TysabriSept08's Journal

TysabriSept08: Sex: F; Data Quality: 3 stars; MS: 29 yrs; Mentor; Type: Secondary Progressive; Sensation: Moderate; Overall: Mild; Cognition: none; Vision: none; Speech: none; Swallowing: none; Upper limb: moderate; Walking: severe

TysabriSept08: Female, 66 years; New York, NY

Primary Condition: MS and 1 more ▼
Type: Secondary Progressive
First symptom: Sep 1982
Diagnosis: Jun 1984

Weight

111 lb

BMI

20.3
TysabriSept08 updated heryour weight for May 23, 2012 • May 23, 2012
Is there anything in particular that influenced this weight increase?
InstantMe

Good
TysabriSept08 added an InstantMe for May 23, 2012 • May 23, 2012 11:07AM
What's making you feel good?
Added

Symptom Update
- none Lhermitte's Sign
- none Dizziness and feeling faint
- severe Bladder problems
- moderate Loss of manual dexterity
- moderate Heavy sensation in legs
- severe Clonus
- moderate Weakness in left arm
- none MS hug (tight chest or torso)
- none Foot drop
- mild Heat and cold exacerbate symptoms
- moderate Exercise intolerance
- mild Difficulty turning over or moving in bed
- none Anxious mood
- severe Foot drop (left)
- none Emotional lability
- none Brain fog
- none Fatigue
- none Buzzing vibration sensation
- none Burning sensation
- none Vitamin deficiency
- none UTI symptoms
- none Pain
- severe Breast Cancer recurrence on Tysabri
- moderate Balance problems
- moderate Stiffness/Spasticity
- moderate Stiffness in left leg
- none Nerve pain (neuralgia)
- none Excessive daytime sleepiness (somnolence)
- none Electric shock pain radiating down right leg
- none Serotonin decreased
- none Pain in left leg
- none Mood swings
- none Depressed mood
- moderate Babinski sign
- none Weakness in arms
- moderate Sexual dysfunction
- none Relapse MS (exacerbation)
- severe Weakness in left leg
- none Vertigo
- none Insomnia
- severe Dragging foot
- moderate Bowel problems
- See more
TysabriSept08 updated heryour symptoms for May 23, 2012 • May 23, 2012
What else would you like to share about these symptoms?
Added treatment

Tamoxifen
- Started: Feb 29, 2012
- Dosage: 10 mg/5 mL daily
- Purpose: Breast Cancer
TysabriSept08 added the treatment Tamoxifen • May 14, 2012
What else would you like to share about this treatment?
Added treatment

Tamoxifen
- Started: Feb 29, 2012
- Dosage: 10 mg/5 mL daily
- Purpose: Breast Cancer
TysabriSept08 added the treatment Tamoxifen • May 14, 2012
What else would you like to share about this treatment?
Updated outcome

QOL
- Bad Social
- Good Mental
- Bad Physical
TysabriSept08 completed the QOL survey for Apr 11, 2012 • Apr 11, 2012
What sort of things are negatively affecting your Quality of Life?
New evaluation

Meclizine Prescription Treatment Evaluation
- Efficacy for Vertigo: None
- Side Effects: None
- Adherence: Never
- Burden: Not at all
TysabriSept08 added a treatment evaluation for Meclizine Prescription • Apr 11, 2012
MSRS

28
- No Symptoms Cognition
- No Symptoms Vision
- No Symptoms Speech
- No Symptoms Swallowing
- Mild Upper Limb
- Total Disability Walking
- Mild Sensation
TysabriSept08 completed the MSRS survey for Apr 11, 2012 • Apr 11, 2012
What else would you like to share about the impact of MS on your life?
InstantMe

Good
TysabriSept08 added an InstantMe for Apr 14, 2012 • Apr 14, 2012 12:18PM
What's making you feel good?
Added

Symptom Update
- mild Lhermitte's Sign
- mild Dizziness and feeling faint
- severe Bladder problems
- moderate Loss of manual dexterity
- moderate Heavy sensation in legs
- severe Clonus
- moderate Weakness in left arm
- mild MS hug (tight chest or torso)
- moderate Foot drop
- mild Heat and cold exacerbate symptoms
- severe Exercise intolerance
- mild Difficulty turning over or moving in bed
- none Anxious mood
- severe Foot drop (left)
- none Emotional lability
- none Brain fog
- none Fatigue
- mild Buzzing vibration sensation
- mild Burning sensation
- none Vitamin deficiency
- none UTI symptoms
- none Pain
- moderate Breast Cancer recurrence on Tysabri
- severe Balance problems
- severe Stiffness/Spasticity
- severe Stiffness in left leg
- none Nerve pain (neuralgia)
- none Excessive daytime sleepiness (somnolence)
- none Electric shock pain radiating down right leg
- none Serotonin decreased
- mild Pain in left leg
- none Mood swings
- none Depressed mood
- mild Babinski sign
- mild Weakness in arms
- moderate Sexual dysfunction
- moderate Relapse MS (exacerbation)
- severe Weakness in left leg
- none Vertigo
- none Insomnia
- severe Dragging foot
- moderate Bowel problems
- See more
TysabriSept08 updated heryour symptoms for Apr 11, 2012 • Apr 11, 2012
What else would you like to share about these symptoms?
3 stars
TysabriSept08 earned a star! • Apr 11, 2012
Congrats! Did you know 3 star members can get a free PLM t-shirt?
2 stars
TysabriSept08 lost a star • Mar 10, 2012
Nice work! One more star and you get a PLM t-shirt!
Weight

109 lb

BMI

19.9
TysabriSept08 updated heryour weight for Feb 24, 2012 • Feb 24, 2012
Is there anything in particular that influenced this weight decrease?
3 stars
TysabriSept08 earned a star! • Feb 24, 2012
Congrats! Did you know 3 star members can get a free PLM t-shirt?
2 stars
TysabriSept08 lost a star • Feb 02, 2012
Nice work! One more star and you get a PLM t-shirt!
InstantMe

Good
TysabriSept08 added an InstantMe for Jan 15, 2012 • Jan 15, 2012 6:36PM

MS is not quite as bad - yesterday and today.

What's making you feel good?
New evaluation

Lumpectomy Treatment Evaluation
- Efficacy for Breast Cancer: Slight
- Side Effects: None
- Adherence: Never
- Burden: A little
TysabriSept08 added a treatment evaluation for Lumpectomy from Jul 15, 2010 • Jan 15, 2012
MSRS

28
- No Symptoms Cognition
- No Symptoms Vision
- No Symptoms Speech
- No Symptoms Swallowing
- Mild Upper Limb
- Total Disability Walking
- Mild Sensation
TysabriSept08 completed the MSRS survey for Jan 16, 2012 • Jan 15, 2012
What sort of things are making your MS symptoms worse?
MSRS

21
- No Symptoms Cognition
- No Symptoms Vision
- No Symptoms Speech
- No Symptoms Swallowing
- Mild Upper Limb
- Total Disability Walking
- No Symptoms Sensation
TysabriSept08 completed the MSRS survey for Jan 15, 2012 • Jan 15, 2012
Congratulations, your MSRS is lower. What sort of things are helping your MS symptoms?
Hospitalization

Relapse MS (exacerbation) and MS attack/exacerbation
- Admitted: Aug 22, 2011
- Discharged: Aug 26, 2011
TysabriSept08 added a hospitalization for Relapse MS (exacerbation) and MS attack/exacerbation • Jan 15, 2012
What else would you like to share about this hospitalization?
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About TysabriSept08

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