notinkansas
notinkansas
Sex: M
Data Quality: 0 stars
ALS: 18 yrs
Ventilator Wheelchair
Bulbar: severe
Arms: severe
Chest: severe
Legs: severe
notinkansas
Male, 74 years
New York, NY
Primary Condition
ALS
First symptom
Apr 1994
Diagnosis
Jun 1997

About notinkansas

I was born and raised on a wheat farm near Lindsborg,Kansas, then college at K-State and law at Georgetown. I practiced patent law in NYC for 40 years. Married and have 3 sons,all in NYC. Retired in 2003, totally disabled and have been on a trach, ventilator, feeding tube since Jan, 2004. I have been using an eye-responsive computer for past two years with good success, including e-mail and Internet accessibility. With my eye only, I just published my Memoir, "Not in Kansas Anymore." which includes a detailed chronicle of my ALS experience. Available by email to mepaulson@rcn.com.

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Member since: Jan 30, 2009 Last Login Mar 22, 2011