expastrychef's Journal

expastrychef: Sex: M; Data Quality: 1 star; MS: 13 yrs; Type: Secondary Progressive; Sensation: Moderate; Overall: Moderate; Cognition: moderate; Vision: mild; Speech: moderate; Swallowing: moderate; Upper limb: moderate; Walking: moderate

expastrychef: Male, 49 years; West New York, NJ

Primary Condition: MS and 3 more ▼

Type: Secondary Progressive

First symptom: Sep 1999
Diagnosis: Apr 2000

expastrychef

Sex: M

Data Quality: 1 star

Sensation: Moderate

Overall: Moderate

Cognition: moderate

Vision: mild

Speech: moderate

Swallowing: moderate

Upper limb: moderate

Walking: moderate

I have:
MS
QOL
- Good Social
- Good Mental
- Bad Physical
expastrychef completed the QOL survey for Jun 8, 2013 Jun 08, 2013
expastrychef

Sex: M

Data Quality: 1 star

Sensation: Moderate

Overall: Moderate

Cognition: moderate

Vision: mild

Speech: moderate

Swallowing: moderate

Upper limb: moderate

Walking: moderate

I have:
MS
Alpha Lipoic Acid Treatment Evaluation
- Perceived effectiveness for MS (Multiple Sclerosis): None
- Side Effects: None
- Adherence: Always
- Burden: A little
Cost

< $25 monthly

expastrychef added a treatment evaluation for Alpha Lipoic Acid from Feb 15, 2012 Jun 08, 2013
expastrychef

Sex: M

Data Quality: 1 star

Sensation: Moderate

Overall: Moderate

Cognition: moderate

Vision: mild

Speech: moderate

Swallowing: moderate

Upper limb: moderate

Walking: moderate

I have:
MS
MSRS: 60
- Moderate Cognition
- None Vision
- Mild Speech
- Moderate Swallowing
- Mild Upper Limb
- Moderate Walking
- Moderate Sensation
expastrychef completed the MSRS survey for Jun 8, 2013 Jun 08, 2013
expastrychef

Sex: M

Data Quality: 1 star

Sensation: Moderate

Overall: Moderate

Cognition: moderate

Vision: mild

Speech: moderate

Swallowing: moderate

Upper limb: moderate

Walking: moderate

I have:
MS
Lactulose Treatment Evaluation
- Perceived effectiveness for Bowel problems: Moderate
- Side Effects: None
- Adherence: Usually
- Burden: Not at all
expastrychef added a treatment evaluation for Lactulose from Feb 15, 2012 Jun 08, 2013
expastrychef

Sex: M

Data Quality: 1 star

Sensation: Moderate

Overall: Moderate

Cognition: moderate

Vision: mild

Speech: moderate

Swallowing: moderate

Upper limb: moderate

Walking: moderate

I have:
MS
Acetyl L-Carnitine Treatment Evaluation
- Perceived effectiveness for Fatigue: None
- Side Effects: None
- Adherence: Always
- Burden: Somewhat
Cost

$25-49 monthly

expastrychef added a treatment evaluation for Acetyl L-Carnitine from Feb 15, 2012 Jun 08, 2013
expastrychef

Sex: M

Data Quality: 1 star

Sensation: Moderate

Overall: Moderate

Cognition: moderate

Vision: mild

Speech: moderate

Swallowing: moderate

Upper limb: moderate

Walking: moderate

I have:
MS
Alfuzosin Treatment Evaluation
- Perceived effectiveness for Bladder problems: Moderate
- Side Effects: None
- Adherence: Usually
- Burden: Somewhat
Cost

$50-99 monthly

expastrychef added a treatment evaluation for Alfuzosin from Feb 15, 2012 Jun 08, 2013
expastrychef

Sex: M

Data Quality: 1 star

Sensation: Moderate

Overall: Moderate

Cognition: moderate

Vision: mild

Speech: moderate

Swallowing: moderate

Upper limb: moderate

Walking: moderate

I have:
MS
Cough Drops
- - Started: Jul 1, 2006
  - Current Dosage: as needed
- Purpose: Swallowing difficulty (dysphagia) and Cough
expastrychef updated the treatment Cough Drops Jun 08, 2013
expastrychef

Sex: M

Data Quality: 1 star

Sensation: Moderate

Overall: Moderate

Cognition: moderate

Vision: mild

Speech: moderate

Swallowing: moderate

Upper limb: moderate

Walking: moderate

I have:
MS
Guaifenesin
- - Started: Jul 1, 2008
  - Current Dosage: 200mg as needed
- Purpose: Swallowing difficulty (dysphagia) and Excess mucus
expastrychef updated the treatment Guaifenesin Jun 08, 2013
expastrychef

Sex: M

Data Quality: 1 star

Sensation: Moderate

Overall: Moderate

Cognition: moderate

Vision: mild

Speech: moderate

Swallowing: moderate

Upper limb: moderate

Walking: moderate

I have:
MS
Symptom Update
- moderate Swallowing difficulty (dysphagia)
expastrychef updated his symptoms for Jun 7, 2013 Jun 08, 2013
expastrychef

Sex: M

Data Quality: 1 star

Sensation: Moderate

Overall: Moderate

Cognition: moderate

Vision: mild

Speech: moderate

Swallowing: moderate

Upper limb: moderate

Walking: moderate

I have:
MS
Symptom Update
- moderate Swallowing difficulty (dysphagia)
- moderate Walking problems
- moderate unable to carry items
- mild Trigeminal neuralgia (trigeminal nerve pain)
- mild Tremor(s)
- mild Tremor in legs
- moderate Stiffness/Spasticity
- moderate Sleeplessness
- moderate Sexual dysfunction
- moderate Proprioceptive Disorder
- moderate Problems with coordination in hands
- moderate Pain
- moderate Numbness and Tingling with Pins and Needles
- mild MS hug (tight chest or torso)
- mild Mood swings
- mild Lhermitte's Sign
- moderate Insomnia
- moderate Heat intolerance
- mild Foot drop
- moderate Fatigue
- mild Falls
- mild Facial tremor
- mild Facial spasm
- moderate Excessive daytime sleepiness (somnolence)
- mild Emotional lability
- mild Elevated blood pressure
- moderate Difficulty sleeping through night
- mild Depressed mood
- mild Cramps in calf muscles
- mild Constipation
- moderate Cognitive impairment
- moderate Clonus
- mild Brain fog
- mild Bowel problems
- moderate Bladder problems
- moderate Bathroom visits
- moderate Balance problems
- mild Anxious mood
- See more
expastrychef updated his symptoms for Jun 8, 2013 Jun 08, 2013
expastrychef

Sex: M

Data Quality: 1 star

Sensation: Moderate

Overall: Moderate

Cognition: moderate

Vision: mild

Speech: moderate

Swallowing: moderate

Upper limb: moderate

Walking: moderate

I have:
MS
Vicks Vaporub
- - Started: ?
  - Dosage: ?
- Purpose: Difficulty breathing at night
expastrychef updated the treatment Vicks Vaporub Jun 08, 2013
expastrychef

Sex: M

Data Quality: 1 star

Sensation: Moderate

Overall: Moderate

Cognition: moderate

Vision: mild

Speech: moderate

Swallowing: moderate

Upper limb: moderate

Walking: moderate

I have:
MS
Vitamin D3 (cholecalciferol)
- - Started: Jan 22, 2006
  - Current Dosage: 1500 intl units daily
- Purpose: MS
expastrychef updated the treatment Vitamin D3 (cholecalciferol) Jun 08, 2013
- Added
  - Started: Jan 22, 2006
  - Dosage: 800 intl units daily
  - Purpose: MS (Multiple Sclerosis)
  - Jan 22, 2006
- Changed Dosage
  - Dosage: 1200 intl units daily
  - Mar 14, 2009
- Changed Dosage
  - Dosage: 1600 intl units daily
  - Jun 20, 2009
- Changed Dosage
  - Dosage: 1800 intl units daily
  - Jul 31, 2009
- Changed Dosage
  - Dosage: 3200 intl units daily
  - Apr 04, 2010
- Changed Dosage
  - Dosage: 3400 intl units daily
  - Aug 29, 2010
- Changed Dosage
  - Dosage: 1200 mg daily
  - Sep 30, 2010
- Changed Dosage
  - Dosage: 1500 intl units daily
  - Feb 15, 2012
expastrychef

Sex: M

Data Quality: 1 star

Sensation: Moderate

Overall: Moderate

Cognition: moderate

Vision: mild

Speech: moderate

Swallowing: moderate

Upper limb: moderate

Walking: moderate

I have:
MS
Alpha Lipoic Acid
- - Stopped: Feb 15, 2012
  - Reason: Did not seem to work
  - Started: Jan 22, 2006
  - Last Dosage: 300 mg daily
- Purpose: MS
- View Latest Evaluation
expastrychef updated the treatment Alpha Lipoic Acid Jun 08, 2013
- Added
  - Started: Jan 22, 2006
  - Dosage: 600 mg daily
  - Purpose: MS (Multiple Sclerosis)
  - Jan 22, 2006
- Evaluated
  - View Evaluation
  - Feb 23, 2009
- Changed Dosage
  - Dosage: 300 mg daily
  - Jun 26, 2010
- Stopped
  - Date: Feb 15, 2012
  - Reason: Did not seem to work
  - Feb 15, 2012
- Evaluated
  - View Evaluation
  - Feb 15, 2012
expastrychef

Sex: M

Data Quality: 1 star

Sensation: Moderate

Overall: Moderate

Cognition: moderate

Vision: mild

Speech: moderate

Swallowing: moderate

Upper limb: moderate

Walking: moderate

I have:
MS
Button and Zipper tool
- - Started: ?
  - Dosage: ?
- Purpose:
expastrychef updated the treatment Button and Zipper tool Jun 08, 2013
expastrychef

Sex: M

Data Quality: 1 star

Sensation: Moderate

Overall: Moderate

Cognition: moderate

Vision: mild

Speech: moderate

Swallowing: moderate

Upper limb: moderate

Walking: moderate

I have:
MS
Shower/Tub Chair
- - Started: Jun 20, 2009
  - Current Dosage: daily
- Purpose: Balance problems
expastrychef updated the treatment Shower/Tub Chair Jun 08, 2013
expastrychef

Sex: M

Data Quality: 1 star

Sensation: Moderate

Overall: Moderate

Cognition: moderate

Vision: mild

Speech: moderate

Swallowing: moderate

Upper limb: moderate

Walking: moderate

I have:
MS
Ankle Foot Orthosis AFO
- - Started: Apr 28, 2010
  - Current Dosage: as needed
- Purpose: Foot drop
expastrychef updated the treatment Ankle Foot Orthosis AFO Jun 08, 2013
expastrychef

Sex: M

Data Quality: 1 star

Sensation: Moderate

Overall: Moderate

Cognition: moderate

Vision: mild

Speech: moderate

Swallowing: moderate

Upper limb: moderate

Walking: moderate

I have:
MS
Vitamin E
- - Started: Mar 14, 2009
  - Current Dosage: 50 intl units daily
- Purpose: MS
expastrychef updated the treatment Vitamin E Jun 08, 2013
- Added
  - Started: Mar 14, 2009
  - Dosage: 200 intl units daily
  - Purpose: MS (Multiple Sclerosis)
  - Mar 14, 2009
- Changed Dosage
  - Dosage: 100 intl units daily
  - Feb 25, 2010
- Changed Dosage
  - Dosage: 100 intl units daily
  - Apr 25, 2010
- Changed Dosage
  - Dosage: 50 intl units daily
  - Feb 15, 2012
expastrychef

Sex: M

Data Quality: 1 star

Sensation: Moderate

Overall: Moderate

Cognition: moderate

Vision: mild

Speech: moderate

Swallowing: moderate

Upper limb: moderate

Walking: moderate

I have:
MS
Lactulose
- - Stopped: Feb 15, 2012
  - Reason: Course of treatment ended
  - Started: Mar 25, 2010
  - Last Dosage: 10g/15mL as needed
- Purpose: Bowel problems
- View Latest Evaluation
expastrychef updated the treatment Lactulose Jun 08, 2013
- Added
  - Started: Mar 25, 2010
  - Dosage: 10g/15mL as needed
  - Purpose: Bowel problems
  - Mar 25, 2010
- Stopped
  - Date: Feb 15, 2012
  - Reason: Course of treatment ended
  - Feb 15, 2012
- Evaluated
  - View Evaluation
  - Feb 15, 2012
expastrychef

Sex: M

Data Quality: 1 star

Sensation: Moderate

Overall: Moderate

Cognition: moderate

Vision: mild

Speech: moderate

Swallowing: moderate

Upper limb: moderate

Walking: moderate

I have:
MS
Acetyl L-Carnitine
- - Stopped: Feb 15, 2012
  - Reason: Did not seem to work
  - Started: Aug 15, 2009
  - Last Dosage: 250 mg daily
- Purpose: Fatigue
- View Latest Evaluation
expastrychef updated the treatment Acetyl L-Carnitine Jun 08, 2013
- Added
  - Started: Aug 15, 2009
  - Dosage: 250 mg daily
  - Purpose: Fatigue
  - Aug 15, 2009
- Changed Dosage
  - Dosage: 500 mg daily
  - Oct 01, 2009
- Changed Dosage
  - Dosage: 750 mg daily
  - Dec 01, 2009
- Changed Dosage
  - Dosage: 1000 mg daily
  - Jan 03, 2010
- Evaluated
  - View Evaluation
  - Feb 10, 2010
- Changed Dosage
  - Dosage: 750 mg daily
  - Feb 15, 2010
- Changed Dosage
  - Dosage: 500 mg daily
  - Apr 30, 2010
- Changed Dosage
  - Dosage: 250 mg daily
  - Jun 26, 2010
- Evaluated
  - View Evaluation
  - Feb 15, 2012
- Stopped
  - Date: Feb 15, 2012
  - Reason: Did not seem to work
  - Feb 15, 2012
expastrychef

Sex: M

Data Quality: 1 star

Sensation: Moderate

Overall: Moderate

Cognition: moderate

Vision: mild

Speech: moderate

Swallowing: moderate

Upper limb: moderate

Walking: moderate

I have:
MS
Alfuzosin
- - Stopped: Feb 15, 2012
  - Reason: Doctor's advice
  - Started: Nov 17, 2009
  - Last Dosage: 10 mg daily
- Purpose: Bladder problems
- View Latest Evaluation
expastrychef updated the treatment Alfuzosin Jun 08, 2013
- Added
  - Started: Nov 17, 2009
  - Dosage: 10 mg daily
  - Purpose: Bladder problems
  - Nov 17, 2009
- Evaluated
  - View Evaluation
  - Feb 10, 2010
- Stopped
  - Date: Feb 15, 2012
  - Reason: Doctor's advice
  - Feb 15, 2012
- Evaluated
  - View Evaluation
  - Feb 15, 2012
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