Dirty Butter's Journal

Dirty Butter

Data Quality: 1 star

Sex: Female
Age: 69y

Condition: Mitochondrial Myopathy 6 additional condition(s)

Quality of Life:

Social: Moderate
Mental: Mild
Physical: Moderate

I am: Bad

Dirty Butter: Female, 69 years; AL, United States

Primary Condition: Mitochondrial Myopathy and 6 more ▼
First symptom: Jan 2000
Diagnosis: Nov 2011

1 star
Dirty Butter lost a star • May 12, 2012
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2 stars
Dirty Butter lost a star • Apr 16, 2012
Nice work! One more star and you get a PLM t-shirt!
InstantMe

Bad
Dirty Butter added an InstantMe for Mar 8, 2012 • Mar 08, 2012 7:21PM

Neck and shoulder pain - slow walk - fatigue as usual

What's making you feel bad?
Added

Symptom Update
- none Tremor
- severe Pain in shoulders
- none Edema (fluid retention)
- moderate Bowel irritability
- mild Acid reflux
- severe Slowness
- severe Loss of energy
- none Lactose intolerance symptoms
- mild Face drooping permanent frown
- none Excess saliva
- mild Memory problems
- none High Cholesterol
- moderate Back pain
- none Anxious mood
- mild Myoclonus
- mild Loss of balance
- none Excessive daytime sleepiness (somnolence)
- moderate Emotional lability
- mild Abdominal bloating
- none Sexual dysfunction
- none Internal Restlessness (Akathisia)
- severe Fatigue
- moderate Startle easily
- moderate Pain
- none Hot flashes
- none Fungal infection
- mild Excessive thirst (polydipsia)
- moderate Weakness in neck (head drop)
- moderate Stiffness/Spasticity
- none Obstructive sleep apnea
- none Cramps in calf muscles
- none Blurry vision
- mild Weight gain
- severe Muscle weakness
- mild Loss of manual dexterity
- none Elevated blood pressure
- none Depressed mood
- mild Abdominal cramps
- severe Urinary frequency
- moderate Swallowing difficulty (dysphagia)
- mild Heartburn
- moderate Constipation
- mild Brain fog
- moderate Walking difficult without aid
- none Pain in knees
- none Nausea
- mild Insomnia
- moderate Gastrointestinal discomfort
- none Gastritis
- moderate Digestive problems
- none Sleep Apnea
- severe Neck pain
- moderate Loss of coordination
- none Cramps in hands
- mild Cramps in feet
- See more
Dirty Butter updated heryour symptoms for Mar 8, 2012 • Mar 08, 2012
What else would you like to share about these symptoms?
Added treatment

Vitamin B2 (riboflavin)
- Started: Feb 19, 2012
- Dosage: 400 mg daily
- Purpose: Muscle weakness and Mitochondrial Myopathy
Dirty Butter added the treatment Vitamin B2 (riboflavin) • Mar 08, 2012
What else would you like to share about this treatment?
Added treatment

Creatine Monohydrate
- Started: Feb 19, 2012
- Dosage: 10 mg daily
- Purpose: Muscle weakness and Mitochondrial Myopathy
Dirty Butter added the treatment Creatine Monohydrate • Mar 08, 2012
What else would you like to share about this treatment?
Weight

135 lb

BMI

24.7
Dirty Butter updated heryour weight for Jan 25, 2012 • Jan 25, 2012
Is there anything in particular that influenced this weight decrease?
Added treatment

CoQ10 (CoEnzyme Q10)
- Started: Jan 12, 2012
- Dosage: 800 mg daily
- Purpose: Mitochondrial Myopathy and Muscle weakness
Dirty Butter added the treatment CoQ10 (CoEnzyme Q10) • Jan 25, 2012
What else would you like to share about this treatment?
Added

Symptom Update
- none Tremor
- moderate Pain in shoulders
- mild Edema (fluid retention)
- mild Bowel irritability
- none Acid reflux
- severe Slowness
- severe Loss of energy
- none Lactose intolerance symptoms
- mild Face drooping permanent frown
- none Excess saliva
- mild Memory problems
- none High Cholesterol
- moderate Back pain
- none Anxious mood
- mild Myoclonus
- mild Loss of balance
- none Excessive daytime sleepiness (somnolence)
- moderate Emotional lability
- none Abdominal bloating
- none Sexual dysfunction
- none Internal Restlessness (Akathisia)
- severe Fatigue
- moderate Startle easily
- moderate Pain
- none Hot flashes
- none Fungal infection
- mild Excessive thirst (polydipsia)
- moderate Weakness in neck (head drop)
- moderate Stiffness/Spasticity
- none Obstructive sleep apnea
- mild Blurry vision
- mild Weight gain
- severe Muscle weakness
- mild Loss of manual dexterity
- mild Elevated blood pressure
- mild Depressed mood
- none Abdominal cramps
- severe Urinary frequency
- none Swallowing difficulty (dysphagia)
- none Heartburn
- mild Constipation
- mild Brain fog
- moderate Walking difficult without aid
- none Pain in knees
- none Nausea
- mild Insomnia
- mild Gastrointestinal discomfort
- mild Gastritis
- mild Digestive problems
- none Sleep Apnea
- mild Neck pain
- mild Loss of coordination
- moderate Cramps in feet
- See more
Dirty Butter updated heryour symptoms for Jan 25, 2012 • Jan 25, 2012
What else would you like to share about these symptoms?
Dirty Butter added the tag Adult Onset to Adult Onset Mitochondrial Disease • Jan 25, 2012
Dirty Butter added the tag Mitochondrial Myopathy to Adult Onset Mitochondrial Disease • Jan 25, 2012
Dirty Butter added the tag Mitochondrial Disease to Adult Onset Mitochondrial Disease • Jan 25, 2012
InstantMe

Bad
Dirty Butter added an InstantMe for Jan 17, 2012 • Jan 17, 2012 11:52AM

light headed from codeine cough syrup

What's making you feel bad?
Updated outcome

QOL
- Bad Social
- Good Mental
- Bad Physical
Dirty Butter completed the QOL survey for Jan 17, 2012 • Jan 17, 2012
Your Quality of Life is improving! What sort of things are making it better?
Hemoglobin A1C

5.3 %

Dirty Butter added a new Hemoglobin A1C value for Jan 8, 2012 • Jan 20, 2012
What else would you like to share about this lab result?
Dirty Butter added the tag medicine changes to Need to Restart meds - easy way to do this??? • Jan 17, 2012
Updated outcome

QOL
- Bad Social
- Good Mental
- Bad Physical
Dirty Butter completed the QOL survey for Jun 14, 2011 • Nov 14, 2011
What sort of things are negatively affecting your Quality of Life?
Updated outcome

QOL
- Bad Social
- Good Mental
- Good Physical
Dirty Butter completed the QOL survey for Mar 14, 2011 • Nov 14, 2011
Your Quality of Life is improving! What sort of things are making it better?
Weight

138 lb

BMI

25.2
Dirty Butter updated heryour weight for Nov 14, 2011 • Nov 14, 2011
Is there anything in particular that influenced this weight increase?
Stopped treatment

Vitamin E
- Stopped: Jun 15, 2011
- Reason: Other
Dirty Butter stopped taking the treatment Vitamin E • Nov 14, 2011
What else would you like to share about stopping this treatment?
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