DrDOS's Journal

DrDOS: Sex: M; Data Quality: 2 stars; MSA: 8 yrs; Type: Multiple System Atrophy (MSA); Mood: Very bad; Cognition: Moderate; Autonomic: Severe; Head: severe; Arms: severe; Legs: severe; Tremors: moderate

DrDOS: Male, 58 years; Zionsville, IN

Primary Condition: MSA
Type: Multiple System Atrophy (MSA)
First symptom: Apr 2004
Diagnosis: Jun 2007

MDRS

94
- severe Head
- severe Arms
- severe Legs
- moderate Tremors
- severe Balance
DrDOS completed the MDRS survey for May 22, 2012 • May 22, 2012
What else would you like to share about the impact of MSA on your life?
Added treatment

Clonazepam
- Started: ?
- Purpose: MSA (Multiple System Atrophy)
DrDOS added the treatment Clonazepam • May 22, 2012
When did you start this treatment?
MDRS

94
- moderate Head
- severe Arms
- severe Legs
- severe Tremors
- severe Balance
DrDOS completed the MDRS survey for Mar 18, 2012 • Mar 18, 2012
Congratulations, your MDRS is lower. What sort of things are helping your MSA symptoms?
Added

Symptom Update
- moderate Weakness in legs
- moderate Stiffness in neck
- severe Speech problems
- mild Blurry vision
- moderate Weakness in neck (head drop)
- moderate Tremor in hands
- severe Facial mask like expression
- severe Eye movement irregularities
- moderate Problems concentrating
- moderate Numbness
- moderate Difficulty getting comfortable in bed
- severe Balance problems
- moderate Swallowing difficulty (dysphagia)
- moderate Poor Concentration
- severe Dizziness
- moderate Anxious mood
- moderate Emotional lability
- moderate Dry mouth (xerostomia)
- severe Ataxia (lack of coordination)
- moderate Apathy
- mild Night sweats
- moderate Fatigue
- mild Difficulty breathing at night
- mild Acid reflux
- severe Slowness
- moderate Pain
- severe Dizziness with hypotension upon standing
- moderate Cough
- mild Bloating
- severe Tongue tied (decreased verbal fluency)
- severe Stiffness/Spasticity
- mild Memory problems
- severe Dry skin
- mild Abdominal bloating
- moderate Problems with focusing eyes
- mild Neck pain
- mild Kidney stones
- moderate Excessive daytime sleepiness (somnolence)
- moderate Dry eyes
- moderate Depressed mood
- moderate Choking
- severe Sexual dysfunction
- mild Heat intolerance
- moderate Difficulty eating
- mild Constipation
- moderate Cold hands and feet
- mild Migraine headaches
- mild Insomnia
- moderate Hearing problems
- severe Difficulty writing (dysgraphia)
- mild Bladder problems
- See more
DrDOS updated hisyour symptoms for Jan 31, 2012 • Jan 31, 2012
What else would you like to share about these symptoms?
MDRS

100
- severe Head
- severe Arms
- severe Legs
- severe Tremors
- severe Balance
DrDOS completed the MDRS survey for Jan 3, 2012 • Jan 03, 2012
What sort of things are making your MSA symptoms worse?
Stopped treatment

Fludrocortisone
- Stopped: Mar 31, 2008
- Reason: Did not seem to work and Doctor's advice
DrDOS stopped taking the treatment Fludrocortisone • Nov 29, 2011
What else would you like to share about stopping this treatment?
Added treatment

Fludrocortisone
- Started: Feb 1, 2008
- Dosage: 0.1 mg daily
- Purpose: MSA (Multiple System Atrophy)
DrDOS added the treatment Fludrocortisone • Nov 29, 2011
What else would you like to share about this treatment?
Added

Symptom Update
- mild Bladder problems
- severe Difficulty writing (dysgraphia)
- mild Hearing problems
- mild Insomnia
- moderate Migraine headaches
- moderate Cold hands and feet
- mild Constipation
- moderate Difficulty eating
- mild Heat intolerance
- none Sexual dysfunction
- moderate Choking
- moderate Depressed mood
- mild Dry eyes
- moderate Excessive daytime sleepiness (somnolence)
- mild Kidney stones
- mild Neck pain
- moderate Problems with focusing eyes
- moderate Abdominal bloating
- moderate Dry skin
- moderate Memory problems
- severe Stiffness/Spasticity
- severe Tongue tied (decreased verbal fluency)
- mild Bloating
- mild Cough
- moderate Dizziness with hypotension upon standing
- moderate Pain
- severe Slowness
- mild Acid reflux
- none Difficulty breathing at night
- mild Fatigue
- none Night sweats
- moderate Apathy
- severe Ataxia (lack of coordination)
- mild Dry mouth (xerostomia)
- moderate Emotional lability
- mild Anxious mood
- moderate Dizziness
- moderate Poor Concentration
- moderate Swallowing difficulty (dysphagia)
- severe Balance problems
- severe Difficulty getting comfortable in bed
- mild Numbness
- moderate Problems concentrating
- moderate Eye movement irregularities
- mild Facial mask like expression
- moderate Tremor in hands
- moderate Weakness in neck (head drop)
- mild Blurry vision
- severe Speech problems
- moderate Stiffness in neck
- moderate Weakness in legs
- See more
DrDOS updated hisyour symptoms for Nov 29, 2011 • Nov 29, 2011
What else would you like to share about these symptoms?
InstantMe

Very bad
DrDOS added an InstantMe for Sep 22, 2011 • Sep 22, 2011 5:55PM

Getting worse as depend on wheelchair to get around and others everything else. Finding myself in a loving home would have worked too.

What's making you feel very bad?
InstantMe

Very bad
DrDOS added an InstantMe for Apr 24, 2011 • Apr 24, 2011 10:23AM

not able to walk; struggle just to make it to the bathroom; not sure why but support system is very lacking for one who is as disabled as I

What's making you feel very bad?

PatientsLikeMe ™

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