PatientsLikeMe ™

My name is Julie. I'm 44 yrs old. My Dad was diagnosed with ALS 1/13/09. I am devastated by this news. We were told May 2008 there was a high suspicion this could be ALS. I've cried everyday since then. I am an RN, and as an agency nurse, have taken care of an ALS patient in his home, and have witnessed first hand the cruelty of this disease and the challenges it imposes on the patient, family and caregivers. I never imagined ALS would hit so close to home but I refuse to ask, "why". I am a caregiver to my Dad, and I commit to help find a cure for this dreadful disease. NEVER GIVE UP