild
      Arms: none
      Chest: none
      Legs: moderate
      I am: g
      I have:
      ALS

      ALS (Amyotrophic Lateral Sclerosis)

      • First symptom:
      • Diagnosis:
      updated the condition ALS (Amyotrophic Lateral Sclerosis) May 06, 2013
    • 12164-thumb
      speechlessinseattle
      Sex: F
      Data Quality: 3 stars
      Bulbar: mild
      Arms: none
      Chest: none
      Legs: moderate
      I am: g
      I have:
      ALS

      FRS: 35

      • mild Head
      • none Arms
      • none Torso
      • moderate Legs
      completed the FRS survey for Apr 30, 2013 May 04, 2013
    • 12164-thumb
      speechlessinseattle
      Sex: F
      Data Quality: 3 stars
      Bulbar: mild
      Arms: none
      Chest: none
      Legs: moderate
      I am: g
      I have:
      ALS

      Neutral

      added an InstantMe for Apr 20, 2013 Apr 20, 2013 2:54PM
    • 12164-thumb
      speechlessinseattle
      Sex: F
      Data Quality: 3 stars
      Bulbar: mild
      Arms: none
      Chest: none
      Legs: moderate
      I am: g
      I have:
      ALS

      Good

      added an InstantMe for Apr 19, 2013 Apr 20, 2013 1:42AM
    • 12164-thumb
      speechlessinseattle
      Sex: F
      Data Quality: 3 stars
      Bulbar: mild
      Arms: none
      Chest: none
      Legs: moderate
      I am: g
      I have:
      ALS

      QOL

      • Good Social
      • Good Mental
      • Good Physical
      completed the QOL survey for Apr 14, 2013 Apr 15, 2013
    • 12164-thumb
      speechlessinseattle
      Sex: F
      Data Quality: 3 stars
      Bulbar: mild
      Arms: none
      Chest: none
      Legs: moderate
      I am: g
      I have:
      ALS

      Good

      added an InstantMe for Apr 14, 2013 Apr 15, 2013 1:01AM
    • 12164-thumb
      speechlessinseattle
      Sex: F
      Data Quality: 3 stars
      Bulbar: mild
      Arms: none
      Chest: none
      Legs: moderate
      I am: g
      I have:
      ALS

      Symptom Update

      • moderate Acid reflux
      • mild Anxious mood
      • mild Atrophy of calf muscles
      • none Atrophy of hand muscles
      • moderate Back pain
      • severe Balance problems
      • See more
      updated her symptoms for Apr 14, 2013 Apr 15, 2013
    • 12164-thumb
      speechlessinseattle
      Sex: F
      Data Quality: 3 stars
      Bulbar: mild
      Arms: none
      Chest: none
      Legs: moderate
      I am: g
      I have:
      ALS

      QOL

      • Good Social
      • Good Mental
      • Bad Physical
      completed the QOL survey for Apr 11, 2013 Apr 11, 2013
    • 12164-thumb
      speechlessinseattle
      Sex: F
      Data Quality: 3 stars
      Bulbar: mild
      Arms: none
      Chest: none
      Legs: moderate
      I am: g
      I have:
      ALS

      Good

      added an InstantMe for Apr 7, 2013 Apr 07, 2013 11:01PM
    • 12164-thumb
      speechlessinseattle
      Sex: F
      Data Quality: 3 stars
      Bulbar: mild
      Arms: none
      Chest: none
      Legs: moderate
      I am: g
      I have:
      ALS

      FRS: 36

      • mild Head
      • none Arms
      • none Torso
      • moderate Legs
      completed the FRS survey for Apr 4, 2013 Apr 04, 2013
    • 12164-thumb
      speechlessinseattle
      Sex: F
      Data Quality: 3 stars
      Bulbar: mild
      Arms: none
      Chest: none
      Legs: moderate
      I am: g
      I have:
      ALS

      Good

      added an InstantMe for Mar 27, 2013 Mar 27, 2013 4:16PM
    • Show more