13300 full
emackulate
Sex: F
Data Quality: 0 stars
MS: 5 yrs
Type: Relapsing-Remitting
Sensation: Moderate
Overall: Mild
Cognition: moderate
Vision: moderate
Speech: none
Swallowing: none
Upper limb: moderate
Walking: severe

emackulate

Female, 46 years
San Francisco, CA

Primary Condition
MS
Type
Relapsing-Remitting
First symptom
Diagnosis
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About emackulate

Hello, I'm Evelyn a 40 year old native San Franciscan. After living in GA for three year I moved back home to San Francisco because there were more resources. In the last 1 1/2 years, I have been hospitalize 3 times, each time for three weeks, I have lost my eye sight (in both eyes), that lasted for two weeks each time. Came back thankfully! I lost my ability to walk completely (that caused my last hospitalization. Now, I am walking albeit like I'm bit tips :-) but at least I'm walking.

have good days and bad days.   I use to type 90 wpm.  Now, I'm good if I can get out 20 wpmm I can't type, and for someone who made their living as a transcriptionist that was a hard pill to swallow.  I feel great.  When I think back over the last few years, I know I had been having symptoms, but dismissed it...unexplained fatigue, lack of coordination, stumbling over words, brain fog.  I  was actually fired from a job because they thought I was drinking on the job.  I was walking down the hall on a few occassions and my boss would see me take a stumble or vear to my right, like I had no control over my direction and I couldn't remember things.  I don't even drink!

My husband had a massive stroke at 38 four years ago, and I helped him through his rehab.  He had to relearn to do everything, from walking to feeding himself.  It was a long road, but we got through it, and we'll get through this too.  Now, it's his turn to help me through! 

I'm glad to have found this group.  It's great to read about everyone's journey. 

Update: after trying rebif, which didn't prevent my relapses, they put me on tysabari 6 months ago.  So far so good.

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Member since: Mar 13, 2009
Last Login Aug 05, 2013