It all started with my falling down while mowing the yard. I was unable to get up even though I was not dizzy and could feel my body. I remember thinking I wasn't sure which way was up. After a few minutes, I recovered and finished the lawn. A few weeks later I fell in my garage, hurting my elbow, and decided to see my doctor. He sent me to a neurologist who said I had nystagmus, easy to fix with some barrel rolls. Nine months later I was cured. When I wasn't, I saw a heart specialist who gave me a tilt table test, which I failed. From prone to about 45 degrees, I passed out, which I never did before, and it felt like I was being electrocuted. Several specialists and 3 years later I got the MSA diagnosis. Today I struggle getting into a wheelchair so I can relieve myself every few hours. I'm sure I should be drinking more fluids but that just means going more often. I last now 1-4 hours (caffeine is not my friend) and can go as long as 8-9 hours at night. I don't dream I have this condition so when I wake I have to remember I don't need to rush off somewhere or I can't just stand up to go to the bathroom. Sobering.
- DrDOS
- Sex: M
- Data Quality: 2 stars
- MSA: 9 yrs
- Type: Multiple System Atrophy (MSA)
- Mood: Very bad
- Cognition: Moderate
- Autonomic: Moderate
- Head: severe
- Arms: severe
- Legs: severe
- Tremors: severe
- DrDOS
- Male, 59 years
- Zionsville, IN