alperstein
alperstein
Sex: M
Data Quality: 3 stars
ALS: 23 yrs
Ventilator Wheelchair
Bulbar: none
Arms: severe
Chest: moderate
Legs: severe
alperstein
Male, 50 years
Izmir, Turkey
Primary Condition
ALS
First symptom
Jan 1989
Diagnosis
Aug 1990
See more
  1. alperstein
    InstantMe
    Very good
    added an InstantMe for May 17, 2012 May 17, 2012 2:12PM
  2. alperstein
    star earnedstar earnedstar earned 3 stars
    earned a star! May 17, 2012
  3. alperstein
    Updated outcome
    QOL
    • Bad Social
    • Good Mental
    • Worst Physical
    completed the QOL survey for May 2, 2012 May 02, 2012

    Spring has come;)

  4. alperstein
    star earnedstar earnedstar  notearned 2 stars
    lost a star May 15, 2012
  5. alperstein
    InstantMe
    Very good
    added an InstantMe for May 2, 2012 May 02, 2012 11:22AM

    Mom visits me

  6. alperstein
    Weight
    187 lb 6 oz
    BMI
    28.5
    updated hisyour weight for May 2, 2012 May 02, 2012
  7. alperstein
    Added
    Symptom Update
    • moderate Itching (pruritus)
    • none Insomnia
    • mild Diarrhea intermittent
    • moderate Swollen feet
    • none Pain in legs
    • moderate Hypersexuality
    • See more
    updated hisyour symptoms for May 2, 2012 May 02, 2012
  8. alperstein
    InstantMe
    Very good
    added an InstantMe for Mar 14, 2012 Mar 14, 2012 12:26PM
  9. alperstein
    FRS
    12
    • none Head
    • severe Arms
    • moderate Torso
    • severe Legs
    completed the FRS survey for Mar 3, 2012 Mar 03, 2012
  10. alperstein
    Updated outcome
    QOL
    • Bad Social
    • Good Mental
    • Worst Physical
    completed the QOL survey for Mar 3, 2012 Mar 03, 2012
  11. alperstein
    Weight
    194 lb
    BMI
    29.5
    updated hisyour weight for Mar 3, 2012 Mar 03, 2012
  12. alperstein
    FVC
    2%
    completed the FVC survey for Mar 3, 2012 Mar 03, 2012
  13. alperstein
    InstantMe
    Good
    added an InstantMe for Mar 3, 2012 Mar 03, 2012 6:26AM
  14. alperstein
    Updated outcome
    QOL
    • Bad Social
    • Bad Mental
    • Worst Physical
    completed the QOL survey for Feb 13, 2012 Feb 13, 2012
  15. alperstein
    InstantMe
    Good
    added an InstantMe for Feb 11, 2012 Feb 11, 2012 9:48AM

    sunny days, alcohol, typing independence

  16. alperstein
    InstantMe
    Very good
    added an InstantMe for Feb 13, 2012 Feb 13, 2012 3:45PM
  17. alperstein
    Added
    Symptom Update
    • moderate Itching (pruritus)
    • none Insomnia
    • mild Diarrhea intermittent
    • severe Swollen feet
    • mild Pain in legs
    • moderate Hypersexuality
    • See more
    updated hisyour symptoms for Feb 8, 2012 Feb 08, 2012
  18. alperstein
    InstantMe
    Very bad
    added an InstantMe for Feb 1, 2012 Feb 01, 2012 11:30AM

    Lost my friend to ALS: (

  19. alperstein
    FRS
    12
    • none Head
    • severe Arms
    • moderate Torso
    • severe Legs
    completed the FRS survey for Feb 1, 2012 Feb 01, 2012
  20. alperstein
    Weight
    187 lb 6 oz
    BMI
    28.5
    updated hisyour weight for Feb 1, 2012 Feb 01, 2012
  21. Show more