Managed to arrange some interviews for potential PA's starting next week. Heart sinks at the thought of more training.
-
- Rachael
- Sex: F
- Data Quality: 2 stars
- Bulbar: severe
- Arms: severe
- Chest: moderate
- Legs: severe
- I am: n
I have:ALSRachael added an InstantMe for Apr 8, 2013 Apr 27, 2013 4:34PMNeutral
1 comment from other members. Only showing public users' comments. Sign up to see all comments! -
- Rachael
- Sex: F
- Data Quality: 2 stars
- Bulbar: severe
- Arms: severe
- Chest: moderate
- Legs: severe
- I am: n
I have:ALSRachael added an InstantMe for Mar 31, 2013 Apr 27, 2013 3:59PMVery bad
The tale of the car park catastrophe. It was the new PA's first day and we were going to a local festival. We set off early to see friends and listen to a mates band. Keen to grab a coffee three of us went into town. It wasn't the best coffee but it was warm. It was with a smug comment about its diuretic qualities that my PA and I took our leave and went down a lane to a nearby drain. It was while we were busy that a car reversed into the back of my chair. The driver was clearly shaken and upset and I was too.
1 comment from other members. Only showing public users' comments. Sign up to see all comments!-
Tommy Maker
about 3 weeks agoHow do you do this? I'd be content if I had ten per cent of the courage you show on a regular basis.
-
- Rachael
- Sex: F
- Data Quality: 2 stars
- Bulbar: severe
- Arms: severe
- Chest: moderate
- Legs: severe
- I am: n
I have:ALSRachael added an InstantMe for Apr 9, 2013 Apr 27, 2013 4:34PMNeutral
Visited Springhill Hospice.
-
- Rachael
- Sex: F
- Data Quality: 2 stars
- Bulbar: severe
- Arms: severe
- Chest: moderate
- Legs: severe
- I am: n
I have:ALSRachael added an InstantMe for Apr 7, 2013 Apr 27, 2013 4:32PMBad
New PA quit! It wasn't me! I'm sure the baptism of fire last week didn't help. Mixed up day to say the least. Neck and back still sore.
-
- Rachael
- Sex: F
- Data Quality: 2 stars
- Bulbar: severe
- Arms: severe
- Chest: moderate
- Legs: severe
- I am: n
I have:ALSRachael added an InstantMe for Apr 6, 2013 Apr 27, 2013 4:30PMNeutral
My brother paid us a visit to collect my daughter and whisk her off to the house of the plague. The rest of the day has been spent resting.
-
- Rachael
- Sex: F
- Data Quality: 2 stars
- Bulbar: severe
- Arms: severe
- Chest: moderate
- Legs: severe
- I am: n
I have:ALSRachael added an InstantMe for Apr 5, 2013 Apr 27, 2013 4:28PMNeutral
My family descended from Scotland, Holland and the south of England. They got a cottage in Glossop and promptly caught a dose of the plague so I dare not see them. It is a particularly virulent strain of "Both-Endium". Disappointed.
-
- Rachael
- Sex: F
- Data Quality: 2 stars
- Bulbar: severe
- Arms: severe
- Chest: moderate
- Legs: severe
- I am: n
I have:ALSRachael added an InstantMe for Apr 27, 2013 Apr 27, 2013 4:24PMNeutral
Dentist visit was expensive but no trauma. Daughter has gone to London to visit my sister.
-
- Rachael
- Sex: F
- Data Quality: 2 stars
- Bulbar: severe
- Arms: severe
- Chest: moderate
- Legs: severe
- I am: n
I have:ALSRachael added an InstantMe for Apr 3, 2013 Apr 27, 2013 4:23PMNeutral
Mainly spent the day chasing prescriptions. I managed to go for a drive in the afternoon before falling asleep at six.
-
- Rachael
- Sex: F
- Data Quality: 2 stars
- Bulbar: severe
- Arms: severe
- Chest: moderate
- Legs: severe
- I am: n
I have:ALSRachael added an InstantMe for Apr 2, 2013 Apr 27, 2013 4:02PMNeutral
The phlebotomists visit was almost a joy compared to my last few visits to her clinic.
-
- Rachael
- Sex: F
- Data Quality: 2 stars
- Bulbar: severe
- Arms: severe
- Chest: moderate
- Legs: severe
- I am: n
I have:ALSRachael added an InstantMe for Apr 1, 2013 Apr 27, 2013 4:00PMBad
Took it easy after the trauma of yesterday. Neck and back still very sore.
-
- Rachael
- Sex: F
- Data Quality: 2 stars
- Bulbar: severe
- Arms: severe
- Chest: moderate
- Legs: severe
- I am: n
I have:ALSRachael lost a star Apr 19, 2013

2 stars
-
- Rachael
- Sex: F
- Data Quality: 2 stars
- Bulbar: severe
- Arms: severe
- Chest: moderate
- Legs: severe
- I am: n
I have:ALSRachael added an InstantMe for Mar 25, 2013 Apr 06, 2013 5:31PMNeutral
It has been a busy day today. I had a visit from my lung clinic specialists who brought a new cough assist machine and a travel bipap. They showed my PA's how to use them. Hopefully they should allow me more freedom when travelling due to their portability. We also discussed my drug's and whether the doctor thinks I should continue using Riluzole. After they had left I took Basil cat to the vets for his overnight stay.
1 comment from other members. Only showing public users' comments. Sign up to see all comments! -
- Rachael
- Sex: F
- Data Quality: 2 stars
- Bulbar: severe
- Arms: severe
- Chest: moderate
- Legs: severe
- I am: n
I have:ALSRachael added an InstantMe for Mar 23, 2013 Mar 30, 2013 4:12PMNeutral
It's still thick with snow and so I haven't been able to get out. I have therefore had a relaxing day in front of the television.
-
- Rachael
- Sex: F
- Data Quality: 2 stars
- Bulbar: severe
- Arms: severe
- Chest: moderate
- Legs: severe
- I am: n
I have:ALSRachael added an InstantMe for Mar 30, 2013 Mar 30, 2013 4:04PMNeutral
Had a quiet day with only a quick trip out to pick up some train tickets with my daughter. I've been suffering with mucous again and have needed my cough assist regularly.
-
- Rachael
- Sex: F
- Data Quality: 2 stars
- Bulbar: severe
- Arms: severe
- Chest: moderate
- Legs: severe
- I am: n
I have:ALSRachael added an InstantMe for Mar 29, 2013 Mar 30, 2013 4:02PMGood
Lovely day with my daughter and PA. Relaxed atmosphere but I was sparked out before the "Great British Menu" (TV programme.)
-
- Rachael
- Sex: F
- Data Quality: 2 stars
- Bulbar: severe
- Arms: severe
- Chest: moderate
- Legs: severe
- I am: n
I have:ALSRachael added an InstantMe for Mar 28, 2013 Mar 30, 2013 4:00PMGood
Pampered and preened to within an inch of my life!
-
- Rachael
- Sex: F
- Data Quality: 2 stars
- Bulbar: severe
- Arms: severe
- Chest: moderate
- Legs: severe
- I am: n
I have:ALSRachael added an InstantMe for Mar 27, 2013 Mar 30, 2013 3:59PMBad
Exhausted after training our new PA. I fell asleep whilst my friend was reading. That was pretty much it for the day.
-
- Rachael
- Sex: F
- Data Quality: 2 stars
- Bulbar: severe
- Arms: severe
- Chest: moderate
- Legs: severe
- I am: n
I have:ALSRachael added an InstantMe for Mar 26, 2013 Mar 30, 2013 3:56PMNeutral
Orthotics rang to say my insoles were the wrong size so they cancelled the fitting. We were able to use the time to do a weekly shop before collecting Basil (King of smells!)
-
- Rachael
- Sex: F
- Data Quality: 2 stars
- Bulbar: severe
- Arms: severe
- Chest: moderate
- Legs: severe
- I am: n
I have:ALSRachael added an InstantMe for Mar 24, 2013 Mar 30, 2013 3:54PMGood
Pleased to have Wednesday's PA to myself after so much training. weather allowed us to get out for a quick trip around Hollingworth Lake. Then a mad dash to get warm before the blizzard.
-
- Rachael
- Sex: F
- Data Quality: 2 stars
- Bulbar: severe
- Arms: severe
- Chest: moderate
- Legs: severe
- I am: n
I have:ALSRachael added an InstantMe for Mar 20, 2013 Mar 23, 2013 4:48PMNeutral
Disappointed that my friend couldn't make it for our reading session. I also got a cancellation from my brother for tea. With my new free time I tried to visit an art gallery but on arrival we found them changing exhibitions which involved gloss paint. the air was thick and I couldn't breathe. A lovely drive through the hills to Hebdon Bridge through the hills but too cold to get out.
3 comments from other members. Only showing public users' comments. Sign up to see all comments!-
Tommy Maker
about 2 months agoThanks to you I put some Chekhov on my Kindle. Never read him before. It passed another late night hour very nicely indeed. Great to see you get out so much, sorry to hear you couldn't go into the art gallery.
-
Tommy Maker
about 2 months agoSometimes, I think, its best if you don't get in to the exhibition!
"
The art of sleeping: Oscar winner Tilda Swinton sleeps in a glass box at New York museum for SEVEN hours a day for an exhibitThe Academy Award-winning actress is sleeping in a fitted glass box at New York's Museum of Modern Art this month, fully exposing herself to the public during perhaps one of the most intimate human moments.
Roch
- Show more
Can't imagine how you do it. Sometimes I'm not sure my guys can even remember their own names, I don't know how they'd manage if I wasn't able to instruct them.