- sstafne
- Sex: M
- Data Quality: 2 stars
- ALS: 8 yrs
- Bi-Pap Wheelchair Feeding tube
- Bulbar: mild
- Arms: severe
- Chest: moderate
- Legs: severe
- sstafne
- Male, 40 years
- Minneapolis, MN
- Primary Condition
- ALS
- First symptom
- Nov 2003
- Diagnosis
- Sep 2004
About sstafne
Young father with hope to stay alive for my daughters as long as possible. Have found it therapeutic to write my thoughts, in blog form, at http://blog.stafnes.com/. Want to raise awareness and money for ALS research. Turn Ons: Movies, beer, heavy metal. Turn Offs: attitude, lazyness, ALS
ALS Public Registry
- Profile Activity
- 19188 Views
- My CareTeam
Member since:
Nov 29, 2005
Last Login
May 24, 2012