Rachael
Rachael
Sex: F
Data Quality: 3 stars
ALS: 6 yrs
Bi-Pap Wheelchair Feeding tube
Bulbar: severe
Arms: severe
Chest: moderate
Legs: severe
Rachael
Female, 42 years
Whitworth, Up in the Penines, Lancs side
Primary Condition
ALS and 2 more ▼
First symptom
Jul 2005
Diagnosis
Mar 2006

About Rachael

http://kbnotestoself.blogspot.com/ I knew there was something wrong but was rather hoping for a radish deficiency in my diet or a trapped nerve! I am the single mum of a fantastic 15 yr old I worked for 3yrs after dx but am now medically retired I use a bipap, powerchair, hoist, catheter and eye gaze I have help at home. I have been a competant and entheusiastic musician but can no longer play; I still enjoy listening and writing a little I worry about coping with the condition in its more advanced stages but have discovered an erstwhile untapped inner-strength and a few good friends

ALS Ribbon ALS Public Registry

Profile Activity
14446 Views
My CareTeam
Rachael's sidekick
dented85
Member since: May 18, 2006 Last Login May 25, 2012

Other Conditions

  1. Iron Deficiency Anemia
    First symptom
    ?
    Diagnosis
    ?
  2. PCOS (Polycystic Ovary Syndrome)
    First symptom
    ?
    Diagnosis
    ?