10865-full
Snazzygirl
Data Quality: 0 stars
  • Sex: Female
  • Age: 47y
Condition: Muscular Dystrophy 1 additional condition(s)
Quality of Life:
  • Mental: Mild
  • Physical: Moderate
I am: Neutral
Snazzygirl
Female, 47 years
LA, United States
Primary Condition
Muscular Dystrophy and 1 more
First symptom
Diagnosis
Undiagnosed
See more
  1. 10865-thumb
    Snazzygirl
    Data Quality: 0 stars
    • Sex: F
    • Age: 47
    Condition: Muscular Dystrophy 1 additional condition(s)
    Quality of Life:
    • Mental: Mild
    • Physical: Moderate
    I am: n
    I have:
    Muscular Dystrophy

    Tagged Topic

    added the tag Baclofen to Severe spasticity and Baclofen Apr 20, 2013
  2. 10865-thumb
    Snazzygirl
    Data Quality: 0 stars
    • Sex: F
    • Age: 47
    Condition: Muscular Dystrophy 1 additional condition(s)
    Quality of Life:
    • Mental: Mild
    • Physical: Moderate
    I am: n
    I have:
    Muscular Dystrophy

    Tagged Topic

    added the tag Spasticity to Severe spasticity and Baclofen Apr 20, 2013
  3. 10865-thumb
    Snazzygirl
    Data Quality: 0 stars
    • Sex: F
    • Age: 47
    Condition: Muscular Dystrophy 1 additional condition(s)
    Quality of Life:
    • Mental: Mild
    • Physical: Moderate
    I am: n
    I have:
    Muscular Dystrophy
    star  notearnedstar  notearnedstar  notearned 0 stars
    lost a star Feb 17, 2013
  4. 10865-thumb
    Snazzygirl
    Data Quality: 0 stars
    • Sex: F
    • Age: 47
    Condition: Muscular Dystrophy 1 additional condition(s)
    Quality of Life:
    • Mental: Mild
    • Physical: Moderate
    I am: n
    I have:
    Muscular Dystrophy

    Muscular Dystrophy

    • First symptom:
    • Diagnosis: ?
    updated the condition Muscular Dystrophy Nov 19, 2012

    This all started 6.5 years ago while walking, I noticed my left foot dragging. Fast forward to today. I use a walker around the house until later in the afternoon, if it is too hard to move my legs I use my power chair.. If I go out to eat or see a movie etc. I am using my transport wheelchair. I was misdiagnosed with MS for a while. After my last nerve test in June 2012 I was told I have a neuromuscular disease but as of this date I am not sure which type. They are certain it is not ALS because of how long I have been dealing with this. In Jan 2013 I am going to the NIH Undiagnosed Disease Program in Bethesda, Maryland. (Finally accepted after years of trying) Hopefully they willl be able to pinpoint exactly what disease I have.

  5. 10865-thumb
    Snazzygirl
    Data Quality: 0 stars
    • Sex: F
    • Age: 47
    Condition: Muscular Dystrophy 1 additional condition(s)
    Quality of Life:
    • Mental: Mild
    • Physical: Moderate
    I am: n
    I have:
    Muscular Dystrophy

    MS (Multiple Sclerosis)

    • First symptom:
    • Diagnosis:
    updated the condition MS (Multiple Sclerosis) Nov 19, 2012

    In June 2012 I found out my MS was misdiagnosed. i then underwent a third NCS (nerve conduction study) and it was found out i have a neuromuscular At this time it is not known which.

  6. 10865-thumb
    Snazzygirl
    Data Quality: 0 stars
    • Sex: F
    • Age: 47
    Condition: Muscular Dystrophy 1 additional condition(s)
    Quality of Life:
    • Mental: Mild
    • Physical: Moderate
    I am: n
    I have:
    Muscular Dystrophy

    Oxybutynin

      • Stopped: Jul 01, 2011
      • Reason: Did not seem to work
      • Started: Aug 31, 2009
      • Last Dosage: 5 mg daily
    • Purpose: Bladder problems
    updated the treatment Oxybutynin Nov 19, 2012
    • Added
      • Started: Aug 31, 2009
      • Dosage: 5 mg daily
      • Purpose: Bladder problems
      • Aug 31, 2009
    • Stopped
      • Date: Jul 01, 2011
      • Reason: Did not seem to work
      • Jul 01, 2011
  7. 10865-thumb
    Snazzygirl
    Data Quality: 0 stars
    • Sex: F
    • Age: 47
    Condition: Muscular Dystrophy 1 additional condition(s)
    Quality of Life:
    • Mental: Mild
    • Physical: Moderate
    I am: n
    I have:
    Muscular Dystrophy

    Baclofen

      • Started: ?
      • Dosage: ?
    • Purpose: Stiffness/Spasticity
    updated the treatment Baclofen Nov 19, 2012
  8. 10865-thumb
    Snazzygirl
    Data Quality: 0 stars
    • Sex: F
    • Age: 47
    Condition: Muscular Dystrophy 1 additional condition(s)
    Quality of Life:
    • Mental: Mild
    • Physical: Moderate
    I am: n
    I have:
    Muscular Dystrophy

    Enablex

      • Started: Sep 15, 2012
      • Current Dosage: 7.5 mg daily
    • Purpose:
    updated the treatment Enablex Nov 19, 2012
  9. 10865-thumb
    Snazzygirl
    Data Quality: 0 stars
    • Sex: F
    • Age: 47
    Condition: Muscular Dystrophy 1 additional condition(s)
    Quality of Life:
    • Mental: Mild
    • Physical: Moderate
    I am: n
    I have:
    Muscular Dystrophy
    star earnedstar  notearnedstar  notearned 1 star
    earned a star! Nov 19, 2012
  10. 10865-thumb
    Snazzygirl
    Data Quality: 0 stars
    • Sex: F
    • Age: 47
    Condition: Muscular Dystrophy 1 additional condition(s)
    Quality of Life:
    • Mental: Mild
    • Physical: Moderate
    I am: n
    I have:
    Muscular Dystrophy
    star  notearnedstar  notearnedstar  notearned 0 stars
    lost a star Nov 19, 2012
  11. 10865-thumb
    Snazzygirl
    Data Quality: 0 stars
    • Sex: F
    • Age: 47
    Condition: Muscular Dystrophy 1 additional condition(s)
    Quality of Life:
    • Mental: Mild
    • Physical: Moderate
    I am: n
    I have:
    Muscular Dystrophy

    Neutral

    added an InstantMe for Feb 22, 2012 Feb 22, 2012 9:37PM

    Ribs and shoulder still hurting from latest fall