pdwyer1986's Journal

pdwyer1986: Sex: M; Data Quality: 2 stars; ALS: 10 yrs; Bi-Pap Wheelchair; Bulbar: none; Arms: severe; Chest: moderate; Legs: severe

pdwyer1986: Male, 52 years; Kenmore, WA

Primary Condition: ALS

First symptom: Oct 2002
Diagnosis: Jun 2005

Deceased: Jun 04, 2013

pdwyer1986

Sex: M

Data Quality: 2 stars

Bulbar: none

Arms: severe

Chest: moderate

Legs: severe

I am: g

I have:
ALS
Sodium chlorite Treatment Evaluation
- Perceived effectiveness for ALS (Amyotrophic Lateral Sclerosis): Moderate
- Side Effects: Mild
- Adherence: Always
- Burden: Not at all
Advice & Tips

Nauseated all day, but the gassy feeling has passed (!) Tired today and took a nap in the afternoon...not typical for Pat. Observable (to the eye and to the touch) muscle twitching in upper arms. Pat hasn't had muscle twitching in his arms for at least 3 years. Pat was able to rub his left eye today with the two arm lift.

Cost

$50-99 monthly

pdwyer1986 added a treatment evaluation for Sodium chlorite from Oct 26, 2011 Nov 27, 2011
pdwyer1986

Sex: M

Data Quality: 2 stars

Bulbar: none

Arms: severe

Chest: moderate

Legs: severe

I am: g

I have:
ALS
Sodium chlorite Treatment Evaluation
- Perceived effectiveness for ALS (Amyotrophic Lateral Sclerosis): Moderate
- Side Effects: Mild
- Adherence: Always
- Burden: Not at all
Advice & Tips

Pat has been nauseated all day and very gassy (!). But tonight, Pat was able to itch his forehead and rub his right eye. He was using his right hand and using the two arm lift technique but he was able to do it!!! We know he hasn't been able to rub his eye for over a year.

Cost

$50-99 monthly

pdwyer1986 added a treatment evaluation for Sodium chlorite from Oct 25, 2011 Nov 27, 2011
pdwyer1986

Sex: M

Data Quality: 2 stars

Bulbar: none

Arms: severe

Chest: moderate

Legs: severe

I am: g

I have:
ALS
Sodium chlorite Treatment Evaluation
- Perceived effectiveness for ALS (Amyotrophic Lateral Sclerosis): ?Can't tell
- Side Effects: Mild
- Adherence: Always
- Burden: Not at all
Advice & Tips

Slight headache in the AM, none in the evening. No observed effects.

Cost

$50-99 monthly

pdwyer1986 added a treatment evaluation for Sodium chlorite from Oct 24, 2011 Nov 27, 2011
pdwyer1986

Sex: M

Data Quality: 2 stars

Bulbar: none

Arms: severe

Chest: moderate

Legs: severe

I am: g

I have:
ALS
Sodium chlorite Treatment Evaluation
- Perceived effectiveness for ALS (Amyotrophic Lateral Sclerosis): ?Can't tell
- Side Effects: Mild
- Adherence: Always
- Burden: Not at all
Advice & Tips

Pat experienced a slight headache upon dosage intake, but it resolves itself in about 45 minutes.

Cost

$50-99 monthly

pdwyer1986 added a treatment evaluation for Sodium chlorite from Oct 23, 2011 Nov 27, 2011
pdwyer1986

Sex: M

Data Quality: 2 stars

Bulbar: none

Arms: severe

Chest: moderate

Legs: severe

I am: g

I have:
ALS
Sodium chlorite Treatment Evaluation
- Perceived effectiveness for ALS (Amyotrophic Lateral Sclerosis): ?Can't tell
- Side Effects: Mild
- Adherence: Always
- Burden: Not at all
Advice & Tips

Pat experienced a slight headache upon dosage intake, but it resolves itself in about 45 minutes.

Cost

$50-99 monthly

pdwyer1986 added a treatment evaluation for Sodium chlorite from Oct 23, 2011 Nov 27, 2011
pdwyer1986

Sex: M

Data Quality: 2 stars

Bulbar: none

Arms: severe

Chest: moderate

Legs: severe

I am: g

I have:
ALS
Symptom Update
- mild Emotional lability
- severe Walking problems
- none Anxious mood
- severe Atrophy of elbow muscles
- moderate Endurance reduced (whole body)
- none Excess saliva
- severe Atrophy of right arm muscles
- mild Cramps
- moderate Breathing difficulty
- severe Decreased diaphragm strength
- mild Insomnia
- severe Atrophy of left hand muscles
- mild Constipation
- severe Swollen feet
- severe Atrophy of left arm muscles
- mild Depressed mood
- severe Atrophy of left shoulder muscles
- severe Atrophy of upper body muscles
- none Fasciculations
- severe Ineffective cough
- mild Stiffness/Spasticity
- mild Pain
- severe Weakness in legs
- none Excessive yawning
- mild Fatigue
- See more
pdwyer1986 updated his symptoms for Nov 27, 2011 Nov 27, 2011
pdwyer1986

Sex: M

Data Quality: 2 stars

Bulbar: none

Arms: severe

Chest: moderate

Legs: severe

I am: g

I have:
ALS

3 stars
pdwyer1986 earned a star! Nov 27, 2011
pdwyer1986

Sex: M

Data Quality: 2 stars

Bulbar: none

Arms: severe

Chest: moderate

Legs: severe

I am: g

I have:
ALS

FVC: 26%

pdwyer1986 completed the FVC survey for Sep 29, 2009 Nov 17, 2011
pdwyer1986

Sex: M

Data Quality: 2 stars

Bulbar: none

Arms: severe

Chest: moderate

Legs: severe

I am: g

I have:
ALS
Sodium chlorite Treatment Evaluation
- Perceived effectiveness for ALS (Amyotrophic Lateral Sclerosis): ?Can't tell
- Side Effects: None
- Adherence: Always
- Burden: Not at all
Advice & Tips

Pat just took his first "dose" of OSC. Will take another before bed. Because he wasn't able to start until 6:30pm tonight, he will only be taking 1/2 of the recommended amount tonight. (We mixed 6ml of SC into 1 gallon of distilled water, with 1 gram of kosher salt. He will be drinking 950ml a day for 5 days)

Cost

$50-99 monthly

pdwyer1986 added a treatment evaluation for Sodium chlorite Oct 22, 2011
pdwyer1986

Sex: M

Data Quality: 2 stars

Bulbar: none

Arms: severe

Chest: moderate

Legs: severe

I am: g

I have:
ALS
Sodium chlorite
- - Started: Oct 22, 2011
  - Current Dosage: 950 mL daily
- Purpose: ALS
- View Latest Evaluation
pdwyer1986 added the treatment Sodium chlorite Oct 22, 2011
- Added
  - Started: Oct 22, 2011
  - Dosage: 950 mL daily
  - Purpose: ALS (Amyotrophic Lateral Sclerosis)
  - Oct 22, 2011
- Evaluated
  - View Evaluation
  - Oct 22, 2011
- Evaluated
  - View Evaluation
  - Oct 23, 2011
- Evaluated
  - View Evaluation
  - Oct 24, 2011
- Evaluated
  - View Evaluation
  - Oct 25, 2011
- Evaluated
  - View Evaluation
  - Oct 26, 2011
- Evaluated
  - View Evaluation
  - Oct 27, 2011
- Stopped
  - Date: Oct 28, 2011
  - Reason: Course of treatment ended
  - Oct 28, 2011
- Evaluated
  - View Evaluation
  - Oct 28, 2011
- Evaluated
  - View Evaluation
  - Nov 10, 2011
- Evaluated
  - View Evaluation
  - Nov 13, 2011
- Changed Dosage
  - Dosage: 45 mL daily
  - Nov 13, 2011
- Evaluated
  - View Evaluation
  - Nov 14, 2011
- Evaluated
  - View Evaluation
  - Nov 15, 2011
- Evaluated
  - View Evaluation
  - Nov 16, 2011
- Evaluated
  - View Evaluation
  - Nov 17, 2011
- Stopped
  - Date: Nov 18, 2011
  - Reason: Course of treatment ended
  - Nov 18, 2011
- Evaluated
  - View Evaluation
  - Nov 18, 2011
- Evaluated
  - View Evaluation
  - Nov 30, 2011
- Changed Dosage
  - Dosage: 950 mL daily
  - Nov 30, 2011