Johnese's Journal

Johnese: Sex: F; Data Quality: 0 stars; MS: 11 yrs; Type: Relapsing-Remitting; Sensation: Moderate; Overall: Mild; Cognition: moderate; Vision: mild; Speech: mild; Swallowing: mild; Upper limb: moderate; Walking: moderate

Johnese: Female, 53 years; Lyons, KS

Primary Condition: MS and 2 more ▼

Type: Relapsing-Remitting

First symptom: Apr 2002
Diagnosis: Jul 2004

Johnese

Sex: F

Data Quality: 0 stars

Sensation: Moderate

Overall: Mild

Cognition: moderate

Vision: mild

Speech: mild

Swallowing: mild

Upper limb: moderate

Walking: moderate

I am: b

I have:
MS
MSRS: 46
- Mild Cognition
- None Vision
- None Speech
- None Swallowing
- Mild Upper Limb
- Moderate Walking
- Moderate Sensation
Johnese completed the MSRS survey for Dec 7, 2012 Dec 07, 2012
Johnese

Sex: F

Data Quality: 0 stars

Sensation: Moderate

Overall: Mild

Cognition: moderate

Vision: mild

Speech: mild

Swallowing: mild

Upper limb: moderate

Walking: moderate

I am: b

I have:
MS
MS (Multiple Sclerosis)
- First symptom: Apr 1, 2002
- Diagnosis: Jul 1, 2004
Johnese updated the condition MS (Multiple Sclerosis) Dec 07, 2012
Johnese

Sex: F

Data Quality: 0 stars

Sensation: Moderate

Overall: Mild

Cognition: moderate

Vision: mild

Speech: mild

Swallowing: mild

Upper limb: moderate

Walking: moderate

I am: b

I have:
MS

Blood Pressure

Systolic

103 mmHg

Diastolic

78 mmHg

Johnese added a new Blood Pressure value for Jun 19, 2012 Jun 26, 2012

4 mos ago was elevated started BP med; was already taking clonidine for hot flashes;will monitor further
Johnese

Sex: F

Data Quality: 0 stars

Sensation: Moderate

Overall: Mild

Cognition: moderate

Vision: mild

Speech: mild

Swallowing: mild

Upper limb: moderate

Walking: moderate

I am: b

I have:
MS
QOL
- Good Social
- Good Mental
- Bad Physical
Johnese completed the QOL survey for Jun 26, 2012 Jun 26, 2012
Johnese

Sex: F

Data Quality: 0 stars

Sensation: Moderate

Overall: Mild

Cognition: moderate

Vision: mild

Speech: mild

Swallowing: mild

Upper limb: moderate

Walking: moderate

I am: b

I have:
MS
Hypertension
- First symptom: ?
- Diagnosis: Feb 16, 2012
Johnese updated the condition Hypertension Jun 26, 2012
Johnese

Sex: F

Data Quality: 0 stars

Sensation: Moderate

Overall: Mild

Cognition: moderate

Vision: mild

Speech: mild

Swallowing: mild

Upper limb: moderate

Walking: moderate

I am: b

I have:
MS
QOL
- Bad Social
- Bad Mental
- Bad Physical
Johnese completed the QOL survey for Apr 29, 2012 Apr 29, 2012

can walk or stand only 10 yo 20 minutes before back and neck spasms before intolerable and severe pain and enable to keep balance and walk
Johnese

Sex: F

Data Quality: 0 stars

Sensation: Moderate

Overall: Mild

Cognition: moderate

Vision: mild

Speech: mild

Swallowing: mild

Upper limb: moderate

Walking: moderate

I am: b

I have:
MS
Symptom Update
- none Emotional lability
- none Anxious mood
- mild Hot flashes
- none Insomnia
- moderate Bladder problems
- mild Sinusitis symptoms
- mild Allergies
- none Bowel problems
- severe Walking slower
- none Inability to experience pleasure (anhedonia)
- mild Sexual dysfunction
- mild Burning sensation
- mild Mood swings
- mild Excessive daytime sleepiness (somnolence)
- mild Brain fog
- none Depressed mood
- none Difficulty sleeping through night
- none Heat intolerance
- moderate Stiffness/Spasticity
- moderate Fatigue
- severe Pain
- See more
Johnese updated her symptoms for Apr 12, 2012 Apr 29, 2012

swollen ankles started lasix 40mg BID on 4-16-12
Johnese

Sex: F

Data Quality: 0 stars

Sensation: Moderate

Overall: Mild

Cognition: moderate

Vision: mild

Speech: mild

Swallowing: mild

Upper limb: moderate

Walking: moderate

I am: b

I have:
MS
Flexeril
- - Started: ?
  - Dosage: ?
- Purpose: Muscle spasms and Burning sensation
Johnese added the treatment Flexeril Apr 29, 2012

early April 2012
Johnese

Sex: F

Data Quality: 0 stars

Sensation: Moderate

Overall: Mild

Cognition: moderate

Vision: mild

Speech: mild

Swallowing: mild

Upper limb: moderate

Walking: moderate

I am: b

I have:
MS
Gabapentin
- - Started: ?
  - Dosage: ?
- Purpose: Burning sensation
Johnese added the treatment Gabapentin Apr 29, 2012

have taken for long time but the burning is increasing frequency and severity in las two months
Johnese

Sex: F

Data Quality: 0 stars

Sensation: Moderate

Overall: Mild

Cognition: moderate

Vision: mild

Speech: mild

Swallowing: mild

Upper limb: moderate

Walking: moderate

I am: b

I have:
MS

Bad
Johnese added an InstantMe for Apr 29, 2012 Apr 29, 2012 2:39AM

lower back spasms
swollen ankles
Johnese

Sex: F

Data Quality: 0 stars

Sensation: Moderate

Overall: Mild

Cognition: moderate

Vision: mild

Speech: mild

Swallowing: mild

Upper limb: moderate

Walking: moderate

I am: b

I have:
MS
MSRS: 60
- Mild Cognition
- Moderate Vision
- Mild Speech
- Mild Swallowing
- Mild Upper Limb
- Moderate Walking
- Moderate Sensation
Johnese completed the MSRS survey for Apr 16, 2012 Apr 29, 2012
Johnese

Sex: F

Data Quality: 0 stars

Sensation: Moderate

Overall: Mild

Cognition: moderate

Vision: mild

Speech: mild

Swallowing: mild

Upper limb: moderate

Walking: moderate

I am: b

I have:
MS
Symptom Update
- none Emotional lability
- mild Anxious mood
- moderate Hot flashes
- mild Insomnia
- mild Bladder problems
- mild Sinusitis symptoms
- moderate Allergies
- none Bowel problems
- severe Walking slower
- none Inability to experience pleasure (anhedonia)
- severe Sexual dysfunction
- moderate Burning sensation
- mild Mood swings
- mild Excessive daytime sleepiness (somnolence)
- mild Brain fog
- moderate Depressed mood
- mild Difficulty sleeping through night
- severe Heat intolerance
- severe Stiffness/Spasticity
- moderate Fatigue
- severe Pain
- See more
Johnese updated her symptoms for Apr 14, 2012 Apr 29, 2012
Johnese

Sex: F

Data Quality: 0 stars

Sensation: Moderate

Overall: Mild

Cognition: moderate

Vision: mild

Speech: mild

Swallowing: mild

Upper limb: moderate

Walking: moderate

I am: b

I have:
MS
QOL
- Good Social
- Good Mental
- Bad Physical
Johnese completed the QOL survey for Mar 30, 2012 Mar 30, 2012
Johnese

Sex: F

Data Quality: 0 stars

Sensation: Moderate

Overall: Mild

Cognition: moderate

Vision: mild

Speech: mild

Swallowing: mild

Upper limb: moderate

Walking: moderate

I am: b

I have:
MS

Tagged Topic
Johnese added the tag Ampyra to My Rebif Experience Feb 24, 2012
Johnese

Sex: F

Data Quality: 0 stars

Sensation: Moderate

Overall: Mild

Cognition: moderate

Vision: mild

Speech: mild

Swallowing: mild

Upper limb: moderate

Walking: moderate

I am: b

I have:
MS

0 stars
Johnese lost a star Feb 15, 2012
Johnese

Sex: F

Data Quality: 0 stars

Sensation: Moderate

Overall: Mild

Cognition: moderate

Vision: mild

Speech: mild

Swallowing: mild

Upper limb: moderate

Walking: moderate

I am: b

I have:
MS
Trazodone Treatment Evaluation
- Perceived effectiveness for Difficulty sleeping through night: Slight
- Side Effects: Severe
- Adherence: Sometimes
- Burden: Not at all
Advice & Tips

Why suffer a hang over if there is no good time to remember?

Cost

< $25 monthly

Johnese added a treatment evaluation for Trazodone from Dec 21, 2011 Jan 27, 2012
Johnese

Sex: F

Data Quality: 0 stars

Sensation: Moderate

Overall: Mild

Cognition: moderate

Vision: mild

Speech: mild

Swallowing: mild

Upper limb: moderate

Walking: moderate

I am: b

I have:
MS
Stopped: Trazodone
- Stopped: Oct 21, 2011
- Reason: Other
Johnese stopped taking the treatment Trazodone Jan 27, 2012
Johnese

Sex: F

Data Quality: 0 stars

Sensation: Moderate

Overall: Mild

Cognition: moderate

Vision: mild

Speech: mild

Swallowing: mild

Upper limb: moderate

Walking: moderate

I am: b

I have:
MS
Rebif Treatment Evaluation
- Perceived effectiveness for MS (Multiple Sclerosis): ?Can't tell
- Side Effects: None
- Adherence: Never
- Burden: Somewhat
Advice & Tips

Not taking at present. Have more energy able to participate in daily activities. I am alive.

Cost

< $25 monthly

Johnese added a treatment evaluation for Rebif Jan 27, 2012
Johnese

Sex: F

Data Quality: 0 stars

Sensation: Moderate

Overall: Mild

Cognition: moderate

Vision: mild

Speech: mild

Swallowing: mild

Upper limb: moderate

Walking: moderate

I am: b

I have:
MS
Fluticasone Treatment Evaluation
- Perceived effectiveness for Sinusitis symptoms: Moderate
- Perceived effectiveness for Allergies: Slight
- Side Effects: None
- Adherence: Usually
- Burden: Not at all
Cost

< $25 monthly

Johnese added a treatment evaluation for Fluticasone Jan 27, 2012
Johnese

Sex: F

Data Quality: 0 stars

Sensation: Moderate

Overall: Mild

Cognition: moderate

Vision: mild

Speech: mild

Swallowing: mild

Upper limb: moderate

Walking: moderate

I am: b

I have:
MS
Cymbalta Treatment Evaluation
- Perceived effectiveness for Depressed mood: None
- Perceived effectiveness for Pain: Moderate
- Side Effects: Moderate
- Adherence: Never
- Burden: Not at all
Advice & Tips

I was too nice, easily taken at advantage off.

Cost

< $25 monthly

Johnese added a treatment evaluation for Cymbalta Jan 27, 2012
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