This all started 6.5 years ago while walking, I noticed my left foot dragging. Fast forward to today. I use a walker around the house until later in the afternoon, if it is too hard to move my legs I use my power chair.. If I go out to eat or see a movie etc. I am using my transport wheelchair. I was misdiagnosed with MS for a while. After my last nerve test in June 2012 I was told I have a neuromuscular disease but as of this date I am not sure which type. They are certain it is not ALS because of how long I have been dealing with this. In Jan 2013 I am going to the NIH Undiagnosed Disease Program in Bethesda, Maryland. (Finally accepted after years of trying) Hopefully they willl be able to pinpoint exactly what disease I have.
- Snazzygirl
- Data Quality: 0 stars
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- Sex: Female
- Age: 47y
- Condition: Muscular Dystrophy 1 additional condition(s)
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Quality of Life:
- Mental: Mild
- Physical: Moderate
- I am: Neutral
- Snazzygirl
- Female, 47 years
- LA, United States
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- Snazzygirl
- Data Quality: 0 stars
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- Sex: F
- Age: 47
- Condition: Muscular Dystrophy 1 additional condition(s)
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Quality of Life:
- Mental: Mild
- Physical: Moderate
- I am: n
I have:Muscular DystrophySnazzygirl added the tag Baclofen to Severe spasticity and Baclofen Apr 20, 2013Tagged Topic
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- Snazzygirl
- Data Quality: 0 stars
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- Sex: F
- Age: 47
- Condition: Muscular Dystrophy 1 additional condition(s)
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Quality of Life:
- Mental: Mild
- Physical: Moderate
- I am: n
I have:Muscular DystrophySnazzygirl added the tag Spasticity to Severe spasticity and Baclofen Apr 20, 2013Tagged Topic
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- Snazzygirl
- Data Quality: 0 stars
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- Sex: F
- Age: 47
- Condition: Muscular Dystrophy 1 additional condition(s)
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Quality of Life:
- Mental: Mild
- Physical: Moderate
- I am: n
I have:Muscular DystrophySnazzygirl lost a star Feb 17, 2013

0 stars
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- Snazzygirl
- Data Quality: 0 stars
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- Sex: F
- Age: 47
- Condition: Muscular Dystrophy 1 additional condition(s)
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Quality of Life:
- Mental: Mild
- Physical: Moderate
- I am: n
I have:Muscular DystrophySnazzygirl updated the condition Muscular Dystrophy Nov 19, 2012Muscular Dystrophy
- First symptom:
- Diagnosis: ?
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- Snazzygirl
- Data Quality: 0 stars
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- Sex: F
- Age: 47
- Condition: Muscular Dystrophy 1 additional condition(s)
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Quality of Life:
- Mental: Mild
- Physical: Moderate
- I am: n
I have:Muscular DystrophySnazzygirl updated the condition MS (Multiple Sclerosis) Nov 19, 2012MS (Multiple Sclerosis)
- First symptom:
- Diagnosis:
In June 2012 I found out my MS was misdiagnosed. i then underwent a third NCS (nerve conduction study) and it was found out i have a neuromuscular At this time it is not known which.
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- Snazzygirl
- Data Quality: 0 stars
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- Sex: F
- Age: 47
- Condition: Muscular Dystrophy 1 additional condition(s)
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Quality of Life:
- Mental: Mild
- Physical: Moderate
- I am: n
I have:Muscular DystrophySnazzygirl updated the treatment Oxybutynin Nov 19, 2012Oxybutynin
- Stopped: Jul 01, 2011
- Reason: Did not seem to work
- Started: Aug 31, 2009
- Last Dosage: 5 mg daily
- Purpose: Bladder problems
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Added
- Started: Aug 31, 2009
- Dosage: 5 mg daily
- Purpose: Bladder problems
- Aug 31, 2009
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Stopped
- Date: Jul 01, 2011
- Reason: Did not seem to work
- Jul 01, 2011
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- Snazzygirl
- Data Quality: 0 stars
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- Sex: F
- Age: 47
- Condition: Muscular Dystrophy 1 additional condition(s)
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Quality of Life:
- Mental: Mild
- Physical: Moderate
- I am: n
I have:Muscular DystrophySnazzygirl updated the treatment Baclofen Nov 19, 2012Baclofen
- Started: ?
- Dosage: ?
- Purpose: Stiffness/Spasticity
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- Snazzygirl
- Data Quality: 0 stars
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- Sex: F
- Age: 47
- Condition: Muscular Dystrophy 1 additional condition(s)
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Quality of Life:
- Mental: Mild
- Physical: Moderate
- I am: n
I have:Muscular DystrophySnazzygirl updated the treatment Enablex Nov 19, 2012Enablex
- Started: Sep 15, 2012
- Current Dosage: 7.5 mg daily
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Purpose:
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- Snazzygirl
- Data Quality: 0 stars
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- Sex: F
- Age: 47
- Condition: Muscular Dystrophy 1 additional condition(s)
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Quality of Life:
- Mental: Mild
- Physical: Moderate
- I am: n
I have:Muscular DystrophySnazzygirl earned a star! Nov 19, 2012

1 star
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- Snazzygirl
- Data Quality: 0 stars
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- Sex: F
- Age: 47
- Condition: Muscular Dystrophy 1 additional condition(s)
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Quality of Life:
- Mental: Mild
- Physical: Moderate
- I am: n
I have:Muscular DystrophySnazzygirl lost a star Nov 19, 2012

0 stars
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- Snazzygirl
- Data Quality: 0 stars
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- Sex: F
- Age: 47
- Condition: Muscular Dystrophy 1 additional condition(s)
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Quality of Life:
- Mental: Mild
- Physical: Moderate
- I am: n
I have:Muscular DystrophySnazzygirl added an InstantMe for Feb 22, 2012 Feb 22, 2012 9:37PMNeutral
Ribs and shoulder still hurting from latest fall
