PatientsLikeMe ™

I am 40 years old and married for 17 years to Ralph who was dx in March of 2006 with Bulbar-onset of ALS. My husband was the first PALS in the state of New Mexico to have a tracheostomy and ventilator. Everyone is learning a lot. We are raising 2 teen daughters. I've had a strong walk with God since 1989 which has kept me grounded, strong, and at peace. I like to travel, work, read, write, dine out, and take care of my family. It's been a very difficult road with so much that has been learned. We have 8 other family caregivers that take shifts as he needs 24 hour care now. Sound like you?