speechlessinseattle's Journal

speechlessinseattle: Sex: F; Data Quality: 3 stars; ALS: 5 yrs; Bulbar: mild; Arms: none; Chest: none; Legs: moderate

speechlessinseattle: Female, 51 years; Seattle, WA

Primary Condition: ALS and 2 more ▼
First symptom: Oct 2006
Diagnosis: Feb 2009

Added treatment

Virgin Coconut Oil
- Started: Feb 15, 2011
- Dosage: 12 tbs. daily
- Purpose: General health
speechlessinseattle added the treatment Virgin Coconut Oil • May 20, 2012
What else would you like to share about this treatment?
3 comments from other members. Sign up to see comments!
Stopped treatment

Ranitidine
- Stopped: May 19, 2012
- Reason: Other
speechlessinseattle stopped taking the treatment Ranitidine • May 20, 2012
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New lab result

Blood Pressure

Systolic

117 mmHg

Diastolic

78 mmHg

speechlessinseattle added a new Blood Pressure value for May 16, 2012 • May 23, 2012
What else would you like to share about this lab result?
Added treatment

Lorazepam
- Started: May 23, 2012
- Dosage: 1mg as needed
- Purpose: Anxious mood
speechlessinseattle added the treatment Lorazepam • May 23, 2012
What else would you like to share about this treatment?
Added treatment

Black raspberry
- Started: May 15, 2012
- Dosage: 900 mg daily
- Purpose: General health
speechlessinseattle added the treatment Black raspberry • May 23, 2012
What else would you like to share about this treatment?
Added

Symptom Update
- none not sure
- mild Excess mucus
- moderate Acid reflux
- none Coughing while eating
- mild Tiredness increased
- none Decreased respiration
- moderate Walking problems
- mild Lightheadedness
- none Coughing while drinking
- none Dry skin
- mild Dizziness
- mild Biting inner lip
- moderate Indigestion
- none Choking on food
- moderate Foot drop
- moderate Cramps in feet
- severe Clonus spasms
- moderate Balance problems
- none Weakness in lips
- mild Neck movement dizziness (Cervicogenic dizziness)
- mild Generalized weakness (asthenia)
- none Depressed mood
- mild Insomnia
- moderate Slurred speech
- mild Gag response abnormal
- mild Fasciculations
- moderate Constipation
- mild Difficulty turning over or moving in bed
- none over all health
- mild Atrophy of hand muscles
- mild Difficulty sleeping through night
- none Tightness around feet uncomfortable; feels better without the braces
- mild Intermittent strong vibration down right leg
- mild Weakness in neck (head drop)
- moderate Cramps in hands
- mild Stiffness in neck
- moderate Stiffness/Spasticity
- moderate Heartburn
- moderate Cold intolerance
- mild Atrophy of calf muscles
- none Weakness in arms
- mild Vitamin D deficiency
- mild Tongue biting
- moderate Pain
- moderate Urinary urgency
- mild Disease progression increased
- none Falls
- mild Burning sensation in soles of feet
- mild Fatigue
- none Excessive yawning
- moderate Weakness in legs
- moderate Back pain
- none leaning to the right
- mild Emotional lability
- none Loss of manual dexterity
- mild Nasal congestion
- none Ears pop
- moderate Anxious mood
- moderate Staggering walk
- mild Muscle weakness
- moderate feel unstable
- mild Excess saliva
- moderate Foot drop (left)
- mild hip retraction
- moderate Cramps
- moderate Bowel urgency
- mild Breathing difficulty
- mild Choking in my sleep
- moderate Uncontrollable laughter
- none Choking on liquids
- moderate Foot drop (right)
- mild Startle easily
- mild Electric shock sensations
- mild Chest pressure
- See more
speechlessinseattle updated heryour symptoms for May 21, 2012 • May 21, 2012
What else would you like to share about these symptoms?
Added treatment

Ranitidine
- Started: May 19, 2012
- Dosage: 150 mg daily
- Purpose: GERD (Gastroesophageal reflux disease)
speechlessinseattle added the treatment Ranitidine • May 20, 2012
What else would you like to share about this treatment?
Added treatment

Tizanidine HCl
- Started: Nov 1, 2009
- Dosage: 6 mg daily
- Purpose: Stiffness/Spasticity
speechlessinseattle added the treatment Tizanidine HCl • May 20, 2012
What else would you like to share about this treatment?
Added treatment

Beta Carotene
- Started: Oct 1, 2007
- Dosage: 200 mg daily
- Purpose: over all health
speechlessinseattle added the treatment Beta Carotene • May 20, 2012
What else would you like to share about this treatment?
Added treatment

Astragalus
- Started: Jun 1, 2011
- Dosage: daily
speechlessinseattle added the treatment Astragalus • May 20, 2012
What else would you like to share about this treatment?
Added treatment

Mitochondrial Energy Optimizer with BioPQQ
- Started: Nov 1, 2010
- Dosage: 4 other daily
speechlessinseattle added the treatment Mitochondrial Energy Optimizer with BioPQQ • May 20, 2012
What else would you like to share about this treatment?
Updated outcome

QOL
- Best Social
- Good Mental
- Good Physical
speechlessinseattle completed the QOL survey for May 14, 2012 • May 14, 2012
Your Quality of Life is improving! What sort of things are making it better?
Updated outcome

QOL
- Good Social
- Good Mental
- Good Physical
speechlessinseattle completed the QOL survey for May 13, 2012 • May 13, 2012
What sort of things are negatively affecting your Quality of Life?
InstantMe

Neutral
speechlessinseattle added an InstantMe for May 10, 2012 • May 10, 2012 9:55AM

Tuesday my last day of driving. Now I'm stuck.

What else would you like to share about this InstantMe?
InstantMe

Neutral
speechlessinseattle added an InstantMe for May 9, 2012 • May 09, 2012 6:35PM

Fell in the bathroom this early am. Couldnt get up. Ouch!

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InstantMe

Neutral
speechlessinseattle added an InstantMe for May 8, 2012 • May 08, 2012 2:35PM

Spasticity has been on the increase for the past week.

What else would you like to share about this InstantMe?
Added

Symptom Update
- none not sure
- mild Excess mucus
- mild Acid reflux
- none Coughing while eating
- none Tiredness increased
- mild Decreased respiration
- moderate Walking problems
- mild Lightheadedness
- none Coughing while drinking
- mild Dry skin
- mild Dizziness
- mild Biting inner lip
- mild Indigestion
- none Choking on food
- moderate Foot drop
- mild Cramps in feet
- moderate Clonus spasms
- moderate Balance problems
- none Weakness in lips
- mild Neck movement dizziness (Cervicogenic dizziness)
- mild Generalized weakness (asthenia)
- none Depressed mood
- moderate Insomnia
- moderate Slurred speech
- mild Gag response abnormal
- moderate Fasciculations
- mild Constipation
- mild Difficulty turning over or moving in bed
- none over all health
- mild Atrophy of hand muscles
- moderate Difficulty sleeping through night
- none Tightness around feet uncomfortable; feels better without the braces
- none Intermittent strong vibration down right leg
- mild Weakness in neck (head drop)
- mild Cramps in hands
- moderate Stiffness in neck
- severe Stiffness/Spasticity
- mild Heartburn
- moderate Cold intolerance
- mild Atrophy of calf muscles
- none Weakness in arms
- none Vitamin D deficiency
- mild Tongue biting
- mild Pain
- moderate Urinary urgency
- mild Disease progression increased
- moderate Falls
- none Burning sensation in soles of feet
- moderate Fatigue
- none Excessive yawning
- moderate Weakness in legs
- mild Back pain
- none leaning to the right
- mild Emotional lability
- none Loss of manual dexterity
- mild Nasal congestion
- mild Ears pop
- mild Anxious mood
- moderate Staggering walk
- mild Muscle weakness
- moderate feel unstable
- mild Excess saliva
- moderate Foot drop (left)
- mild hip retraction
- mild Cramps
- mild Bowel urgency
- mild Breathing difficulty
- none Choking in my sleep
- mild Uncontrollable laughter
- none Choking on liquids
- moderate Foot drop (right)
- moderate Startle easily
- none Electric shock sensations
- mild Chest pressure
- See more
speechlessinseattle updated heryour symptoms for May 13, 2012 • May 13, 2012
What else would you like to share about these symptoms?
InstantMe

Neutral
speechlessinseattle added an InstantMe for May 13, 2012 • May 13, 2012 6:49PM
What else would you like to share about this InstantMe?
Stopped treatment

Tizanidine HCl
- Stopped: Nov 1, 2009
- Reason: Side effects too severe
speechlessinseattle stopped taking the treatment Tizanidine HCl • May 08, 2012
What else would you like to share about stopping this treatment?
InstantMe

Neutral
speechlessinseattle added an InstantMe for May 11, 2012 • May 11, 2012 5:34PM
What else would you like to share about this InstantMe?
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