1. 957 thumb
    pdwyer1986
    Sex: M
    Data Quality: 2 stars
    Bulbar: none
    Arms: severe
    Chest: moderate
    Legs: severe
    I am: g
    I have:
    ALS

    pdwyer1986 added a treatment evaluation for Sodium chlorite from

    • Perceived effectiveness for ALS (Amyotrophic Lateral Sclerosis): Moderate
    • Side Effects: Mild
    • Adherence: Always
    • Burden: Not at all
    • Dosage: 950 mL Daily
    • Advice & Tips: Pat has been nauseated all day and very gassy (!). But tonight, Pat was able to itch his forehead and rub his right eye. He was using his right hand and using the two arm lift technique but he was able to do it!!! We know he hasn't been able to rub his eye for over a year.
    • Cost: $50-99 monthly
    Pat has been nauseated all day and very gassy (!). But tonight, Pat was able to itch his forehead and rub his right eye. He was using his right hand and using the two arm lift technique but he was able to do it!!! We know he hasn't been able to rub his eye for over a year.
  2. 957 thumb
    pdwyer1986
    Sex: M
    Data Quality: 2 stars
    Bulbar: none
    Arms: severe
    Chest: moderate
    Legs: severe
    I am: g
    I have:
    ALS

    pdwyer1986 added a treatment evaluation for Sodium chlorite from

    • Perceived effectiveness for ALS (Amyotrophic Lateral Sclerosis): Can’t tell
    • Side Effects: Mild
    • Adherence: Always
    • Burden: Not at all
    • Dosage: 950 mL Daily
    • Advice & Tips: Slight headache in the AM, none in the evening. No observed effects.
    • Cost: $50-99 monthly
    Slight headache in the AM, none in the evening. No observed effects.
  3. 957 thumb
    pdwyer1986
    Sex: M
    Data Quality: 2 stars
    Bulbar: none
    Arms: severe
    Chest: moderate
    Legs: severe
    I am: g
    I have:
    ALS

    pdwyer1986 added a treatment evaluation for Sodium chlorite from

    • Perceived effectiveness for ALS (Amyotrophic Lateral Sclerosis): Can’t tell
    • Side Effects: Mild
    • Adherence: Always
    • Burden: Not at all
    • Dosage: 950 mL Daily
    • Advice & Tips: Pat experienced a slight headache upon dosage intake, but it resolves itself in about 45 minutes.
    • Cost: $50-99 monthly
    Pat experienced a slight headache upon dosage intake, but it resolves itself in about 45 minutes.
  4. 957 thumb
    pdwyer1986
    Sex: M
    Data Quality: 2 stars
    Bulbar: none
    Arms: severe
    Chest: moderate
    Legs: severe
    I am: g
    I have:
    ALS

    pdwyer1986 added a treatment evaluation for Sodium chlorite from

    • Perceived effectiveness for ALS (Amyotrophic Lateral Sclerosis): Can’t tell
    • Side Effects: Mild
    • Adherence: Always
    • Burden: Not at all
    • Dosage: 950 mL Daily
    • Advice & Tips: Pat experienced a slight headache upon dosage intake, but it resolves itself in about 45 minutes.
    • Cost: $50-99 monthly
    Pat experienced a slight headache upon dosage intake, but it resolves itself in about 45 minutes.
  5. 957 thumb
    pdwyer1986
    Sex: M
    Data Quality: 2 stars
    Bulbar: none
    Arms: severe
    Chest: moderate
    Legs: severe
    I am: g
    I have:
    ALS

    pdwyer1986 updated his symptoms

    Cramps BetterCramps, Fasciculations, Stiffness/Spasticity
    Walking problems WorseWalking problems, Atrophy of elbow muscles, Atrophy of right arm muscles, Decreased diaphragm strength, Insomnia See more
  6. 957 thumb
    pdwyer1986
    Sex: M
    Data Quality: 2 stars
    Bulbar: none
    Arms: severe
    Chest: moderate
    Legs: severe
    I am: g
    I have:
    ALS

    pdwyer1986 became a 3 star data donor! star earnedstar earnedstar earned

  7. 957 thumb
    pdwyer1986
    Sex: M
    Data Quality: 2 stars
    Bulbar: none
    Arms: severe
    Chest: moderate
    Legs: severe
    I am: g
    I have:
    ALS

    pdwyer1986 added a new Forced Vital Capacity Percentage value for

    • Forced Vital Capacity Percentage: 26 %
  8. 957 thumb
    pdwyer1986
    Sex: M
    Data Quality: 2 stars
    Bulbar: none
    Arms: severe
    Chest: moderate
    Legs: severe
    I am: g
    I have:
    ALS

    pdwyer1986 added a treatment evaluation for Sodium chlorite

    • Perceived effectiveness for ALS (Amyotrophic Lateral Sclerosis): Can’t tell
    • Side Effects: None
    • Adherence: Always
    • Burden: Not at all
    • Dosage: 950 mL Daily
    • Advice & Tips: Pat just took his first "dose" of OSC. Will take another before bed. Because he wasn't able to start until 6:30pm tonight, he will only be taking 1/2 of the recommended amount tonight. (We mixed 6ml of SC into 1 gallon of distilled water, with 1 gram of kosher salt. He will be drinking 950ml a day for 5 days)
    • Cost: $50-99 monthly
    Pat just took his first "dose" of OSC. Will take another before bed. Because he wasn't able to start until 6:30pm tonight, he will only be taking 1/2 of the recommended amount tonight. (We mixed 6ml of SC into 1 gallon of distilled water, with 1 gram of kosher salt. He will be drinking 950ml a day for 5 days)
  9. 957 thumb
    pdwyer1986
    Sex: M
    Data Quality: 2 stars
    Bulbar: none
    Arms: severe
    Chest: moderate
    Legs: severe
    I am: g
    I have:
    ALS